Chronic pain is hell

[AintNoWayOut]

i feel cursed, i really do... ever since i was 16 (21 now), i've been dealing with nonstop pain and stiffness in my neck and upper back, and its fucking destroyed my quality of life. like, im not gonna act like things were perfect, i was still pretty depressed and dealt with other issues, but fuck, i had a whole life ahead of me to improve my situation, and at the very least i could still enjoy certain aspects of life... but ever since the pain began? i basically turned into a dead man walking.

i just want to know, does anyone deal with physical pain so bad its ruined their life? because i feel really alone here. like, its hard to explain exactly how it effects me, but having a constant feeling of tightness in your neck just makes EVERYTHING difficult and uncomfortable... from the moment i wake up to the moment i go to bed, a struggle. from stuff i've read online, a lot of people with chronic pain always seem to refer to how their pain has stopped them from being able to do certain activities like weightlifting, horse riding, etc but otherwise they can live a somewhat normal life. or their pain only kicks in when, say, they move a certain way... but for me, its constant, always bothering me to some extent. sure, certain actions and movements make it stand out more, but its just a general, constant feeling of pain/discomfort. and its effected my ability to do things as simple as walk around and socialize with people... if you've never dealt with neck pain before it might be difficult to understand, but it just makes you feel so awkward and clunky trying to do things, it just drains the charisma, energy and personality from you. im convinced having pain/stiffness in your neck is the worst place to have it... like, its fucked up my reaction time, motor skills, wit, and everything on such a drastic level. i can barely function... a work day can be hell. it drove me away from my friends, since trying to hang out with them while my neck felt stuck and on fire never ended well... it led to lots of stress and awkward moments. im telling you, physical freedom is one of the best things you can have, im realizing just how much i took for granted... this shit has taken total control of my life and i'd give anything to just feel painless and loose again.

so, am i the only one in this situation? im fucking cursed, i swear... and if you knew what caused it, oh boy, thats a whole other story. i didnt deserve this, and from everything i've tried and all the doctors i've seen, its unlikely it'll ever be fixed. they say i'll just have to learn to "manage" it, which is basically impossible. its so over.

 

[TimeToBiteTheDust]

Hi. I know how you feel. My life is also ruined by physical pain (backand left arm and left side of neck). I did everything I could to improve even surgery. Then resonance, ct and all that showed everything was OK which made me more upset. I can't live with this anymore. I massage my neck almost all the time. It's difficult to work like this in office. And I read that people who suffer chronic pain have risk of suicide. And I know there are two things I can do: learn to live with this (which I don't want) or ctb. I know that if I ctb I'll end my life, not only the physical pain but this is not life for me, this is not the life that I had.. I'm 26. How old are you?

 

[chris8000]

I'm so sorry to hear your going through that and I hope you find your way to peace beyond suffering. Chronic pain for 5 years, that's why I'm here, your certainly not alone. I feel we people are somewhere in a zone between the living and the dead, because the body is half dead. Strange as that sounds.

 

[Farmmaa]

I've lived with chronic pain for years.
Migraines since I was 14 - so have suffered through those for 43 years.
Neck and back pain since my late 20's.

Emergency cervical surgery in Dec 2010 due to compression of my spinal cord.
Severe degenerative disease in my neck... as well as osteoarthritis.

I now have severe pain on the right side of my neck, just below my skull, that feels like there is a knife stuck into it. It causes almost daily migraines now.

I keep trying to work through it. I have a physically demanding job and when I overdo it, that pain keeps me up at night.
Sometimes it's unbearable, sometimes tolerable … but it's always there.

I also have rib cage pain and pressure ( MS Hug, girdle pain ) that started right before my surgery. It feels like I've always got a very large, tight girdle or corset tied around my rib cage. Always there, never goes away… but more and more often it is turning in to episodes of tightness and pain so bad that I can't do anything but lay curled up in a ball on my side until it subsides. I've had four major attacks since fall … all lasting from 4 to 10 days. Dr ignores me when I say it's nerve related and keeps ordering frickin liver enzyme tests.

I've also had IBS since my first C-section 30 years ago.... pain in the butt, but tolerable on it's own - without suffering through all the other pain on top of it.

So, yes, my quality of life is going downhill at a fairly steady rate.

