Terrible disease

[mecfs_victim]

Hi everyone. I have a terrible disease - ME/CFS. I hardly get up, I lie all day in a dark room, I can't do anything. There is no treatment, my relatives are constantly trying to put me in a psychiatric hospital. It hurts a lot and it only gets worse. Ordered SN. They promise to bring it next week.

 

[yetme]

Dunno what ME is, but CFS is treatable. At least Ive managed to treat mine

 

[312]

I hope you can be well soon, how long has this been?

 

[Gnip]

Dunno what ME is, but CFS is treatable. At least Ive managed to treat mine

ME = myalgic encephalomyeltis.

 

[Frenchguy]

I have severe me/CFS too

 

[WornOutLife]

Damn! I'm so sorry you're feeling like this.
Hope your SN arrives and you find peace soon.
Wish you the best!

 

[mecfs_victim]

I have been ill for almost 2 years. I'm exhausted and it only makes me worse. There are currently no treatments available. There is very little research and people have been rotting alive for years. I would like people to know more about this terrible disease. It does not kill in itself like cancer and HIV, but it leads to unbearable agony. At the same time, the attitude towards this disease in society is like a cold.

Thank you guys for the support ❤
I really dream of being in a world without physical pain. Life is unbearable.

 

[Gnip]

https://www.dailyrecord.co.uk/news/scottish-news/author-who-endures-crippling-chronic-21172609

 

[mecfs_victim]

https://www.dailyrecord.co.uk/news/scottish-news/author-who-endures-crippling-chronic-21172609

Yes, this is how we live and die. And nobody cares

I think this forum is full of ME/CFS sufferers

 

[Gnip]

Putting somebody in a psychiatric hospital for ME is as stupid as trying to treat cure cancer with psychotherapy. It's caused by a damned virus, and any psychiatrist so corrupt as to attempt treating it as a mental health issue should be stripped of their medical license and thrown in jail.

 

[Darkhaven]

I have Essential Tremor. A neurological disease.
It has no cure, it´s progressive and it´s a highly disabling disease.
It´s almost the same as Parkinson´s.
Diagnosed at 21 years old.

 

[mecfs_victim]

I have Essential Tremor. A neurological disease.
It has no cure, it´s progressive and it´s a highly disabling disease.
It´s almost the same as Parkinson´s.
Diagnosed at 21 years old.

I'm so sorry for you I also got sick at a young age, at 22 y.o. Now I am 24. I wish one day scientists find a cure for your disease! And for all ME/CFS and Parkinsons sufferers.

Putting somebody in a psychiatric hospital for ME is as stupid as trying to treat cure cancer with psychotherapy. It's caused by a damned virus, and any psychiatrist so corrupt as to attempt treating it as a mental health issue should be stripped of their medical license and thrown in jail.

I live in a country where there is complete chaos with psychiatry and you can be locked up in a psychiatric hospital on the complaint of a neighbor or relatives.

 

[Gnip]

I have Essential Tremor. A neurological disease.
It has no cure, it´s progressive and it´s a highly disabling disease.
It´s almost the same as Parkinson´s.
Diagnosed at 21 years old.

The actress Katherine Hepburn had it later in life, and it ended both the music career of Daryl "The Captain" Dragon and his marriage to Toni Tennille (although they remained close until his death).

ET is probably a condition which qualifies you for assisted suicide and euthanasia in certain jurisdictions, especially getting diagnosed at that age.

I live in a country where there is complete chaos with psychiatry and you can be locked up in a psychiatric hospital on the complaint of a neighbor or relatives.

Then that is not a free country you live in.

Pro life assholes are often vehemently opposed to the application of stem cells for treating many of these diseases, yet then they turn around and also oppose the absolute right for the sufferers of those diseases to be permanently put to sleep. I wonder how many of these pro lifers are pet owners who take their dying animals to veterinarians to be put down rather than making their pets suffer to death.

 

[mecfs_victim]

The actress Katherine Hepburn had it later in life, and it ended both the music career of Daryl "The Captain" Dragon and his marriage to Toni Tennille (although they remained close until his death).

