Oh good old lupus. It is a horrid horrid disease. I have sjogrens. Mine has eaten through all my small fibre nerves and has severely damaged autonomic nerves. I'm permanently on fire or numb. It's horrific I know.
Do you take meds? I tried cellcept then ended up having to have my colon removed. I should have asked for it so I could strangle myself with it
Neuropathy is a fucking nightmare. I used to just have CRPS in one leg and then my pain doctor decided I should try a nerve block. It ended up spreading the CRPS into the other leg too. My whole lower body burns 24/7. I take plaquenil, lyrica, elmirion, cymbalta, hydroxyzine, and nucynta. I haven't done cellcept yet, but my rheumatologist said it's a possibility.
I had always been a healthy kid and young adult. My parents are healthy, my brother is healthy. I was completely blindsided by all of this. I'm still grieving for my old life.
If you ever want to talk send me a pm, I know what you're going through