 

[Idorus]

Definitely not alone in this. For over 15 years I went through this lonely ride of horrible pains and no one took me truly seriously until finally ... got a neck scan and turned out I was close to an emergency case for cervical surgery. I had those pains and other horrible sensations mainly in other parts of my body but not in the neck. Led a reclusive existence, slept a LOT, could hardly anyone tolerate around me except for one senior friend I visited every night to drink beer with as that gave me some relief and we could talk well, also about death/ctb. Ofcourse I had to fight as hell for years to get welfare money without being pushed to do anything for it. Finally won with that.This is such a story.. still very limited in what I can do, postures etc. I feel with you all here

 

[lymbo]

yes OP the reason for me to be here ys also cronyc payn, yn my case for more than 2 years yn my low back and ys constant yn me too

 

[Dreamwithinadream]

Yes I suffer from severe chronic pain. It makes every day hell. I can't enjoy anything.

 

[WallsClosingInn]

Yes,i also have chronic pain,for me its lower back,for 8 years now.I'v seen so many doctors,chiropractors,done MRI and x rays,and everything comes clean,they cant tell me why i have pain.Spent so much money....I cant sleep on my back,on my left side,cant sit for longer periods of time,pain when i stand,walk....I also sometimes think im cursed...Main reason why im here,my quality of life is not existent,lost friends because of this.Lot of time i spend lying on floor with my legs on the bed to ease the pain,also taking pain medications all this time....

 

[Jean4]

Bed bound and on oxygen. For me, medical marijuana is the answer. CBD did nothing.

 

[Elbarado]

i feel cursed, i really do... ever since i was 16 (21 now), i've been dealing with nonstop pain and stiffness in my neck and upper back, and its fucking destroyed my quality of life. like, im not gonna act like things were perfect, i was still pretty depressed and dealt with other issues, but fuck, i had a whole life ahead of me to improve my situation, and at the very least i could still enjoy certain aspects of life... but ever since the pain began? i basically turned into a dead man walking.

i just want to know, does anyone deal with physical pain so bad its ruined their life? because i feel really alone here. like, its hard to explain exactly how it effects me, but having a constant feeling of tightness in your neck just makes EVERYTHING difficult and uncomfortable... from the moment i wake up to the moment i go to bed, a struggle. from stuff i've read online, a lot of people with chronic pain always seem to refer to how their pain has stopped them from being able to do certain activities like weightlifting, horse riding, etc but otherwise they can live a somewhat normal life. or their pain only kicks in when, say, they move a certain way... but for me, its constant, always bothering me to some extent. sure, certain actions and movements make it stand out more, but its just a general, constant feeling of pain/discomfort. and its effected my ability to do things as simple as walk around and socialize with people... if you've never dealt with neck pain before it might be difficult to understand, but it just makes you feel so awkward and clunky trying to do things, it just drains the charisma, energy and personality from you. im convinced having pain/stiffness in your neck is the worst place to have it... like, its fucked up my reaction time, motor skills, wit, and everything on such a drastic level. i can barely function... a work day can be hell. it drove me away from my friends, since trying to hang out with them while my neck felt stuck and on fire never ended well... it led to lots of stress and awkward moments. im telling you, physical freedom is one of the best things you can have, im realizing just how much i took for granted... this shit has taken total control of my life and i'd give anything to just feel painless and loose again.

so, am i the only one in this situation? im fucking cursed, i swear... and if you knew what caused it, oh boy, thats a whole other story. i didnt deserve this, and from everything i've tried and all the doctors i've seen, its unlikely it'll ever be fixed. say i'll just have to learn to "manage" it, which is basically impossible. its so over.

