Long covid here too, been bedridden for two years fully depened on my parents
qewpie
body so broken I AM IN HELL
- Aug 3, 2025
- 128
ohhh everything hurts all the time please god just give me a heart attack!
littleearthquakes
Member
- Apr 10, 2024
- 72
I keep getting worse and losing function. I seem to just depress and scare everyone. My partner/ex is already resentful and tired of taking so much care of me. I'm in so much pain and no one understands or truly cares or will hold space. I can't keep a friend. I don't know how to connect anymore. Fuck chronic illness and this whole world for how it handles and treats it too.
TheFallen
Member
- Jan 10, 2024
- 14
This is a real long shot but anyone else on a medical medium journey to try and recover their health?
Yeah.
14 years of chronic pain.
4 years after gallbladder removal suffering daily, getting sick...
Don't know what to do anymore, except maybe a miracle with Joe Dispenza's meditations?!
But I'm considering hanging.
Diarrhea and constipation, scared to go out, can't work or study.
Cannabis helped for 3 years, but not anymore.
14 years here... This sucks.I am dealing with constant back pain. About a year and a half ago, I was diagnosed with a herniated disc. No matter what I do, even laying down, causes moderate pain in my lower back. It isn't completely debilitating, but is something that impairs my daily life.
About 6 months ago, it got a lot better, but recently, due to some unfortunate circumstances and poor posture while doing things, it has come back.
I constantly thing the pain will never go away, even though it has in the past and will again, my brain things it won't.
I know it's not the worst thing in the world, but it causes me a lot of suffering.
I hope all of you are doing well and coping with the suffering of life. Love you all.
qewpie
body so broken I AM IN HELL
- Aug 3, 2025
- 128
Wolf Girl
"This place made me feel worthless"
- Jun 12, 2024
- 646
Fibro and IBS diagnosed last year. Everything is so hard now. I have to have a shower stool and I also use it to sit while brushing my teeth and putting on make up. Going up one flight of stares requires a couple breaks. It's so defeating.
dr18
Member
- Jul 20, 2024
- 10
updated to my previous post on my lung troubles...
it's taken a year now but doctors are concluding for me its most likely endometriosis in my lungs/thoracic cavity (general area) so most likely going to have more surgeries to explore and correct these problems inside of me. I look forward to being put to sleep for the operation, as it is actually very blissful for me. I was so scared prior to my first lung surgery, of being put to sleep, but in that moment it felt super good actually so! small mercy :D
if it aint the endo in my thoracic cavity its prolly something spookier and genetic related that'll kill me anyway.
either of these are pretty miserable state to live in (I Do not trust the NHS to correct this issue, they've made it worse for me). Unsure how to proceed on suicide now, as I have a little dog to look after and he has grown more attached to me than I thought he would. I do have a BF but it doesnt hurt me to know itll hurt him when I do eventually kill myself, yes it's selfish lol but i'm going to become a burden and already have become a medical burden for him.
it's taken a year now but doctors are concluding for me its most likely endometriosis in my lungs/thoracic cavity (general area) so most likely going to have more surgeries to explore and correct these problems inside of me. I look forward to being put to sleep for the operation, as it is actually very blissful for me. I was so scared prior to my first lung surgery, of being put to sleep, but in that moment it felt super good actually so! small mercy :D
if it aint the endo in my thoracic cavity its prolly something spookier and genetic related that'll kill me anyway.
either of these are pretty miserable state to live in (I Do not trust the NHS to correct this issue, they've made it worse for me). Unsure how to proceed on suicide now, as I have a little dog to look after and he has grown more attached to me than I thought he would. I do have a BF but it doesnt hurt me to know itll hurt him when I do eventually kill myself, yes it's selfish lol but i'm going to become a burden and already have become a medical burden for him.
Macedonian1987
Just a sad guy from Macedonia.
- Oct 22, 2025
- 244
I'm so sorry to hear you suffer so much.
I suffer from multiple painful joints. I have joints of a 70 year old person but i'm only 38. On top of that due to my asperger's i never had a true friend and i only had one relationship without any love in it. She was a sadistic girl who enjoyed seeing me sufer.
grandmotherboxing
glorp
- Jun 22, 2024
- 23
I have permanent nerve damage due to until recently untreated secondary hypogonadism (childhood onset, age 8, im 21 now). The pain was unbearable until I finally got a peripheral neuropathy diagnosis in January. I also have aspergers and PTSD and no money to my name so im recovering alone in a cheap home my father pays for. Wasted life to be honest. Someone can tell me I am still young but the fight is exhausting, I dont wanna be 30 by the time something good finally happens
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shampoo sniffer
Terminally mentally ill
- Aug 10, 2025
- 197
My mental health is pitiful, but my physical health is actually good.
