Chronic illness thoughts

[KuriGohan&Kamehameha]

On most forums for my illness (CFS), it feels like a constant bombardment of, "Oh, you can barely function? I know it's hard, and there's no hope for a cure, but hang in there and pace yourself!"

I've been ill for now almost 10 years of my life. My teenage years and young adulthood were ruined by the never ending fatigue and physical pain. There were so many opportunities I had to turn down due to illness, and every day I choose to go outside or do anything, it's a constant battle knowing I am guaranteed to be exhausted, in pain, and sometimes even non-verbal. If you are in your 20s and 30s the vast majority of doctors don't offer any pain relief, besides basic NSAIDs and physiotherapy, so you're basically forced to suffer without any hope of even temporary bandaid solutions.

Objectively, this is a terrible existence, for me anyways. In CFS communities, you will see people celebrating being able to go outside without having a crash if they are severe, something so basic and simple that the vast majority of people would take it for granted. Every time I take a step, there's a profound heaviness in my body that others fail to understand. "You're too young- you can't really be sick, it's psychological and born from a mindset of learned helplessness, have you learned about somatization, CBT, and the mind-body connection?" are common phrases said to people with invisible illnesses that aren't fully understood.

It's terribly hard for anyone to understand that your body can keep physically suffering for years and years, without fully shutting down and killing you. Just this constant misery and decline every single day. I can't deny that these experiences have left permanent scars on my mental state, I don't know how it couldn't. Not just from what I've lost as a person, in terms of my own skills and abilities, but the abhorrent treatment from other people. Some of the closest friends I ever had have asked me why I didn't kill myself already, or told me that I could never hope to be loved by anyone in my current state.

Of course, because I am also suffering mentally, every self-proclaimed genius guru out there will purport that this is the true cause, that I just need to seek out more psychological help and I can "train my brain" to be happy with essentially living like a walking dead zombie. Gee, why did I never think about that before? Besides, if I am objectively unhappy being shut up indoors consistently, and I am well aware of that, I am not sure how I can trick myself into feeling content with something which has objectively been proven to be bad for the majority of people's mental state.

There are so many grifters too, especially these e-celeb social media doctors who have built a cult following out of scamming people with conditions like long COVID and CFS which have no sanctioned treatments, and the mechanisms of which are poorly understood. Much like in the mental health sphere, there are so many influencers who can craft these elaborate theories of how or why the disease is occuring, but then it stops there, with no potential recommendations for treatments. Only unfounded (or partially plausible) speculations.

Then, many of them are demanding expensive and exploitative consultation fees from sick, poor, and vulnerable people. Of course, no one does anything about it, because we are objectively invisible. Most people have no idea what CFS is, and if they have heard of it before, only a fraction of those people believe in the legitimacy of such a condition.

It's enough to make you lose faith in humanity, to be talked down to constantly like a crazy and unreliable narrator, because of your physical suffering. Don't even get me started on nonsense terms like "conversion disorders", because at the end of the day it's all just code for, we haven't conducted proper biomedical research into what is causing these disorders, so we assume they are psychological in nature!

I feel like I've become a bitter person, and so disconnected from others, because how could anyone understand my reality? It's a good thing that they don't, in a way, because it means they won't have experienced anything similar to this hell firsthand, but it's an awfully isolating existence.

I genuinely don't know how I'm expected to be happy after I've lived with this awful illness for 10 years, with 0 signs of improvements. Every time I try a new protocol or regimine that someone suggests in the LC or CFS community, I inevitably feel distraught when it does nothing. There's no acknowledgement from others, and no dignity in this kind of suffering. The constant disbelief and lack of care from wider society is crushing, on top of the physical pain and tiredness you are forced to endure everyday.

I want to die so so badly.

 

[Dot]

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[here_for_now]

On most forums for my illness (CFS), it feels like a constant bombardment of, "Oh, you can barely function? I know it's hard, and there's no hope for a cure, but hang in there and pace yourself!"

I've been ill for now almost 10 years of my life. My teenage years and young adulthood were ruined by the never ending fatigue and physical pain. There were so many opportunities I had to turn down due to illness, and every day I choose to go outside or do anything, it's a constant battle knowing I am guaranteed to be exhausted, in pain, and sometimes even non-verbal. If you are in your 20s and 30s the vast majority of doctors don't offer any pain relief, besides basic NSAIDs and physiotherapy, so you're basically forced to suffer without any hope of even temporary bandaid solutions.

