Blackjack

Blackjack

I’ll be watching...
Aug 6, 2019
777
My death is inevitable, short-term via N or longer-term via ALS, so there's no escaping it for me. At least N gives me the opportunity to leave on my own terms.

However, since obtaining my N last week, and working to tie up some important family issues prior to my exit, I am consumed with overwhelming sadness for my 2 boys, whose lives are going to be forever changed by my death.

We don't have much in the way of family support so my boys & husband are gonna be pretty much on their own. And there are so many day to day things I do, even in my disabled state, for my youngest especially that won't get done for him when I'm gone. I'm just so so sad for what his life is going to be like without my involvement/guidance. His Dad is a good Dad, but just can't do what I do for my son on a daily basis.

It's just all so. fucking. sad.
 
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wendydong1

Experienced
Jul 31, 2019
295
Hi, at least they know you have ALS and hopefully have mentally prepared for your exit...

I am healthy as fuck, and my parents and my dog have no idea
 
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P

pole

Global Mod
Sep 18, 2018
1,385
My death is inevitable, short-term via N or longer-term via ALS, so there's no escaping it for me. At least N gives me the opportunity to leave on my own terms.

However, since obtaining my N last week, and working to tie up some important family issues prior to my exit, I am consumed with overwhelming sadness for my 2 boys, whose lives are going to be forever changed by my death.

We don't have much in the way of family support so my boys & husband are gonna be pretty much on their own. And there are so many day to day things I do, even in my disabled state, for my youngest especially that won't get done for him when I'm gone. I'm just so so sad for what his life is going to be like without my involvement/guidance. His Dad is a good Dad, but just can't do what I do for my son on a daily basis.

It's just all so. fucking. sad.
sorry, thats terrible. you seem like a loving guardian who cares so much about her children, but just have gotten the worst of luck and been placed in a terrible situation where you can't function like you truly want to. they'll have one thing that cant be taken away from them and it's memories.

im so sorry again that you've been placed in such circumstances. hope you find peace :/
 
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Lara Francis

Lara Francis

Enlightened
Jun 30, 2018
1,627
My death is inevitable, short-term via N or longer-term via ALS, so there's no escaping it for me. At least N gives me the opportunity to leave on my own terms.

However, since obtaining my N last week, and working to tie up some important family issues prior to my exit, I am consumed with overwhelming sadness for my 2 boys, whose lives are going to be forever changed by my death.

We don't have much in the way of family support so my boys & husband are gonna be pretty much on their own. And there are so many day to day things I do, even in my disabled state, for my youngest especially that won't get done for him when I'm gone. I'm just so so sad for what his life is going to be like without my involvement/guidance. His Dad is a good Dad, but just can't do what I do for my son on a daily basis.

It's just all so. fucking. sad.
May I ask what age your boys are?
 
B

Berlin76

Wizard
Aug 18, 2019
671
Its a hard decision to make and also to take that last step especially in your case with children.

But the more ALS takes over the more they will have to take of you to. That is the tipping point of your illness what i see here.

But when i look at my situation my family understand my stand and views and also that this life is not worthy anymore.

So for your husband i think he will be shocked but will understand it would be this way or just decay away by your ALS.
That is just as traumatizing and heartbreaking to see as a child or husband.
So at the end they will understand you have a dignified death.

Maybe a good thing when you decide to go to leave a letter and tell them you did not suffer because of N.
How it works and what it is used for so they know you passed away by sleeping and so on.

Best wishes
 
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F

Frank

Member
Aug 22, 2019
87
It always makes me sad to read these types of posts. The world is so unfair that people who don't want to leave have to and those who do are made to stay. Regardless of my own sentiment your family will pull through and leaving with dignity is a whole lot nicer than their last memmories of you being the ones you get at the end of the road of ALS
 
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bluesky1972-2019

bluesky1972-2019

Specialist
May 21, 2019
377
I know what you mean.
It's my only real issue about leaving this world, I wonder how my kids will be. And my parents too, who have lots to deal with already.
Am I being selfish by wanting to leave this place?
 
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Blackjack

Blackjack

I’ll be watching...
Aug 6, 2019
777
May I ask what age your boys are?

26 & 17
Its a hard decision to make and also to take that last step especially in your case with children.

But the more ALS takes over the more they will have to take of you to. That is the tipping point of your illness what i see here.

But when i look at my situation my family understand my stand and views and also that this life is not worthy anymore.

So for your husband i think he will be shocked but will understand it would be this way or just decay away by your ALS.
That is just as traumatizing and heartbreaking to see as a child or husband.
So at the end they will understand you have a dignified death.

