inpainnosleep
New Member
- Apr 11, 2026
- 4
I actually want to live. Despite having BPD, CPTSD, severe anxiety and depression, OCD, ASD, chronic migraines and so much truama, I really wanted to live. I overcame so many nervous breakdowns and obstacles and was finally living in a place of my own and had a platonic partner. Unfortunately I messed around with substances a lot in the last ten years. (I am 41F) I think that caused issues with nerve hyperexcitability. But worst of all, I have myocolonus, which does not let me sleep, like at all. For me there is nothing more important than sleep. For most people myocolonus is benign and rarely happens if at all. But for me, Every time I start to drift into sleep, one of my limbs moves violently or I get a muscle spasm and electric shock. I get next to no sleep and this makes me feel like death is the only option. It also makes my other conditions so much worse. But if I didn't have this issue, I would have wanted to live, even though my health has greatly declined in other ways in the past 7 months. What also makes me sad is that a large dose of Clonazepam (which also works as an anti-seizure med) would make this condition manageable, but no doctor this day and age is going to prescribe a large amount of Clonazepam. I already take 2mg for anxiety, and nobody is going to prescribe more. I am also extremely medication sensitive at this point, so no way would I be able to tolerate an epelepsy medication which most normal people have a hard time tolerating. Also, doctors don't see my condition as serious because I'm not going to die from it, lol. I spent the last 4 months in bed with severe brain fog and had to move back in with my parents who are now elderly but still abusive. I've left my house a total of three times in the last 4 months, just to go to useless doctors appointments which just made me feel so much more despondent. But I feel like my body is not compatible with life any longer. I know that people live on next to no sleep, but I just can't do it. All I think about is dying, but I fought so hard to survive and was afraid of death before this. Now I spent most of my time doing research on how to cbt.I wish I could have written this more eloquently, but my brain is so tired and tormented right now. I just want the ability to sleep (which I love) and I do not have that ability. I also keep thinking about the mistakes that led me to this point.
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