Objectively, this is a terrible existence, for me anyways. In CFS communities, you will see people celebrating being able to go outside without having a crash if they are severe, something so basic and simple that the vast majority of people would take it for granted. Every time I take a step, there's a profound heaviness in my body that others fail to understand. "You're too young- you can't really be sick, it's psychological and born from a mindset of learned helplessness, have you learned about somatization, CBT, and the mind-body connection?" are common phrases said to people with invisible illnesses that aren't fully understood.

It's terribly hard for anyone to understand that your body can keep physically suffering for years and years, without fully shutting down and killing you. Just this constant misery and decline every single day. I can't deny that these experiences have left permanent scars on my mental state, I don't know how it couldn't. Not just from what I've lost as a person, in terms of my own skills and abilities, but the abhorrent treatment from other people. Some of the closest friends I ever had have asked me why I didn't kill myself already, or told me that I could never hope to be loved by anyone in my current state.

Of course, because I am also suffering mentally, every self-proclaimed genius guru out there will purport that this is the true cause, that I just need to seek out more psychological help and I can "train my brain" to be happy with essentially living like a walking dead zombie. Gee, why did I never think about that before? Besides, if I am objectively unhappy being shut up indoors consistently, and I am well aware of that, I am not sure how I can trick myself into feeling content with something which has objectively been proven to be bad for the majority of people's mental state.

There are so many grifters too, especially these e-celeb social media doctors who have built a cult following out of scamming people with conditions like long COVID and CFS which have no sanctioned treatments, and the mechanisms of which are poorly understood. Much like in the mental health sphere, there are so many influencers who can craft these elaborate theories of how or why the disease is occuring, but then it stops there, with no potential recommendations for treatments. Only unfounded (or partially plausible) speculations.

Then, many of them are demanding expensive and exploitative consultation fees from sick, poor, and vulnerable people. Of course, no one does anything about it, because we are objectively invisible. Most people have no idea what CFS is, and if they have heard of it before, only a fraction of those people believe in the legitimacy of such a condition.

It's enough to make you lose faith in humanity, to be talked down to constantly like a crazy and unreliable narrator, because of your physical suffering. Don't even get me started on nonsense terms like "conversion disorders", because at the end of the day it's all just code for, we haven't conducted proper biomedical research into what is causing these disorders, so we assume they are psychological in nature!

I feel like I've become a bitter person, and so disconnected from others, because how could anyone understand my reality? It's a good thing that they don't, in a way, because it means they won't have experienced anything similar to this hell firsthand, but it's an awfully isolating existence.

I genuinely don't know how I'm expected to be happy after I've lived with this awful illness for 10 years, with 0 signs of improvements. Every time I try a new protocol or regimine that someone suggests in the LC or CFS community, I inevitably feel distraught when it does nothing. There's no acknowledgement from others, and no dignity in this kind of suffering. The constant disbelief and lack of care from wider society is crushing, on top of the physical pain and tiredness you are forced to endure everyday.

I want to die so so badly.

I know exactly how you feel, having LC for 2+ years and CFS for almost 2 years has fucked my entire life up.

I'm always alone and I'm probably going to die alone. Really don't want to ctb but I think it's my only way to avoid living decades with a progressive condition completely isolated

 

[KuriGohan&Kamehameha]

I know exactly how you feel, having LC for 2+ years and CFS for almost 2 years has fucked my entire life up.

I'm always alone and I'm probably going to die alone. Really don't want to ctb but I think it's my only way to avoid living decades with a progressive condition completely isolated

I really feel for you, this disease is a nightmare. The wider public is severely lacking in awareness of it, likely because so many of us are alone and don't have anyone to advocate for us or show the realties of our condition.

I understand how you feel completely, because as time has passed I have lost more and more people, and ended up with very few supports in my corner. The act of building relationships feels like an insurmountable task, when a great deal of the time, I'm too tired to get a lot of words out and find communicating verbally to be challenging.

Have you tried low dose naltrexone/LDN or nattokinase yet? A lot of people, even here, have had some success with these treatments, but unfortunately it has made no difference in my situation. I did try a medication used for poor circulation in the legs, which mildly improved my overall stamina, but had horrible side effects because it made my blood too thin. It sucks that we have to be the ones constantly researching and experimenting, because no one else is.

Btw, I love your Okabe PFP. My username actually comes from Stein's Gate as well, I used to be compared to Kurisu a lot, but not anymore with my current level of brainfog and brainrot

 

[certified_idiot]

Yeah, people don't realize how absolutely debilitating chronic fatigue is. Most people will only ever understand fatigue as being tired, and not the true lethargy we experience. People always try to infuse hope into a hopeless situation. I've heard people tell me that there may be a medical breakthrough, or that I'm just being melancholic, or that I just have to stick with one of the many useless treatments that I'm already on.

