GinaIsReady

GinaIsReady

Exit Strategist
Mar 29, 2019
995
This is why it's important to ask questions yourself. That's our responsibility as patients.

I'm on a ton of meds. I don't have any bad side effects, because I either avoid it or don't stay on ones that cause them. So I know it's possible to not get damaged.

When I discuss taking a new medication, I make a point to ask my doctors about side effects first.

Then I double check about specific ones that I'm worried about, especially if they weren't listed. Usually weight changes and sexual issues.

Then I always read the paperwork that the pharmacy gives when I pick it up. Sometimes there's things the doctor missed.

I've decided to not take so many things that way. And they can't force you to take something. You just tell them why you don't want it and look for something else.

I've even found meds online I wanted to try and told my doctors that. Usually they're willing if there are no interactions with other things you take.

So take some responsibility in your own care, and things can be a lot less conspiracy-like. And possibly more helpful.
I know nothing about OP, and with respect, some people truly do not have the capacity to do this, to take care of themselves properly.
There is no conspiracy in this. It's related to the receptors that are targeted by the medication. The brain is complicated, and frankly stupidly designed by evolution. Anything that targets the 5-HTP receptors ( that deal with serotonin, and usually influences anxiety ) are likely to create sexual issues, because those same receptors are involved in arousal. That is simply how the brain is built .
I used to take escitalopram and pregabalin for anxiety. Escitalopram killed my libido ( although it reverted back once I stopped, after a few weeks), and achieving an orgasm was nearly impossible. Pregabalin on the other hand made me MORE horny.
Thanks for the tip on the Pregabalin! :smiling:
 
k75

k75

L'appel du Vide
Jun 27, 2019
2,546
I know nothing about OP, and with respect, some people truly do not have the capacity to do this, to take care of themselves properly.
It was a general PSA and what I feel is an important reminder. So many people ARE capable of asking questions but don't.

You can also bring another person to appointments with you who can do those things for you, in case you can't.

It's just important to be an educated patient and this thread shows why.
 
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CURSED again

CURSED again

please help
Aug 15, 2019
90
So take some responsibility in your own care, and things can be a lot less conspiracy-like. And possibly more helpful.
I did etc. Please don't assume that people are not trying to do what is best.
The European version of the FDA this year have formally recognized how serious the problem is and the article points out how doctors have misinformed patients, regarding duration, symptoms, severity etc. etc. Apparently alot of these problems have been going on for over 20 years.

https://www.psychologytoday.com/us/...ual-dysfunction-recognized-medical-condition#

"The general message from doctors," Healy told the Daily Mail following the EMA decision, "has been that this happened to a minority of people … and that these sexual problems were very short-term.
There is a great organization https://rxisk.org/ that has explored alot of the problems with the drugs and the drug companies and what doctors are doing and are working for increased warning via the doctor and the literature. The FDA of course has yet come to the conclusions that the European Medicines Agency has.
I know nothing about OP, and with respect, some people truly do not have the capacity to do this, to take care of themselves properly
alot of us try the best we can to take care of ourselves properly but not everyone is always as fortunate as some. I'm 64 and this is the first time i felt i was being picked on at this site. I didn't ridicule or patronize anyone only criticized Big Pharma and some doctors, etc. and i don't think that is particularly unusual in this day and age. PEACE
 
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mathieu

mathieu

Enlightened
Jun 5, 2019
1,090
Have you told your doctor about these side effects? Certain antipsychotics are more likely to have this side effect. Risperidone is pretty bad for it. It raises prolactin. There are APs that are prolactin sparing that are better. I had this problem on Invega but switched to Rexulti and I'm back to normal.
 
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k75

k75

L'appel du Vide
Jun 27, 2019
2,546
I did etc. Please don't assume that people are not trying to do what is best.
The European version of the FDA this year have formally recognized how serious the problem is and the article points out how doctors have misinformed patients, regarding duration, symptoms, severity etc. etc. Apparently alot of these problems have been going on for over 20 years.

https://www.psychologytoday.com/us/...ual-dysfunction-recognized-medical-condition#

"The general message from doctors," Healy told the Daily Mail following the EMA decision, "has been that this happened to a minority of people … and that these sexual problems were very short-term.
There is a great organization https://rxisk.org/ that has explored alot of the problems with the drugs and the drug companies and what doctors are doing and are working for increased warning via the doctor and the literature. The FDA of course has yet come to the conclusions that the European Medicines Agency has.

alot of people try the best they can please see post #33
Hi. I wasn't assuming anything or specifically addressing you. I explained that it was merely a general message I felt was important. A lot of people here are talking medical conspiracy when it might be more. I quoted you as an example of why it's important, that's all. I thought that was clear by my opening line. Didn't mean to offend. :)
 
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CURSED again

CURSED again

please help
Aug 15, 2019
90
Have you told your doctor about these side effects? Certain antipsychotics are more likely to have this side effect. Risperidone is pretty bad for it. It raises prolactin. There are APs that are prolactin sparing that are better. I had this problem on Invega but switched to Rexulti and I'm back to normal.

thank you - its all been talked about and explored etc - its been over a year and like many others in my situation i'm off the questionable drug/drugs but still have the symptoms - if you can read the psychology today article and like i mention the RxISK website there is alot of good info in both places - its a shame that it has all gotten so complicated with the drugs out there in todays market but the SSRI situation is especially bad for alot of people (too much inadequate information out there for a complex subject). I hope you have good luck with your meds.