Maybe a good thing when you decide to go to leave a letter and tell them you did not suffer because of N.
How it works and what it is used for so they know you passed away by sleeping and so on.

Best wishes

Yes I've already written their notes. But they have not supported my desire to exit early, so they will be shocked/upset if my body is autopsied and my true cause of death is revealed. I've requested no autopsy but I don't know how it's all going to play out.
 
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Soul

Soul

gate gate paragate parasamgate bodhi svaha
Apr 12, 2019
4,704

It's good that they're at ages where they can understand in a complex way. Still, it's a brutally sad thing for you all. x
 
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Berlin76

Wizard
Aug 18, 2019
671
26 & 17


Yes I've already written their notes. But they have not supported my desire to exit early, so they will be shocked/upset if my body is autopsied and my true cause of death is revealed. I've requested no autopsy but I don't know how it's all going to play out.

Yeah that is understandable i was in the same position like you are, months ago when i signed up for euthanasia.
Everyone was shocked and did not want it but now since 5 months all are ready and know it is better for me.

So talking is the only way it is hard i know
 
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Blackjack

Blackjack

I’ll be watching...
Aug 6, 2019
777
Yeah that is understandable i was in the same position like you are, months ago when i signed up for euthanasia.
Everyone was shocked and did not want it but now since 5 months all are ready and know it is better for me.

So talking is the only way it is hard i know

How/where did you sign up for euthanasia?
 
B

Berlin76

Wizard
Aug 18, 2019
671
How/where did you sign up for euthanasia?

I am in the Netherlands we have the End of life clinic but from today the name is changed in to euthanasia expertise center.
 
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Blackjack

Blackjack

I’ll be watching...
Aug 6, 2019
777
I know what you mean.
It's my only real issue about leaving this world, I wonder how my kids will be. And my parents too, who have lots to deal with already.
Am I being selfish by wanting to leave this place?

Only you can answer that question.
I am in the Netherlands we have the End of life clinic but from today the name is changed in to euthanasia expertise center.

What a gift. What illness/disease do you have if I may ask?
Hi, at least they know you have ALS and hopefully have mentally prepared for your exit...

I am healthy as fuck, and my parents and my dog have no idea

Yes they know, but they are not "prepared".
 
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B

Berlin76

Wizard
Aug 18, 2019
671
Only you can answer that question.


What a gift. What illness/disease do you have if I may ask?

Well it is a plus but but not that great for many. Even if you are sick they can deny your application if they dont see enough suffering or that have a chance on recovery or a what so ever.

For me it is mental health i dont have any perspective on therapy so thay is one box tick off. And just done with therapy have spend the last 7 years on therapy been misdiagnosed on so many things for autism and low iq etc and later this got rejected by the reall specialist.
Several traumas etc so ptsd and chronic depression
 
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wendydong1

Experienced
Jul 31, 2019
295
Well it is a plus but but not that great for many. Even if you are sick they can deny your application if they dont see enough suffering or that have a chance on recovery or a what so ever.

For me it is mental health i dont have any perspective on therapy so thay is one box tick off. And just done with therapy have spend the last 7 years on therapy been misdiagnosed on so many things for autism and low iq etc and later this got rejected by the reall specialist.
Several traumas etc so ptsd and chronic depression
Are you telling mE that in Netherlands, mental illness is a valid reason for euthanasia?
 
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Berlin76

Wizard
Aug 18, 2019
671
Are you telling mE that in Netherlands, mental illness is a valid reason for euthanasia?

Yes for many years already.
But it is the hardest part to get euthanasia.
Today there was a news article that 2 cases where not treated with care and that commission and justice department will have a look how this went. If they find that the euthanasia expert did not comply fully on the terms they can lose their license. So that will cause for next cases to tske even longer and can be rejected more easy all doctors are scared of this and this is also the reason their are hardly any experts on the field of mental issues. I am waiting for a year now still habe not seen a team and still number 5 on the list
 
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Blackjack

Blackjack

I’ll be watching...
Aug 6, 2019
777
Well it is a plus but but not that great for many. Even if you are sick they can deny your application if they dont see enough suffering or that have a chance on recovery or a what so ever.

For me it is mental health i dont have any perspective on therapy so thay is one box tick off. And just done with therapy have spend the last 7 years on therapy been misdiagnosed on so many things for autism and low iq etc and later this got rejected by the reall specialist.
Several traumas etc so ptsd and chronic depression

But they do approve euthanasia for mental illness in the Netherlands on a case by case basis, as in your case?
 