Hey I feel you bro. feel hugged.
My life was fine until Sep 2018 and even more cruel since Feb 2019 and its getting worse.
I had a lot of friends, went out, did a lot of sport and stuff.
In Sep 2018 it all began with pain in my left shoulder, i had to quit sports. That made me very sad and depressed, no physical therapy or just let time slip by worked, In Feb 2019 i got terrible lower back pain from out of nowhere, got pain in my left knee 2 weeks later. After that muscle fibrilating began in my shoulder, neck, and left ,lower leg spreading all over my body to Sep 2019. I went to 3 hospitals cause everything points out to be ALS. They said, its your psyche , but god.... you know sth is wrong.
Know my muscles get weaker and weaker, its tough to hold my head up, cause the neck is so weak, walking gets harder, even standing, i have terrible pain in my left knee, lower pine, left shoulder, pain in my right knee, right shoulder , both ellbows while moving. My life is getting more and more to hell and im afraif of beeing soon disabled, needing help by everything even breahting if its ALS.
Due to the fact the doctors said, its your psyche, my whole family and friends believe them and dont even want to see how much im suffering. I dont even get help. Its so cruel to suffer horrible pain, getting isolated and cant go on with your hobbies or normal life. Getting ignored and calles a psyche comes on top of it.
I wouldve never thought about ctb 1,5 years ago :( I just want to have back my normal life. But that wont be possible.
And i always think, why me , why me why me


May i ask you , what the doctors said, what is your diagnose?

 

[Idorus]

@Elbarado exactly know how that feels; wow fukkn hell on earth!

 

[Moonicide]

My heart goes out to everyone that lives with chronic pain. It is not an easy life, and it impacts you in so many ways... Your quality of life, your relationships, your mental health. In a sense it's as if the pain is controlling you, because it prevents you from doing the things you'd like to do. It's beyond frustrating and breaks you down along with your spirit. I deal with chronic pain and the flare ups are the worst. They come out of nowhere and I just have to ride it out. It's such an awful feeling to feel so hopeless and be stuck in a body that isn't kind to you... We are here for you and we are here to support each other.

Sending all of my love
(And hugs, lots of hugs.)

 

[AintNoWayOut]

wow, shocked how many people here relate... its comforting to know im not alone, but unfortunately, it doesnt ease the pain. gonna try and respond to some of you.

Hi. I know how you feel. My life is also ruined by physical pain (backand left arm and left side of neck). I did everything I could to improve even surgery. Then resonance, ct and all that showed everything was OK which made me more upset. I can't live with this anymore. I massage my neck almost all the time. It's difficult to work like this in office. And I read that people who suffer chronic pain have risk of suicide. And I know there are two things I can do: learn to live with this (which I don't want) or ctb. I know that if I ctb I'll end my life, not only the physical pain but this is not life for me, this is not the life that I had.. I'm 26. How old are you?

my scans also showed just about everything being okay, which really crushed me because i was hoping that surgery would be the answer as nothing else had worked... in fact, it was the news i received just a few days ago that 100% cemented the idea of inevitable ctb in the near future. my spine curve is a bit messed up which they say has caused chronic muscle spasms, but theres nothing they can do to fix it... well, aside from telling me things like "just sit up and dont always be looking down at your phone!", which has done fucking nothing for me. these people dont understand that the problem is too extreme for that to accomplish much of anything. also, holding my head up can be painful/uncomfortable itself, and bending my head back causes an extreme amount of pain and tension in the back of the neck (which is where most of the pain is). no matter who i turn to, they always oversimplify the issue and assume that i just need to do something as simple as stretch more, or have better posture, or they'll tell me that its mostly mental and i just need to not think about it... like, how am i meant to not think about it when its CONSTANTLY hurting me and affecting my mobility? i can barely move my head without hearing dozens of pops and cracks in my joints. it makes zero sense... but honestly, i cant blame totally blame them because my case is just a mystery. given what caused it, it definitely shouldnt be as severe as it is.

i am 21 and have been dealing with it since i was 16. i really wish i at least got to experience all the high school years and college life before the pain kicked in... no one should be so limited at that age. i missed out on so many opportunities, IMO some of the most important years of your life. the years in which you develop and mature, and experience a lot of exciting new things, all of which i missed out on mainly due to one stupid thing out of my control. if only i could go back with the knowledge i have now, i could've avoided the pain and can almost guarantee you i wouldnt be on this forum right now. its crazy how one mistake can ruin your entire life, this world is so unfair to some of us. sucks man.

Bed bound and on oxygen. For me, medical marijuana is the answer. CBD did nothing.

shit man, that sounds awful. hopefully you havent been dealing it since you were young. and CBD did nothing for me either, it seems like everything thats hyped up to be great for dealing with pain doesnt help me whatsoever. marijuana, however, i've never tried. at this point, though, i dont think its worth sticking around to try it... i guarantee it wont be enough to restore my life to what it was. too much damage has already been done, and i need more than just temporary relief.

