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schopenh

schopenh

Specialist
Oct 21, 2019
385
The past few weeks have been a game changer for me. I've grown completely tired with my situation.

I am in a lot of pain due to two separate diseases.
The most recent of the two is very, very painful bladder/penis pain that worsens dramatically with ejaculation. But in the past 5 weeks it's been very severe 24/7 despite doing nothing to make it worse. I can only sleep for two hour patches at a time. Rarely I will get 3-4 hours.
I have not been able to ejaculate by choice for four months. Nocturnal emission makes symptoms dramatically worse and less amenable to time.
I also have had an ongoing neuropathic pain problem whose sources is in my lumbar spine but the bulk of the pain goes into my left leg mainly (but also my right). This has been for three years. The bladder issue since maybe May.

I've gone through roller-coasters of emotions coming to terms with CTB being the only meaningful solution for me for the nerve pain alone. But the bladder issues have really just destroyed any hope for me of having a life worth living.

In the past maybe 5 weeks I wake up every morning and think "you know, today could be the day." or "it's coming soon." Which is a big contrast to even 3-4 months ago.

I have even started a relationship in the past 6 weeks with a lovely girl who says she'd like to be by my side despite the ill health and it's made no difference to my disposition. I've just grown more tired than ever with severe chronic pain.

Like most people I don't want my family finding me dead, I don't want to traumatise a lovely girl with a suicide of a person she's only started dating, I don't want my two best friends and my sister left feeling empty for years, maybe even for life, because of this. But I have mostly (but not entirely) stopped caring about these things. Pain has chipped away at my soul until not much has been left.

I actually got an automatic car recently from my aunt. And while I can barely drive comfortably. I was thinking I could drive somewhere secluded to take my SN. But to be honest I'd rather die in my bed than in a car.

Anyway, those are my most recent thoughts. Thank you if you read them!
 
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Ἡγησίας

Ἡγησίας

The persuader
May 20, 2019
200
I'm sorry you're going through all that pain. I hope your situation improves someway.
 
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schopenh

schopenh

Specialist
Oct 21, 2019
385
I'm sorry you're going through all that pain. I hope your situation improves someway.
Thanks very much! I hope so too. Hope you are well as well.
 
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Ghost2211

Archangel
Jan 20, 2020
6,015
Have you been to the doctor for this? that sounds miserable.
 
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schopenh

schopenh

Specialist
Oct 21, 2019
385
Have you been to the doctor for this? that sounds miserable.
For the nerve pain I've been all around the world. The most recent test in Spain in January was a magnetic resonance neurography (MRN; MRI finely tuned to select for the nervous tissue). I'm so tired of tests and procedures. As for the bladder issue. Yep I've been going through the procedure of scan/consultation etc. Getting nowhere. I'm quite sure it's interstitial cystitis. Which even if I got a diagnosis for I'd be lie... great... doesn't solve anything (the treatments for it are trash)
 
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Ghost2211

Archangel
Jan 20, 2020
6,015
For the nerve pain I've been all around the world. The most recent test in Spain in January was a magnetic resonance neurography (MRN; MRI finely tuned to select for the nervous tissue). I'm so tired of tests and procedures. As for the bladder issue. Yep I've been going through the procedure of scan/consultation etc. Getting nowhere. I'm quite sure it's interstitial cystitis. Which even if I got a diagnosis for I'd be lie... great... doesn't solve anything (the treatments for it are trash)
That's sucks. I know what you mean. I have deep and superficial vascular insufficiency. It's like yay you have a name for the thing that can't be fixed and sucks forever. I'm sorry friend. It's amazing what nature puts our bodies through.
 
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