Discussion VAD Pegasos date changed to 16th Sept

[Rubypie41]

My original VAD Pegasos date was 13th September and I've changed this to the 16th. Not usually superstitious, but going on Friday the 13th just didn't feel right.

Still can't believe my life has come to this. I have bioplastique filler injected into my left eustachian tube in an order to treat Patulous Eustachian Tube Dysfunction, but that only made matters worse. I have ear tubes in both ears as my right eustachian tube became utterly dysfunctional last September. I have Botox injected into my soft palate in an effort to try and stop all the relentless ear clicking, but it's done nothing. I'm on antidepressants and Gabapebtin for nerve pain, again which is doing nothing so far. I cannot speak without sharp pains in the left eustachian tube, I get so much clicking, popping and still Patulous spells where I hear my own voice and or breathing loudly.

Wish I'd never bothered with any surgeries 3 years ago, as that just made thing's worse and put me through hell.

If only I could go back in time. Life is a bitch

 

[Tesha]

You didn't know what the surgical interventions would do - and I presume undertook them with your best interests at heart, so please don't beat yourself up.

I wish you the best with your VAD. The 16th sounds like a much better date…

 

[FuneralCry]

It really is so cruel how people suffer so much in this existence, it truly sounds like you've suffered a lot. But anyway I wish you all the best.

 

[My_name_is_Luka]

I'm sorry that the health system has caused all this to you..

how was the process of getting accepted at Pegasos? Did they require a medical report from your doctor or did they provide a doctor to verify your claims?
Was it required that your relatives accepted your decision, or only that they were aware of it?

 

[Rubypie41]

I'm sorry that the health system has caused all this to you..

how was the process of getting accepted at Pegasos? Did they require a medical report from your doctor or did they provide a doctor to verify your claims?
Was it required that your relatives accepted your decision, or only that they were aware of it?

Thanks.

I had to submit my medical records to Pegasos to prove my diagnosis.

They haven't said if my relatives are required to accept my decision, although they are aware and I stated that on my application also.

 

[My_name_is_Luka]

Thank you for the answer! It seems a fairly straightforward process.

How are you feeling right now? I imagine that my head would feel empty, waiting for the event.
did they request that someone accompany you as witness?

 

[J&L383]

You didn't know what the surgical interventions would do - and I presume undertook them with your best interests at heart, so please don't beat yourself up.

I wish you the best with your VAD. The 16th sounds like a much better date…

Agree on the surgical interventions. Sometimes, hopefully mostly, these things help but many times they don't. You did the best you could. I wish you the best, and hope have a peaceful transition. I'm glad you have taken these matters into your own hands, and I probably would have switched the date as well.