Hey I feel you bro. feel hugged.
My life was fine until Sep 2018 and even more cruel since Feb 2019 and its getting worse.
I had a lot of friends, went out, did a lot of sport and stuff.
In Sep 2018 it all began with pain in my left shoulder, i had to quit sports. That made me very sad and depressed, no physical therapy or just let time slip by worked, In Feb 2019 i got terrible lower back pain from out of nowhere, got pain in my left knee 2 weeks later. After that muscle fibrilating began in my shoulder, neck, and left ,lower leg spreading all over my body to Sep 2019. I went to 3 hospitals cause everything points out to be ALS. They said, its your psyche , but god.... you know sth is wrong.
Know my muscles get weaker and weaker, its tough to hold my head up, cause the neck is so weak, walking gets harder, even standing, i have terrible pain in my left knee, lower pine, left shoulder, pain in my right knee, right shoulder , both ellbows while moving. My life is getting more and more to hell and im afraif of beeing soon disabled, needing help by everything even breahting if its ALS.
Due to the fact the doctors said, its your psyche, my whole family and friends believe them and dont even want to see how much im suffering. I dont even get help. Its so cruel to suffer horrible pain, getting isolated and cant go on with your hobbies or normal life. Getting ignored and calles a psyche comes on top of it.
I wouldve never thought about ctb 1,5 years ago :( I just want to have back my normal life. But that wont be possible.
And i always think, why me , why me why me


May i ask you , what the doctors said, what is your diagnose?

i relate with you heavy on so much of this, i cant stop obsessing over how much better my life would've been/would be now had this bullshit not happened.

and to my knowledge they didnt really diagnose me with anything, just said "chronic muscle spasms" essentially. which is honestly annoying because it just makes people assume "oh, well it cant be THAT bad" because it doesnt have an official name attached to it, and they'll say ridiculous things about it being in your head or caused entirely by something like stress or slouching... they downplay it like crazy which makes me feel like im fucking alien to everyone else, as if NO ONE can relate to just how much control this has over me and every other person around me is living a painless, carefree life while i suffer within myself. it feels like im borderline disabled, but unlike being in a wheelchair, people cant tell so they expect me to function just as well as everyone else. not to say i want extreme sympathy from everyone, because obviously i just want to go back to feeling and being able to act like a normal human being, but its just tough to keep up in a world of people who mostly feel physically normal and then there you are, trapped in your own body, screaming on the inside, while they expect you to put on your happy face and move with the flow of the rest of society.

 

[lymbo]

wow, shocked how many people here relate... its comforting to know im not alone, but unfortunately, it doesnt ease the pain. gonna try and respond to some of you.



my scans also showed just about everything being okay, which really crushed me because i was hoping that surgery would be the answer as nothing else had worked... in fact, it was the news i received just a few days ago that 100% cemented the idea of inevitable ctb in the near future. my spine curve is a bit messed up which they say has caused chronic muscle spasms, but theres nothing they can do to fix it... well, aside from telling me things like "just sit up and dont always be looking down at your phone!", which has done fucking nothing for me. these people dont understand that the problem is too extreme for that to accomplish much of anything. also, holding my head up can be painful/uncomfortable itself, and bending my head back causes an extreme amount of pain and tension in the back of the neck (which is where most of the pain is). no matter who i turn to, they always oversimplify the issue and assume that i just need to do something as simple as stretch more, or have better posture, or they'll tell me that its mostly mental and i just need to not think about it... like, how am i meant to not think about it when its CONSTANTLY hurting me and affecting my mobility? i can barely move my head without hearing dozens of pops and cracks in my joints. it makes zero sense... but honestly, i cant blame totally blame them because my case is just a mystery. given what caused it, it definitely shouldnt be as severe as it is.

i am 21 and have been dealing with it since i was 16. i really wish i at least got to experience all the high school years and college life before the pain kicked in... no one should be so limited at that age. i missed out on so many opportunities, IMO some of the most important years of your life. the years in which you develop and mature, and experience a lot of exciting new things, all of which i missed out on mainly due to one stupid thing out of my control. if only i could go back with the knowledge i have now, i could've avoided the pain and can almost guarantee you i wouldnt be on this forum right now. its crazy how one mistake can ruin your entire life, this world is so unfair to some of us. sucks man.



