Discussion VAD Pegasos date changed to 16th Sept

[Rubypie41]

My original VAD Pegasos date was 13th September and I've changed this to the 16th. Not usually superstitious, but going on Friday the 13th just didn't feel right.

Still can't believe my life has come to this. I have bioplastique filler injected into my left eustachian tube in an order to treat Patulous Eustachian Tube Dysfunction, but that only made matters worse. I have ear tubes in both ears as my right eustachian tube became utterly dysfunctional last September. I have Botox injected into my soft palate in an effort to try and stop all the relentless ear clicking, but it's done nothing. I'm on antidepressants and Gabapebtin for nerve pain, again which is doing nothing so far. I cannot speak without sharp pains in the left eustachian tube, I get so much clicking, popping and still Patulous spells where I hear my own voice and or breathing loudly.

Wish I'd never bothered with any surgeries 3 years ago, as that just made thing's worse and put me through hell.

If only I could go back in time. Life is a bitch

 

[Tesha]

You didn't know what the surgical interventions would do - and I presume undertook them with your best interests at heart, so please don't beat yourself up.

I wish you the best with your VAD. The 16th sounds like a much better date…

 

[FuneralCry]

It really is so cruel how people suffer so much in this existence, it truly sounds like you've suffered a lot. But anyway I wish you all the best.

 

[My_name_is_Luka]

I'm sorry that the health system has caused all this to you..

how was the process of getting accepted at Pegasos? Did they require a medical report from your doctor or did they provide a doctor to verify your claims?
Was it required that your relatives accepted your decision, or only that they were aware of it?

 

[Rubypie41]

I'm sorry that the health system has caused all this to you..

how was the process of getting accepted at Pegasos? Did they require a medical report from your doctor or did they provide a doctor to verify your claims?
Was it required that your relatives accepted your decision, or only that they were aware of it?

Thanks.

I had to submit my medical records to Pegasos to prove my diagnosis.

They haven't said if my relatives are required to accept my decision, although they are aware and I stated that on my application also.

 

[My_name_is_Luka]

Thank you for the answer! It seems a fairly straightforward process.

How are you feeling right now? I imagine that my head would feel empty, waiting for the event.
did they request that someone accompany you as witness?

 

[J&L383]

You didn't know what the surgical interventions would do - and I presume undertook them with your best interests at heart, so please don't beat yourself up.

I wish you the best with your VAD. The 16th sounds like a much better date…

Agree on the surgical interventions. Sometimes, hopefully mostly, these things help but many times they don't. You did the best you could. I wish you the best, and hope have a peaceful transition. I'm glad you have taken these matters into your own hands, and I probably would have switched the date as well.

 

[DuskUntilDawn]

You've been through a lot. I hope you get peace. My health was taken away by a lying ER doctor. I actually am thinking about applying for VAD with Pegasos. I've got the application filled out. I just have to pay the first deposit. Did that go smoothly for you?

 

[Rubypie41]

You've been through a lot. I hope you get peace. My health was taken away by a lying ER doctor. I actually am thinking about applying for VAD with Pegasos. I've got the application filled out. I just have to pay the first deposit. Did that go smoothly for you?

Sorry to hear about situation.

Yes all went relatively smoothly. Getting the green light did take around 10 weeks though and communication wasn't the greatest during this time. However, I believe they were extremely busy and since getting the green light communication has been excellent.

 

[Chronicallyunwell]

Some questions

1)How much did it cost altogether?
2)What is their mental health screening process like?

 

[Rubypie41]

Some questions

1)How much did it cost altogether?
2)What is their mental health screening process like?

Hi,

The total cost for me is 12,500 CHF.

5,000 CHF deposit
1,200 CHF for the psychiatric assessment
1,300 CHF to identify me via dental x-ray

You then need to factor in cost of flights and hotel.

I had to pay £100 for the dental x-ray and send it to Pegasos

I don't know about the mental health screening process as they are doing my psychiatric assessment whilst I'm over there.

Hope this helps somewhat.

 

[DuskUntilDawn]

Hi,

The total cost for me is 12,500 CHF.

5,000 CHF deposit
1,200 CHF for the psychiatric assessment
1,300 CHF to identify me via dental x-ray

You then need to factor in cost of flights and hotel.

I had to pay £100 for the dental x-ray and send it to Pegasos

I don't know about the mental health screening process as they are doing my psychiatric assessment whilst I'm over there.

Hope this helps somewhat.

Have they told what hotel you'll need to stay at yet? I feel like I read recently they've got a new building in a different town in Switzerland now too.

 

[suffering_mo]

Hi,

The total cost for me is 12,500 CHF.

5,000 CHF deposit
1,200 CHF for the psychiatric assessment
1,300 CHF to identify me via dental x-ray

You then need to factor in cost of flights and hotel.

I had to pay £100 for the dental x-ray and send it to Pegasos

I don't know about the mental health screening process as they are doing my psychiatric assessment whilst I'm over there.

Hope this helps somewhat.

I don't remember if you have depression/anxiety....or if you are depressed only because of your condition. Have you been on any psych meds?

How much in advance do you need to be there before your date?

 

[My_name_is_Luka]

Psychiatric assessment seems weird.. Anyone with a chronic condition that causes physical discomfort will suffer for depression and other psychological conditions..