ET is probably a condition which qualifies you for assisted suicide and euthanasia in certain jurisdictions, especially getting diagnosed at that age.


Then that is not a free country you live in.

Pro life assholes are often vehemently opposed to the application of stem cells for treating many of these diseases, yet then they turn around and also oppose the absolute right for the sufferers of those diseases to be permanently put to sleep. I wonder how many of these pro lifers are pet owners who take their dying animals to veterinarians to be put down rather than making their pets suffer to death.

This is how my parents and society behave. They want to keep me alive at any cost. They call me a weakling. Not realizing that this disease is worse than death.

The analogy with pets is great, they are euthanized when they are suffering - and a human must be in eternal torture

 

[Darkhaven]

The actress Katherine Hepburn had it later in life, and it ended both the music career of Daryl "The Captain" Dragon and his marriage to Toni Tennille (although they remained close until his death).

ET is probably a condition which qualifies you for assisted suicide and euthanasia in certain jurisdictions, especially getting diagnosed at that age.

I'm aware of that.
And it so happens that my country is on it's way to decriminalize euthanasia in this very month.

 

[Meditation guide]

My mother took propranolol for her essential tremor, one pill every morning and it basically was like she didn't have it. When it was bad she knocked over her water glass every time.

I have internal tremor. It's horrible but at least my hands don't shake.

 

[KuriGohan&Kamehameha]

I have chronic fatigue/me as well. I know how bad you are suffering. No one deserves to be in pain like this

 

[Frenchguy]

This disease is the contrary of life

 

[rabbithole]

I'm also suffering from an incurable awful disease caused by a single lumbar puncture that was botched. I'm so sorry for your suffering. I know the lead singer of Belle and Sebastian has ME and has spoken about it in interviews.

 

[yetme]

for those with CFS I recommend checking out phoenix rising forums. people are mostly self treating themselves:

DISCUSSION: Treatment

forums.phoenixrising.me

 

[mecfs_victim]

for those with CFS I recommend checking out phoenix rising forums. people are mostly self treating themselves:

DISCUSSION: Treatment

forums.phoenixrising.me

It doesn't work. The cause of ME/CFS is not known to world science. There is no cure. I've tried a lot of things.

 

[yetme]

It doesn't work. The cause of ME/CFS is not known to world science. There is no cure. I've tried a lot of things.

sorry to hear that. well.. you know your options then.

 

[Neowise]

Sorry to hear that. I've been struggling with permanently being tired regardless of sleep and temporary weak muscles along other annoying symptoms, too since May. It has gotten a bit better now but I am still not entirely back to normal. I can definetely understand how you feel. I really hope you'll feel better soon, one way or the other.

Dunno what ME is, but CFS is treatable. At least Ive managed to treat mine

I'm curious, how have you managed to treat yours?

 

[Nymph]

Fuck that's horrible, I'm so sorry.

 

[yetme]

Sorry to hear that. I've been struggling with permanently being tired regardless of sleep and temporary weak muscles along other annoying symptoms, too since May. It has gotten a bit better now but I am still not entirely back to normal. I can definetely understand how you feel. I really hope you'll feel better soon, one way or the other.


I'm curious, how have you managed to treat yours?

Well as it's been said above there are no treatment protocols on this issue, so I've been refused any medical help.
So I had to do a lot of research. I realised that I had some kind of neurodegenerative disease that was slowly destroying my brain. At some point I couldn't even talk right. That's a terrifying feeling when you trying to say something but it all come out as gibberish.
So I started digging into drugs that can repair neurological damage. I know that official medical point of view is that neurons can't be rapaired, but that's not true. There's a class of drugs that can improve brain metabolism and in some cases can repair neurons. It's called nootropics. So I started trying out different nootropics (sometimes ordering online from other countried, faking scripts). Then slowly I started seeing improvements. I started getting more energy. My speach improved. So I knew I was on the right way. In a year I was able to get my speach back and my CFS was almost gone. In 2 years I have reversed my condition.
I went through a lot of nootropics. The ones that worked for me were: Nootropil, Cavington, Glycine (amino acid), ASD2 .

