In my prior posts I stated that my life is generally Shit now because of an undiagnosable illness slowly taking everything from me as nobody knows how to treat it. Well. Weve upgraded to diagnosed illness slowly taking everything from me as nobody wants to treat it despite the fact that there is now an experimental cure for it.
Fucking. Cure.
And I'll never fucking see it. I'll Never see that fucking joy because no doctor wants to cure something they can keep making money off of. No doctor wants their patient to tell them what the diagnosis is, its ONLY acceptable to be the other way around. You show up to the ER and tell them your condition? Oh well why do you think you have that? That's a very rare condition are you sure? You know sometimes They can have false positives, you probably dont have that.
They say to me straight faced as I'm sitting in front of them in the emergency room over the symptoms that are caused by this conditions that I tested positive for. OH but it wasnt THEIR positive test that they preformed personally. No matter that I literally have the paperwork from the blood lab who preformed the test. Nope. WRONG. Patients cant know what's wrong with them, they're stupid, they dont know anything.
" I dont care if they gave me paperwork from other doctors it wasnt the ME doctor! Now go home and fuck off and stop asking for help. "
I haven't eaten in over 24 hours now and I'm honestly so fucking done. I now have unabashed proof that this doesn't need to be this way.
https://sharing.mayoclinic.org/2020...nt-with-rare-autoimmune-disorder-few-options/
As of last year it literally can be and has been cured. I currently have no treatment whatsoever for this shitfest of a disease, not even to try and mask the symptoms. Fucking. nothing.
They're just. Well we dont know why you're in pain come back if it happens again.
So I've been to the ER more than 8 times this year. Because surprise surprise when you refuse to treat the underlying condition it will indeed continue to happen.
And when I see shit like this, some very lucky rich kid getting his life back. It reminds me that there absolutely isnt "no hope" for cases like this. the only reason people are suffering is because. "Eh.. I mean, it doesnt affect me personally so why should I help" doctors are currently holding the medical system hostage. People like me who have health insurance and can afford to go to the doctors this much still die and spend decades suffering prior to doing so will continue simply because our deaths are just... not that big of a deal.
Fucking. Cure.
And I'll never fucking see it. I'll Never see that fucking joy because no doctor wants to cure something they can keep making money off of. No doctor wants their patient to tell them what the diagnosis is, its ONLY acceptable to be the other way around. You show up to the ER and tell them your condition? Oh well why do you think you have that? That's a very rare condition are you sure? You know sometimes They can have false positives, you probably dont have that.
They say to me straight faced as I'm sitting in front of them in the emergency room over the symptoms that are caused by this conditions that I tested positive for. OH but it wasnt THEIR positive test that they preformed personally. No matter that I literally have the paperwork from the blood lab who preformed the test. Nope. WRONG. Patients cant know what's wrong with them, they're stupid, they dont know anything.
" I dont care if they gave me paperwork from other doctors it wasnt the ME doctor! Now go home and fuck off and stop asking for help. "
I haven't eaten in over 24 hours now and I'm honestly so fucking done. I now have unabashed proof that this doesn't need to be this way.
https://sharing.mayoclinic.org/2020...nt-with-rare-autoimmune-disorder-few-options/
As of last year it literally can be and has been cured. I currently have no treatment whatsoever for this shitfest of a disease, not even to try and mask the symptoms. Fucking. nothing.
They're just. Well we dont know why you're in pain come back if it happens again.
So I've been to the ER more than 8 times this year. Because surprise surprise when you refuse to treat the underlying condition it will indeed continue to happen.
And when I see shit like this, some very lucky rich kid getting his life back. It reminds me that there absolutely isnt "no hope" for cases like this. the only reason people are suffering is because. "Eh.. I mean, it doesnt affect me personally so why should I help" doctors are currently holding the medical system hostage. People like me who have health insurance and can afford to go to the doctors this much still die and spend decades suffering prior to doing so will continue simply because our deaths are just... not that big of a deal.