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Stan

Stan

Factoid Hunter
Aug 29, 2019
2,589
I think its an absolutely admirable thought that you have @Blackjack . I do not have a physical condition but have the same concerns regarding their feelings of the children left behind which are similar of ages. Death is a selfish event and i don't mean for you. When someone we care for dies its how that individual copes when someone passes. Each individual will deal with it both within their own head and as a shared consciousness with peers, in this example, the two brothers that are your sons and your husband who is their father. Sometimes the smaller the family, the better the connection and support for each other. Sometimes you can be surprised at how people, whether it be a close family situation or a work thing, that when a key person goes, they adapt and change and make it work. Your 17 year old is possibly (but I don't know) a bit more mature than you think. As parents we still have fond memories of them being babies and forget (or ignore) that they are moving on and growing up, but still have that overprotecting behaviour towards them. I know my sadness comes from never to be able to walk my daughter down the aisle at her wedding, go to my boys bachelor parties and embarrass them, see grandchildren and all of that good wholesome Disney stuff. But that's my sadness, not theirs. They may share the same dreams and desires for you to be around to see that and for them, those events may always be tinged with that sadness.

My ex-wife was ill for a while shortly after the birth of my 3rd child and had to be hospitalised, on paper I was a bit of a typical male, not doing that much in the home, she had her female relatives and friends come round to check on me at least twice a day. It took me a short while to acclimatise, but I did. The friends stopped coming round purely for the quality control check and more just came to see the kids and give me a 10 minute break, the kids ages ranged from being a baby to a 6 year old so it was many years ago. In short I am trying to say that as humans we can be adaptable, they will find their path just as they have done with coping with your condition. There will probably be a time, whether it be in the near future or many moons ahead that they see the reason for what you did and appreciate that life with suffering is not really life. That you took control from the uncontrollable and you left on your own terms with your dignity and strength, even though you wish you never had to.

You sound like a fantastic mother and you have said that they have a great father. The way you have raised them if my guess is right would have given them individual strength, you have provided them a close bond so you have given them family strength and the memory of a mother who did what she believed was right in the face of adversity with all the facts to back it up. I would personally be proud to have a mother like you.

As a personal note, my mother died with dementia. Didn't know who I was and when I visited, she thought I worked in the care home rather than the son that I was. I would personally prefer to have remembered her before that vile disease took her from me way before her body left, she was quite the firecracker. For me she died three years before her actual death and that was quite hard. I know its a completely different medical condition but just from a son's point of view I thought I would share.
 
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Blackjack

Blackjack

I’ll be watching...
Aug 6, 2019
777
I think its an absolutely admirable thought that you have @Blackjack . I do not have a physical condition but have the same concerns regarding their feelings of the children left behind which are similar of ages. Death is a selfish event and i don't mean for you. When someone we care for dies its how that individual copes when someone passes. Each individual will deal with it both within their own head and as a shared consciousness with peers, in this example, the two brothers that are your sons and your husband who is their father. Sometimes the smaller the family, the better the connection and support for each other. Sometimes you can be surprised at how people, whether it be a close family situation or a work thing, that when a key person goes, they adapt and change and make it work. Your 17 year old is possibly (but I don't know) a bit more mature than you think. As parents we still have fond memories of them being babies and forget (or ignore) that they are moving on and growing up, but still have that overprotecting behaviour towards them. I know my sadness comes from never to be able to walk my daughter down the aisle at her wedding, go to my boys bachelor parties and embarrass them, see grandchildren and all of that good wholesome Disney stuff. But that's my sadness, not theirs. They may share the same dreams and desires for you to be around to see that and for them, those events may always be tinged with that sadness.

My ex-wife was ill for a while shortly after the birth of my 3rd child and had to be hospitalised, on paper I was a bit of a typical male, not doing that much in the home, she had her female relatives and friends come round to check on me at least twice a day. It took me a short while to acclimatise, but I did. The friends stopped coming round purely for the quality control check and more just came to see the kids and give me a 10 minute break, the kids ages ranged from being a baby to a 6 year old so it was many years ago. In short I am trying to say that as humans we can be adaptable, they will find their path just as they have done with coping with your condition. There will probably be a time, whether it be in the near future or many moons ahead that they see the reason for what you did and appreciate that life with suffering is not really life. That you took control from the uncontrollable and you left on your own terms with your dignity and strength, even though you wish you never had to.