Don't know how long that will last though, one tends to leach into the other eventually.
Don't know how long that will last though, one tends to leach into the other eventually.
Macedonian1987
Just a sad guy from Macedonia.
- Oct 22, 2025
- 244
If your physical health is good, try working out. Working out used to help me a bit with my mental health, but then my joints went to shit, and now I cannot work out.
qewpie
body so broken I AM IN HELL
- Aug 3, 2025
- 128
Haha I think when I first posted in here I hadn't gotten my balance disorder yet. Well, I took a med that usually helps with Long COVID and now I permanently feel like I'm always tilting forward!! Didn't know that it was even possible to lose something so basic and taken-for-granted. I miss when the world was normal and straight. Fuck. I really can't live for many years like this
grandmotherboxing
glorp
- Jun 22, 2024
- 23
qewpie
body so broken I AM IN HELL
- Aug 3, 2025
- 128
Based on my disease trajectory it's likely that I can return to functioning somewhat normally physically, if I keep living for that long. But I really don't think the balance disorder will be fixed, and because of it all I want to do is lay down.
grandmotherboxing
glorp
- Jun 22, 2024
- 23
Not going to tell you to keep fighting desperately, but try your best. I get hopeless every day even if I have a trajectory for recovery, just the thought that I'll be permanently disabled and dependent on pills and injections (most likely) makes me wanna give up.
qewpie
body so broken I AM IN HELL
- Aug 3, 2025
- 128
Alas, I also have other unexplainable symptoms that have stolen my peace with absolutely no known treatments and no idea if it will ever go away. And since my luck has historically been very bad, I think I'll be trapped in this prison for a very long time.
grandmotherboxing
glorp
- Jun 22, 2024
- 23
I have hypermobile Ehlers-Danlos Syndrome (EDS), comorbid Craniocervical Instability (CCI), and Visual Snow Syndrome (VSS). On top of that, I have OCD, so I obsess about all of these things.
mourningyesterday
Member
- Apr 30, 2025
- 38
i have VSS and OCD too and i suspect EDS and Mcas, i feel ur pain
HD72
Humpty Dumpty had a great fall
- Sep 10, 2023
- 399
53 years of pain. Never had a life. I just want to die but I was told I'd go to hell if I commit suicide. I can't go on. Someone offered to help me but I'm afraid. I don't know this person and they are so sick it would take an act of god to get them here and it would be their last trip what if I changed my mind what would we do. I can't have them die here and have the police come. I can't get out to get a gun. I can't use SN. I'm trapped. Doctors just call me mentally ill and make fun of me. I am terrified. When my mom goes I'll be homeless.
Damn, we may really have the same collection of issues
Ashu
novelist, sanskritist, Canadian living in India
- Nov 13, 2021
- 871
Well, you _could_ refuse treatment, but perhaps it's just too horrible and lingering a way to die.
UnrulyNightmare
Wanderer
- Jul 3, 2024
- 426
May I ask what med did that? Sounds horrible!
I'm also a long hauler... s been nearly 3 years now.
qewpie
body so broken I AM IN HELL
- Aug 3, 2025
- 128
The NHS does not seem to be able to treat anything nowdays
UnrulyNightmare
Wanderer
- Jul 3, 2024
- 426
Low‑Dose Naltrexone?
May I ask how much you took? I'm reading that those side effects should go away again
Although I have heard that before
qewpie
body so broken I AM IN HELL
- Aug 3, 2025
- 128
I am truly an extremely unlucky exception to the rule because it was just 0.5 mg, one dose. Haven't taken it again since.Low‑Dose Naltrexone?
May I ask how much you took? I'm reading that those side effects should go away again
Although I have heard that before
UnrulyNightmare
Wanderer
- Jul 3, 2024
- 426
I'm sorry to hear. And it didn't go away at all after..?
Are you reacting like crazy to every and all medication as well? Tried ssri and stimulant. Both got me into the hospital on a tenth of a dose from side effects.
Ssri made me walk to the left. Took it 2x. Took 3 months to get back to baseline and walking normal..
qewpie
body so broken I AM IN HELL
- Aug 3, 2025
- 128
so i took LDN within my first 2 months of Long COVID, in that time I also tried Zoloft and Cymbalta, which also gave me some kinda bad side effects, but nothing permanent like LDN has.
Now, 4 months in, I'm taking amitriptyline and 2 nasal meds and trialing Mestinon, and not having any significant side effects
It would be a miracle if my balance disorder could work out like your SSRI experience. I would probably start believing in a god. But it literally hasn't changed in the 3 months since I took that fateful dose.
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