March is Endometriosis Awareness Month

[vyvanceandvodka]

I wanted to make a post because I've dealt with endometriosis since I was 14. I didn't get diagnosed until I was 22 due to health care providers not taking my pain seriously. Every single day I suffer from this condition. To all the woman out there with endometriosis, I see you and you matter! Feel free to comment about your experiences if you relate. It would make me feel less alone.

 

[Macedonian1987]

I talked to a woman on this forum who had endometriosis, she sadly ctb in november-december 2025. She had a bad case of it, and couldn't take it any longer. I miss her so much. I hate this disease with a passion after that.

 

[shiny_quill]

Not a woman, but I have endometriosis and PCOS and I basically tried everything to make the pain bearable, from the pill to depo-provera injections, nothing worked and I was just feeling really dysphoric. The only thing that worked for me was HRT, which I almost cried about when I realized that I went from sometimes weeks on end of constant pain to... Basically a pinch maybe once a month? and it wasn't because of medical improvements or anything like that because doctors still don't care about women's health and it sucks. I really hope research advances enough in your lifetime to make things bearable for you, because I honestly never even realized how badly the pain was affecting my suicidal thoughts until it was gone to be honest.

 

[vyvanceandvodka]

Not a woman, but I have endometriosis and PCOS and I basically tried everything to make the pain bearable, from the pill to depo-provera injections, nothing worked and I was just feeling really dysphoric. The only thing that worked for me was HRT, which I almost cried about when I realized that I went from sometimes weeks on end of constant pain to... Basically a pinch maybe once a month? and it wasn't because of medical improvements or anything like that because doctors still don't care about women's health and it sucks. I really hope research advances enough in your lifetime to make things bearable for you, because I honestly never even realized how badly the pain was affecting my suicidal thoughts until it was gone to be honest.

I'm so sorry. I understand your pain. I've been on the pill for over a decade because of how bad my cramps get on my period. It feels like I'm dying. I was shocked to realized it wasn't normal. I hope in my lifetime we can find a cure. I have pelvic floor dysfunction and interstitial cystitis. I have a bunch of other issues I don't want to discuss publicly but it's hell. I hate it.

 

[unluckysadness]

I'm a man but I can feel what women endure with this condition because I suffer from pelvic pain since 2 years and it's now a huge struggle. It makes me more suicidal because I cannot talk about it. It's very embarrassing and painful and it worsens my isolation because I cannot do normal things. I think that a lot of men suffer from this but nobody talk about it. It's like Crohn, it's a taboo subject.

It's good news to hear there is a Endometriosis Awareness Month. I have another major condition called dystonia and the Dystonia Aareness Month is in September but sadly nobody talks about it on medias.

 

[vyvanceandvodka]

I talked to a woman on this forum who had endometriosis, she sadly ctb in november-december 2025. She had a bad case of it, and couldn't take it any longer. I miss her so much. I hate this disease with a passion after that.

I'm sorry to hear that. It breaks my heart. The pain of endo is the worst I've ever felt. I've never given birth but the period cramps feel like what a contraction might be feel like. I don't want kids but endo can cause infertility and my heart goes out to women who want kids but can't have them. It's devastating. I hope she found peace.

 

[doomedbynarrative]

The fact that people see endo as a "woman's uterine condition" still when we have growing evidence that it spreads to other organs and actually can act like cancer in how it spreads... And only a few countries are doing any research.
Infuriating and unfair.

 

[vyvanceandvodka]

The fact that people see endo as a "woman's uterine condition" still when we have growing evidence that it spreads to other organs and actually can act like cancer in how it spreads... And only a few countries are doing any research.
Infuriating and unfair.

EXACTLY!! I'm sure it's spread to my stomach and lower back at this point. It's awful. :(( Def takes part in me being suicidal.

 

[thelostautistic]

Thank you for making this thread. I can relate. I was diagnosed was Endometriosis in 2024 and it's been really hard

 

[vyvanceandvodka]

Thank you for making this thread. I can relate. I was diagnosed was Endometriosis in 2024 and it's been really hard

I'm so sorry. I hope you find the relief you deserve. <3 It's a terrible disease.

 

[WhatCouldHaveBeen32]

I got flashbacks to "Does Endo affect the pleasure of the Man partner"

We live in this world where women's issues are just swept under the rug or are investigated only when it affects men's health in a way

A qualitative study of the impact of endometriosis on male partners - PMC

What is the impact of endometriosis on male partners of women with the condition? Endometriosis significantly impacts men across several life domains and can negatively impact emotional well-being. Endometriosis has been shown to negatively impact ...

pmc.ncbi.nlm.nih.gov

How Does Endometriosis Affect the Sexual Satisfaction of Men?

Although the majority of men whose partner has endometriosis are satisfied or very satisfied with their sexual relationship, the proportion of men who are not sexually…

www.endonews.com

I am sorry that you have to deal with this pain and that it's not even seen as a real thing; this should be a relic of the past, something that can be treated on a whim, so many women suffer for it and nobody seems to notice or care.

 

[assassinlord82]

im not afab but i know my sister goes through this and i just have to say im so sorry for you people have to experience this, even though i will never know what it feels like