shit man, that sounds awful. hopefully you havent been dealing it since you were young. and CBD did nothing for me either, it seems like everything thats hyped up to be great for dealing with pain doesnt help me whatsoever. marijuana, however, i've never tried. at this point, though, i dont think its worth sticking around to try it... i guarantee it wont be enough to restore my life to what it was. too much damage has already been done, and i need more than just temporary relief.



i relate with you heavy on so much of this, i cant stop obsessing over how much better my life would've been/would be now had this bullshit not happened.

and to my knowledge they didnt really diagnose me with anything, just said "chronic muscle spasms" essentially. which is honestly annoying because it just makes people assume "oh, well it cant be THAT bad" because it doesnt have an official name attached to it, and they'll say ridiculous things about it being in your head or caused entirely by something like stress or slouching... they downplay it like crazy which makes me feel like im fucking alien to everyone else, as if NO ONE can relate to just how much control this has over me and every other person around me is living a painless, carefree life while i suffer within myself. it feels like im borderline disabled, but unlike being in a wheelchair, people cant tell so they expect me to function just as well as everyone else. not to say i want extreme sympathy from everyone, because obviously i just want to go back to feeling and being able to act like a normal human being, but its just tough to keep up in a world of people who mostly feel physically normal and then there you are, trapped in your own body, screaming on the inside, while they expect you to put on your happy face and move with the flow of the rest of society.

can you share what caused that whole thyng for you? your story

 

[Idorus]

and they'll say ridiculous things about it being in your head or caused entirely by something like stress or slouching... they downplay it like crazy which makes me feel like im fucking alien to everyone else, as if NO ONE can relate to just how much control this has over me and every other person around me is living a painless, carefree life while i suffer within myself. it feels like im borderline disabled, but unlike being in a wheelchair, people cant tell so they expect me to function just as well as everyone else. not to say i want extreme sympathy from everyone, because obviously i just want to go back to feeling and being able to act like a normal human being, but its just tough to keep up in a world of people who mostly feel physically normal and then there you are, trapped in your own body, screaming on the inside, while they expect you to put on your happy face and move with the flow of the rest of society.

Exactly my way, to the core! It was all in my head cause right before it all started I had cancer (clean after surgery) and they thought I couldn't or had not process(ed) that and so they even thought about "phantom pain" (aaghhh!!) because of some affected organs they took out when I went under the knife for cancer. While I kept saying/screaming "there is something totally completely wrong in my body!" as I felt intense knifes through my back which got my entire body stuck in the middle of the street and electric shocks from top to toe when I turned my head etc etc! It took more than 10 years when they found that neck thing finally and I turned out to be "right" with the fact "there's someting totally completely wrong in my body!"

@ In my case the big cause was my "kart race" addiction some years prior when I once bumped into the wall with a speed of !@#$%* !!! Some years later the entire shit started... (I'd totally forgotten about that bump)

If only someone had taken the TIME to listen and scan me from top to toe... that is all I needed but instead I HAD to sit with psychs to get my money to live from. And all those neurologists didn't give a damn about my suffering. Hence my trust in people and the system is gone for good.

 

[AintNoWayOut]

can you share what caused that whole thyng for you? your story

tbh i'd rather not bc its kind of embarrassing, all you really need to know is i did something having no idea it'd cause all of this. i have constant regret, but at the same time, i wasnt aware of the damage i was doing and it ended up WAY worse than it should have, so its life's fault ultimately.

 

[AintNoWayOut]

today was fucking rough... i mean, every day is, but shit, the amount of pain and discomfort i dealt with today at work was crazy. and im just expected to keep pushing through and living like this, acting like nothing is wrong... its literally impossible. all i could think about was blowing my head to pieces. why did it have to come to this?? i didnt deserve this... why the fuck cant i fix these stupid fucking muscles? i cant take it anymore i just want my life back but thats asking for too goddamn much, FUCK
this shit killed the person i once was and the person i could be... when i kms it'll be my second time dying.

