I need some support and guidance.

[AlexM]

I got my fingers and my toes crossed for you. Friday is hella far. You went a hard road and had almost win, just a few small steps more.

 

[k75]

Thank you so much!

 

[Shero]

Hey, do you know if your gastroparesis is comorbid? I have it because of Ehler-Danlos Syndrome.

 

[k75]

Hey, do you know if your gastroparesis is comorbid? I have it because of Ehler-Danlos Syndrome.

I don't know, but luckily I don't fit the symptoms of that. I just looked it up. I'm not sure what the cause is, but the first time I suffered from it, vagus nerve damage was suspected. I had complications after having my gallbladder removed, plus pancreatitis.

There's been no trauma this time, so I'm clueless and my doctors haven't started looking.

All I know is I went to sleep on New Years relatively ok. Then I woke up a couple of hours later with a splitting headache that still hasn't gone away. Then my Zofran started failing and I was vomiting daily. And finally my lower back started killing me. I thought it was a pancreatitis attack, but two doctors flagged it as gastroparesis and ordered a gastric emptying study. And now here I am.

 

[Deleted member 1465]

Not being listened to is tough. To them you are just another patient with an ephemeral condition they can't easily fix. But to you it's a big deal. It's your life after all. I'm used to this attitude after four years of it. It still makes me angry though. I only succeed in not getting out of my pram with them by the use of jedi mind tricks.
Not being listened to is tough. To them you are just another patient with an ephemeral condition they can't easily fix. But to you it's a big deal. It's your life after all. I'm used to this attitude after four years of it. It still makes me angry though. I only succeed in not getting out of my pram with them by the use of jedi mind tricks.

 

[Flippy]

I wonder if you've had a bad cough or sneeze that you probably didn't think much of at the time. I know I probably sound mad here but last year I had a quite nasty coughing fit. I felt a slight click in my back but didn't feel much of it. Well about 2 weeks later I sat down and heard a sickening crunch from my back and I have to say from that point on I was in absolute agony! I think I slightly dislocated something, maybe a rib and then sitting down pushed it back into place. But the pain! Christ I've never known anything like it. I couldn't breathe in hardly without being hit with wave after wave of it! I ended up in hospital they gave me morphine and x-rays but couldn't find anything wrong. I think it was because whatever had been the problem had corrected itself but cause a ton of pain in the process.

 

[k75]

I just had my GI appointment. They've ordered full labs to rule out pancreatitis and infection, and I have an abdominal CT scheduled in a few days.

Now I'm at my other doctor about my back. They want to make sure it's not my kidneys. I think we ruled out injury. I certainly don't remember anything that would have caused it. I went to bed well, woke up incapacitated two hours later.

 

[Flippy]

I just had my GI appointment. They've ordered full labs to rule out pancreatitis and infection, and I have an abdominal CT scheduled in a few days.

Now I'm at my other doctor about my back. They want to make sure it's not my kidneys. I think we ruled out injury. I certainly don't remember anything that would have caused it. I went to bed well, woke up incapacitated two hours later.

It's good that they are investigating your back now. Kidneys was one of the things they thought my issue was as it was in that location. They gave me some IV antibiotics just in case. In the end I just wanted to leave the hospital so I faked being better as best I could. They were only too happy to show me the door! :-) it took a few weeks but it got better after that. I suppose it's possible you might have sneezed in your sleep or had a bad nightmare that caused you to twist awkwardly. I woke up once feeling a bit disoriented and managed to turn my body the wrong way with my head on the pillow. That really hurt :-)

 

[UpandDownPrincess]

My God, it even hurts to read. I would advise the most powerful analgesics, or non-steroidal anti-inflammatory injections, so as not to injure you stomach. Gastric irritation well relieves with liquid jelly well, I do not know how to say it in English - it's like compote plus starch. There are many herbs that relieve inflammation of the stomach, we use galangal (Alpinia officinalis L.) here, perhaps it is in natural pharmacies. You should in any way you want, even through a dropper, even through the rectum to receive water in the form of saline, this can relieve a headache. A bunch of calories are in the different colas, but most likely it will irritate your stomach. I would probably, in that case, would not eat anything at all for several days, then I would eat toast, boiled egg and rice with the form of liquid soup. Sending hugs.

Unfortunately, steroids and lithium do not play well together.

I would double check with your psych to see if you could handle a small dose of ibuprophen. I take it one pill at a time when I really need it with my doc's permission. Since I don't take it often, I find that the small dose really does wonders.

 

[k75]

Things went better than anticipated! They gave me a low dose steroid, which I'm not so thrilled about. But also a muscle relaxer and Meto. I have also given away half my blood to the lab, and all I have to do now is wait for the CT scan.

I'm feeling much more hopeful. My doctors' nurses are much better that the doctors. How sad is that?

 

[AlexM]

I'm feeling much more hopeful.

Great!

 

[LittleJem]

Great you are getting treatment.

I don't think Cannabis is safe for everyone and don't know if it's safe for you - but did going this: https://journals.lww.com/ajg/Citation/2019/06000/Cannabis_for_Gastroparesis__Hype_or_Hope_.13.aspx

When my anxiety was stopping me eating, weed helped me eat. So thought I'd mention it

Sorry for all of your pain and discomfort

 

[k75]

Great you are getting treatment.

I don't think Cannabis is safe for everyone and don't know if it's safe for you - but did going this: https://journals.lww.com/ajg/Citation/2019/06000/Cannabis_for_Gastroparesis__Hype_or_Hope_.13.aspx

When my anxiety was stopping me eating, weed helped me eat. So thought I'd mention it

Sorry for all of your pain and discomfort

Thanks for the article! I'm about to read it. I live in a recreationally legal state, but I'm also about to see if I can get a medical card just for the hell of it. I can't smoke because I'm allergic to it if you can believe that, but I was thinking about trying some edibles and seeing if that helped anything.

 

[GinaIsReady]

Hope you feel better soon.

 

[Reallyreallyreally]

I'm very physically ill right now. It's made my suicidal urges kick into overdrive, and I really don't want that to be an option right now. I've been kind of trying to recover, and if I did anything right now it would be completely impulsive and not something I want. I just literally need the pain to go away.

I've had one constant headache since the 1st. Nothing makes it go away, and I've been to the ER three times.

I'm having problems with my stomach, and my doctors suspect I'm having a gastroparesis flare up. I can barely eat... I'm managing about 300 calories a day and little to drink. I throw up every day multiple times, and my whole stomach area is just so painful right now.

My back has also decided to join the party. It's my lower back and I can barely move. I don't think I hurt it; it just just started hurting one day. I thought it might be my bed because I've been sick and laying in it so much. But I can't even sit on my couch. And no one will prescribe me anything for the pain because it might interfere with my stomach.

I desperately need to keep going. Does anyone have any advice? I don't want to just randomly kill myself because I'm sick and hurting, but I'm afraid I might.

I don't know if it will do anything for your situation but my back used to hurt a lot of the time. I started sleeping in a parachute hammock and it fixed me. You can get one for pretty cheap online. If you give it a try you'll want to either buy or make an under quilt so you don't wake up with "ice butt." I wake up really achy any time I sleep on a mattress now.

It definitely won't help your stomach or head but maybe your back will feel a little bit better.

 

[GoodPersonEffed]

@k75 do you have an anterior pelvic tilt, that is, a sway back?

 

[k75]

@k75 do you have an anterior pelvic tilt, that is, a sway back?

I don't think so. I looked it up and found instructions on checking for sure, but I'm hurting too much to actually do it. They muscle relaxers they gave me are helping a little bit though.