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NightmareTour

NightmareTour

Specialist
May 13, 2020
398
They cost a LOT more. But the generic is not going to help if you end up throwing them up before they dissolve. I got to a point where the pill would go down and come right back up. What kind of szs. do you have?
Yeah, that's the point I'm starting to get to. At the moment I get to the point where I'm just about to bring it back up and then it stops, but once my dose goes up again I'm sure the meds will start coming straight back up.

I have tonic-clonic (I've always known them as grand mal) seizures. They usually happen in my sleep, but my medication changed because I had one while awake.
 
D

Deleted member 1768

Enlightened
Aug 15, 2018
1,107
Yeah, that's the point I'm starting to get to. At the moment I get to the point where I'm just about to bring it back up and then it stops, but once my dose goes up again I'm sure the meds will start coming straight back up.

I have tonic-clonic (I've always known them as grand mal) seizures. They usually happen in my sleep, but my medication changed because I had one while awake.
I have what used to be called complex-partial, and gran mal. Like you mine tend to happen when I am relaxed, most often during sleep, but never when I am stressed...smile. Ain't life grand? What is your post-ictal like? I take off, and can be very violent if restrained.
 
NightmareTour

NightmareTour

Specialist
May 13, 2020
398
I have what used to be called complex-partial, and gran mal. Like you mine tend to happen when I am relaxed, most often during sleep, but never when I am stressed...smile. Ain't life grand? What is your post-ictal like? I take off, and can be very violent if restrained.
I actually found that the seizures I had in my sleep would happen at times that I had been particularly stressed in the day, and the one that I had while awake for the first time was at a point where I was incredibly anxious and stressed. Stress seems to be the main trigger for mine.

Afterwards I'm usually very confused, lethargic and I usually throw up a lot, so pretty much the total opposite. It also tends to amplify the weakness I have on my left side due to neurological damage. Generally, I'm out of action for a day or two after a seizure. I've been taken to hospital quite a lot of times because it takes me so long to recover afterwards.
 
D

Deleted member 1768

Enlightened
Aug 15, 2018
1,107
I actually found that the seizures I had in my sleep would happen at times that I had been particularly stressed in the day, and the one that I had while awake for the first time was at a point where I was incredibly anxious and stressed. Stress seems to be the main trigger for mine.

Afterwards I'm usually very confused, lethargic and I usually throw up a lot, so pretty much the total opposite. It also tends to amplify the weakness I have on my left side due to neurological damage. Generally, I'm out of action for a day or two after a seizure. I've been taken to hospital quite a lot of times because it takes me so long to recover afterwards.
Stress is the trigger for most people. As is lack of sleep. Have you had the abdomen checked, and have they ever shown up on EEG? Photo-sensitive epilepsy did for me, but only once. The rest they call idiopathic.
Stress is the trigger for most people. As is lack of sleep. Have you had the abdomen checked, and have they ever shown up on EEG? Photo-sensitive epilepsy did for me, but only once. The rest they call idiopathic.
No one I know would ever take me to the hospital after a witnessed seizure. I prefer to recover on my own. They tend to give benzos. in ER which given the dose causes me to seize. I refuse to go through that again. I just stay inside, fully clothed 24/7. Safer for me and the public.
 
Last edited:
NightmareTour

NightmareTour

Specialist
May 13, 2020
398
Stress is the trigger for most people. As is lack of sleep. Have you had the abdomen checked, and have they ever shown up on EEG? Photo-sensitive epilepsy did for me, but only once. The rest they call idiopathic.
I know for certain that they were caused by brain trauma from meningoencephalitis when I was younger (official diagnosis is gliosis and loss of mass in the right hemisphere), that was confirmed while I was still in hospital and I assume they did all of the appropriate tests there, but I don't actually remember any of it and I was probably still unconscious. It's definitely not photosensitive either, that was confirmed pretty early on. I've been successfully medicated and seizure free for a few years up until the recent one while I was awake, and nobody has explained what changed to make that happen. The solution seemed to just be that they throw some new meds at me and assume it will be fine.
 
NightmareTour

NightmareTour

Specialist
May 13, 2020
398
Things I would prefer over taking my lamotrigine right now:
-Seizures
-Losing a limb
-Going swimming in the arctic
-Drinking bleach
-Someone scooping my eyes out with a rusty spoon
-Dipping my entire head in sulfuric acid

But no, apparently there's nothing wrong with this medication.
 

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