You sound like a fantastic mother and you have said that they have a great father. The way you have raised them if my guess is right would have given them individual strength, you have provided them a close bond so you have given them family strength and the memory of a mother who did what she believed was right in the face of adversity with all the facts to back it up. I would personally be proud to have a mother like you.

As a personal note, my mother died with dementia. Didn't know who I was and when I visited, she thought I worked in the care home rather than the son that I was. I would personally prefer to have remembered her before that vile disease took her from me way before her body left, she was quite the firecracker. For me she died three years before her actual death and that was quite hard. I know its a completely different medical condition but just from a son's point of view I thought I would share.

Thanks for your thoughtful response, and kind words.
 
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Berlin76

Wizard
Aug 18, 2019
671
But they do approve euthanasia for mental illness in the Netherlands on a case by case basis, as in your case?

They have to keep to rules.
But a example, there was this girl around 27 years old she had trauma because of rape develop ptsd borderline and depression because of her trauma. She applied no more perspective on any therapy done, she got rejected by the end of life clinic. She killed herself by jumping in front of a train few months after her rejection.

So i am worried about mine case i got 2 traumatic events and a lot of misfortune etc. Depression ptsd and some other things. But will they aprove it? They already told me they won't offer any therapy so that one is gone. But the overall case and the scen doctor needs to be also on the same page hee is a backup to check if everything went correctly or if i do suffer enough
 
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wendydong1

Experienced
Jul 31, 2019
295
They have to keep to rules.
But a example, there was this girl around 27 years old she had trauma because of rape develop ptsd borderline and depression because of her trauma. She applied no more perspective on any therapy done, she got rejected by the end of life clinic. She killed herself by jumping in front of a train few months after her rejection.

So i am worried about mine case i got 2 traumatic events and a lot of misfortune etc. Depression ptsd and some other things. But will they aprove it? They already told me they won't offer any therapy so that one is gone. But the overall case and the scen doctor needs to be also on the same page hee is a backup to check if everything went correctly or if i do suffer enough
Can you buy N from A as a backup plan?
 
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wendydong1

Experienced
Jul 31, 2019
295
Had it, failed 2 weeks ago because of domperidon. Still gaging so i spit it out and abort the attempt. Going for the powder N now
Omg, it's my.first time hearing failed attempts from N.. do you mind if I pm you for some questions?
 
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Stan

Stan

Factoid Hunter
Aug 29, 2019
2,589
Thanks for your thoughtful response, and kind words.
Feel free to pm me if you want to talk. Its only natural they they won't won't support you. Its an emotional statement that comes from love. If they used the logical side of the brain, there could be a different answer. However emotion will trump logic for most people once a day and twice on sundays
 
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Blackjack

Blackjack

I’ll be watching...
Aug 6, 2019
777
Had it, failed 2 weeks ago because of domperidon. Still gaging so i spit it out and abort the attempt. Going for the powder N now

To clarify, you "failed" with N because you gagged/spit it out, not because you swallowed it all and it didn't work, correct?
 
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vonvonwantpeace

vonvonwantpeace

Specialist
Jul 26, 2019
331
I am in the Netherlands we have the End of life clinic but from today the name is changed in to euthanasia expertise center.

I wish I live in your country.
 
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Ky204

Ky204

Member
Sep 3, 2019
97
Imagine your family watching you deteriorate though, to me that would be more devastating. It's a hard thing to get our minds around, especially young kids who sometimes can't even comprehend it.
My mother committed suicide last month and being old enough gave me a better understanding to what she was going through. I can say that even though it was heartbreaking I know that deep down she had found her peace and that she would not be suffering any longer.
Maybe your kids won't understand that now, but they will eventually.
 
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J

Jean Améry

Enlightened
Mar 17, 2019
1,098
This is downright tragic. I know this is meaningless and trite but I'm sorry this had to happen to you and your family. Nobody including your children should blame you for wanting to avoid a long, drawn-out, torturous death via a disease from hell like ALS. I'm sure you're wise enough to pick the right time.

Impossible situations like this are a big part of why I'm a philosophical pessimist: very bad things happen to good people and the degree of pure nastiness that can be reached in life is almost limitless. Hell manifests on earth through hopeless situations like yours.

Perhaps it can be useful to keep in mind you're making the wisest decision under the circumstances and you'd be no good to your children as a vegetable. One you're gone you'll be forever free of pain and discomfort including the, very understandable, concerns you have right now.

Your husband and kids will manage. Do try to write as much as possible if you can to let them know you were thinking about them the whole time and how much you love them. Which is evident from your post, even to a total stranger.
 
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