I've met a doctor once. He said there are no stupid people. There are people with brain metabolism disorders and you just need to find out how to treat it.

 

[ceelestial]

Well as it's been said above there are no treatment protocols on this issue, so I've been refused any medical help.
So I had to do a lot of research. I realised that I had some kind of neurodegenerative disease that was slowly destroying my brain. At some point I couldn't even talk right. That's a terrifying feeling when you trying to say something but it all come out as gibberish.
So I started digging into drugs that can repair neurological damage. I know that official medical point of view is that neurons can't be rapaired, but that's not true. There's a class of drugs that can improve brain metabolism and in some cases can repair neurons. It's called nootropics. So I started trying out different nootropics (sometimes ordering online from other countried, faking scripts). Then slowly I started seeing improvements. I started getting more energy. My speach improved. So I knew I was on the right way. In a year I was able to get my speach back and my CFS was almost gone. In 2 years I have reversed my condition.
I went through a lot of nootropics. The ones that worked for me were: Nootropil, Cavington, Glycine (amino acid), ASD2 .

I've met a doctor once. He said there are no stupid people. There are people with brain metabolism disorders and you just need to find out how to treat it.

This is very interesting but the problem always is with CFS how do you know you weren't just going to recover anyway? and that the nootropics were real and not placebo (which is still real but you know)?

 

[pthnrdnojvsc]

Hi everyone. I have a terrible disease - ME/CFS. I hardly get up, I lie all day in a dark room, I can't do anything. There is no treatment, my relatives are constantly trying to put me in a psychiatric hospital. It hurts a lot and it only gets worse. Ordered SN. They promise to bring it next week.

It's horrible what happened to you.

Well as it's been said above there are no treatment protocols on this issue, so I've been refused any medical help.
So I had to do a lot of research. I realised that I had some kind of neurodegenerative disease that was slowly destroying my brain. At some point I couldn't even talk right. That's a terrifying feeling when you trying to say something but it all come out as gibberish.
So I started digging into drugs that can repair neurological damage. I know that official medical point of view is that neurons can't be rapaired, but that's not true. There's a class of drugs that can improve brain metabolism and in some cases can repair neurons. It's called nootropics. So I started trying out different nootropics (sometimes ordering online from other countried, faking scripts). Then slowly I started seeing improvements. I started getting more energy. My speach improved. So I knew I was on the right way. In a year I was able to get my speach back and my CFS was almost gone. In 2 years I have reversed my condition.
I went through a lot of nootropics. The ones that worked for me were: Nootropil, Cavington, Glycine (amino acid), ASD2 .

I've met a doctor once. He said there are no stupid people. There are people with brain metabolism disorders and you just need to find out how to treat it.

@yetme thanks for those nootropics. Using the information you provided ,I found most of these nootropics online and they are all legal here . Well except i couldn't tell what ASD2 was or couldn't find what that one was.Are there other names for this compound ASD2?

 

[yetme]

It's horrible what happened to you.


@yetme thanks for those nootropics. Using the information you provided ,I found most of these nootropics online and they are all legal here . Well except i couldn't tell what ASD2 was or couldn't find what that one was.Are there other names for this compound ASD2?

ASD2 still can be found on eBay. It was hunted down by big pharma after it's shown anti-cancer properties.

 

[pthnrdnojvsc]

ASD2 still can be found on eBay. It was hunted down by big pharma after it's shown anti-cancer properties.

could you say what other names this coumpound has or substances it's made of ?don't know why but i had trouble finding any info using search engines. all the others i found what they are , legal supplements through search engines. but ASD2 i found conflicting info referring to unrelated subjects so i couldn't read what it was.

 

[yetme]

could you say what other names this coumpound has or substances it's made of ?don't know why but i had trouble finding any info using search engines. all the others i found what they are , legal supplements through search engines. but ASD2 i found conflicting info referring to unrelated subjects so i couldn't read what it was.

PMed