 

[lymbo]

tbh i'd rather not bc its kind of embarrassing, all you really need to know is i did something having no idea it'd cause all of this. i have constant regret, but at the same time, i wasnt aware of the damage i was doing and it ended up WAY worse than it should have, so its life's fault ultimately.

sorry to hear l feel the same way. the human body ls tottal plece of junk. whats your job?

today was fucking rough... i mean, every day is, but shit, the amount of pain and discomfort i dealt with today at work was crazy. and im just expected to keep pushing through and living like this, acting like nothing is wrong... its literally impossible. all i could think about was blowing my head to pieces. why did it have to come to this?? i didnt deserve this... why the fuck cant i fix these stupid fucking muscles? i cant take it anymore i just want my life back but thats asking for too goddamn much, FUCK
this shit killed the person i once was and the person i could be... when i kms it'll be my second time dying.

sorry to hear l feel the same way. the human body ls tottal plece of junk. whats your job?

 

[AintNoWayOut]

sorry to hear l feel the same way. the human body ls tottal plece of junk. whats your job?

sorry to hear l feel the same way. the human body ls tottal plece of junk. whats your job?

retail, involves a lot of moving and interacting with people which is difficult for me, especially when under stress. my neck joint literally felt made out of glass, i wanted to just break down and cry. and im about to go in for another full shift, wish me luck.

 

[lymbo]

retail, involves a lot of moving and interacting with people which is difficult for me, especially when under stress. my neck joint literally felt made out of glass, i wanted to just break down and cry. and im about to go in for another full shift, wish me luck.

good luck, so doctors say cant be fyxed wyth surgery?

retail, involves a lot of moving and interacting with people which is difficult for me, especially when under stress. my neck joint literally felt made out of glass, i wanted to just break down and cry. and im about to go in for another full shift, wish me luck.

to lyft your spyryt a byt. let me tell you a joke l read somewhere, there was a major questyon on the ynternet , what was worse fayth. lyvyng yn nazy consertratyon camp or workyng yn retayl. yt was a tough questyon but hystoryans were called yn and sayd no doubt ys worse to work yn retayl

 

[BlueWidow]

 

[TimeToBiteTheDust]

I think one of the reasons Kurt Cobain ctbed was because of stomach chronic pain. It sucks.

 

[lymbo]

I think one of the reasons Kurt Cobain ctbed was because of stomach chronic pain. It sucks.

yes correct, he was tellyng yn a ynterwye that he was yn payn for years and ys not a qualyty of lyfe he want and rather would blow hys head off then lyve lyke thys, he was tellyng that for years before he acually dyd yt, and that was man who had everythyng , not a 9 to 5

 

[AintNoWayOut]

good luck, so doctors say cant be fyxed wyth surgery?

to lyft your spyryt a byt. let me tell you a joke l read somewhere, there was a major questyon on the ynternet , what was worse fayth. lyvyng yn nazy consertratyon camp or workyng yn retayl. yt was a tough questyon but hystoryans were called yn and sayd no doubt ys worse to work yn retayl

nope, surgery isnt an option, only things like physical therapy, hot/cold treatment, chiropractors etc which i've tried all of and they do nothing but provide temporary relief, like im talking maybe 20 minutes at most. and either way, each day the pain resets itself... i wake up stiff as hell, with my neck making noises every time i turn it so much as a few degrees. im just so tired of being so limited and controlled in my own body, its like im possessed by a demon. i need to get out of this thing.

 

[Lifetimepunishment]

I have scoliosis so I can relate to you in some levels.

 

[Motherfly]

tbh i'd rather not bc its kind of embarrassing, all you really need to know is i did something having no idea it'd cause all of this. i have constant regret, but at the same time, i wasnt aware of the damage i was doing and it ended up WAY worse than it should have, so its life's fault ultimately.

I think I have the same thing as you. Been dealing with it for 4 years now. I'd really want to know what caused it. Maybe you can tell me in private message?

Please, it's really important to me. If we really do have the same thing, you know how fucking important this is to me. I suffer as much as you do. I understand you.

 

[Deleted member 1768]

wow, shocked how many people here relate... its comforting to know im not alone, but unfortunately, it doesnt ease the pain. gonna try and respond to some of you.



my scans also showed just about everything being okay, which really crushed me because i was hoping that surgery would be the answer as nothing else had worked... in fact, it was the news i received just a few days ago that 100% cemented the idea of inevitable ctb in the near future. my spine curve is a bit messed up which they say has caused chronic muscle spasms, but theres nothing they can do to fix it... well, aside from telling me things like "just sit up and dont always be looking down at your phone!", which has done fucking nothing for me. these people dont understand that the problem is too extreme for that to accomplish much of anything. also, holding my head up can be painful/uncomfortable itself, and bending my head back causes an extreme amount of pain and tension in the back of the neck (which is where most of the pain is). no matter who i turn to, they always oversimplify the issue and assume that i just need to do something as simple as stretch more, or have better posture, or they'll tell me that its mostly mental and i just need to not think about it... like, how am i meant to not think about it when its CONSTANTLY hurting me and affecting my mobility? i can barely move my head without hearing dozens of pops and cracks in my joints. it makes zero sense... but honestly, i cant blame totally blame them because my case is just a mystery. given what caused it, it definitely shouldnt be as severe as it is.

i am 21 and have been dealing with it since i was 16. i really wish i at least got to experience all the high school years and college life before the pain kicked in... no one should be so limited at that age. i missed out on so many opportunities, IMO some of the most important years of your life. the years in which you develop and mature, and experience a lot of exciting new things, all of which i missed out on mainly due to one stupid thing out of my control. if only i could go back with the knowledge i have now, i could've avoided the pain and can almost guarantee you i wouldnt be on this forum right now. its crazy how one mistake can ruin your entire life, this world is so unfair to some of us. sucks man.



shit man, that sounds awful. hopefully you havent been dealing it since you were young. and CBD did nothing for me either, it seems like everything thats hyped up to be great for dealing with pain doesnt help me whatsoever. marijuana, however, i've never tried. at this point, though, i dont think its worth sticking around to try it... i guarantee it wont be enough to restore my life to what it was. too much damage has already been done, and i need more than just temporary relief.



i relate with you heavy on so much of this, i cant stop obsessing over how much better my life would've been/would be now had this bullshit not happened.

and to my knowledge they didnt really diagnose me with anything, just said "chronic muscle spasms" essentially. which is honestly annoying because it just makes people assume "oh, well it cant be THAT bad" because it doesnt have an official name attached to it, and they'll say ridiculous things about it being in your head or caused entirely by something like stress or slouching... they downplay it like crazy which makes me feel like im fucking alien to everyone else, as if NO ONE can relate to just how much control this has over me and every other person around me is living a painless, carefree life while i suffer within myself. it feels like im borderline disabled, but unlike being in a wheelchair, people cant tell so they expect me to function just as well as everyone else. not to say i want extreme sympathy from everyone, because obviously i just want to go back to feeling and being able to act like a normal human being, but its just tough to keep up in a world of people who mostly feel physically normal and then there you are, trapped in your own body, screaming on the inside, while they expect you to put on your happy face and move with the flow of the rest of society.

I have a soft collar I used to wear for that. It was uncomfortable, but it really worked. Can you get one?

I think I have the same thing as you. Been dealing with it for 4 years now. I'd really want to know what caused it. Maybe you can tell me in private message?

Please, it's really important to me. If we really do have the same thing, you know how fucking important this is to me. I suffer as much as you do. I understand you.

Degenerative cervical disc disease for me. Arthritis for my son. Neck brace does not work for him, but it was a god send for me. They are soft, white, and fitted. I was absolutely shocked at the difference.

 

[freaky3600]

I've got an issue with droopy eyelid sydrome. It sounds funny and it's so lame but having it for 10 years and having 5 unsuccessful surgeries on it really sucks. My eyes would be watery, red, get very dry and irritate me and cloud my vision and hurt all day long. They thought it was as a result of a sinus infection issue, so I had sinus surgery which obviously fixed nothing.

Then I went to a top eye surgeon and he said if I lost weight the issue would go away as there is too much collagen in my eyelids. So when I sleep, and my face is on the pillow, my eyelids get pushed open and get dried out and rubbed on by the pillow, so in the morning my eyes are killing me. So I lost 60lbs and the issue continued so they said I need surgery.

After 5 surgeries they still haven't fixed the issue. I have to use a sleep mask to mitigate it but it's not perfect. So I am constantly having issues with my eyes. I'm tired of it.