I know I'll continue to get worse. I know my body's failing. I know my own triggers. I know how my conditions work better than most doctors. I highly doubt I'll be able to work by the time I'm 30. I'm barely functional now. The only thing keeping me going is pure anxiety, and I'm on 1800 mg of anxiety medication a day. I don't think I can keep this up for much longer. Not when the world is working against me.

I wanted to ctb before my conditions got bad, so I don't know why people expect my mental health to get better as my physical health gets worse. I do think people are trying to help, but they are overconfident and don't listen, so they just end up making everything worse. I know it's possible to be disabled and happy, but happy disabled people have support systems. I'm too autistic and depressed to actually talk to people, and when I do make friendships, I can't maintain them because I'm too exhausted.

My parents aren't supportive, and I think that if I had to rely on them again, I'd ctb anyway. I don't see a point in living if I'm in constant pain everyday. I hate everything and I just want to die.

 

[MyMomWasMyLife]

On most forums for my illness (CFS), it feels like a constant bombardment of, "Oh, you can barely function? I know it's hard, and there's no hope for a cure, but hang in there and pace yourself!"

I've been ill for now almost 10 years of my life. My teenage years and young adulthood were ruined by the never ending fatigue and physical pain. There were so many opportunities I had to turn down due to illness, and every day I choose to go outside or do anything, it's a constant battle knowing I am guaranteed to be exhausted, in pain, and sometimes even non-verbal. If you are in your 20s and 30s the vast majority of doctors don't offer any pain relief, besides basic NSAIDs and physiotherapy, so you're basically forced to suffer without any hope of even temporary bandaid solutions.

Objectively, this is a terrible existence, for me anyways. In CFS communities, you will see people celebrating being able to go outside without having a crash if they are severe, something so basic and simple that the vast majority of people would take it for granted. Every time I take a step, there's a profound heaviness in my body that others fail to understand. "You're too young- you can't really be sick, it's psychological and born from a mindset of learned helplessness, have you learned about somatization, CBT, and the mind-body connection?" are common phrases said to people with invisible illnesses that aren't fully understood.

It's terribly hard for anyone to understand that your body can keep physically suffering for years and years, without fully shutting down and killing you. Just this constant misery and decline every single day. I can't deny that these experiences have left permanent scars on my mental state, I don't know how it couldn't. Not just from what I've lost as a person, in terms of my own skills and abilities, but the abhorrent treatment from other people. Some of the closest friends I ever had have asked me why I didn't kill myself already, or told me that I could never hope to be loved by anyone in my current state.

Of course, because I am also suffering mentally, every self-proclaimed genius guru out there will purport that this is the true cause, that I just need to seek out more psychological help and I can "train my brain" to be happy with essentially living like a walking dead zombie. Gee, why did I never think about that before? Besides, if I am objectively unhappy being shut up indoors consistently, and I am well aware of that, I am not sure how I can trick myself into feeling content with something which has objectively been proven to be bad for the majority of people's mental state.

There are so many grifters too, especially these e-celeb social media doctors who have built a cult following out of scamming people with conditions like long COVID and CFS which have no sanctioned treatments, and the mechanisms of which are poorly understood. Much like in the mental health sphere, there are so many influencers who can craft these elaborate theories of how or why the disease is occuring, but then it stops there, with no potential recommendations for treatments. Only unfounded (or partially plausible) speculations.

Then, many of them are demanding expensive and exploitative consultation fees from sick, poor, and vulnerable people. Of course, no one does anything about it, because we are objectively invisible. Most people have no idea what CFS is, and if they have heard of it before, only a fraction of those people believe in the legitimacy of such a condition.

It's enough to make you lose faith in humanity, to be talked down to constantly like a crazy and unreliable narrator, because of your physical suffering. Don't even get me started on nonsense terms like "conversion disorders", because at the end of the day it's all just code for, we haven't conducted proper biomedical research into what is causing these disorders, so we assume they are psychological in nature!

I feel like I've become a bitter person, and so disconnected from others, because how could anyone understand my reality? It's a good thing that they don't, in a way, because it means they won't have experienced anything similar to this hell firsthand, but it's an awfully isolating existence.

I genuinely don't know how I'm expected to be happy after I've lived with this awful illness for 10 years, with 0 signs of improvements. Every time I try a new protocol or regimine that someone suggests in the LC or CFS community, I inevitably feel distraught when it does nothing. There's no acknowledgement from others, and no dignity in this kind of suffering. The constant disbelief and lack of care from wider society is crushing, on top of the physical pain and tiredness you are forced to endure everyday.

I want to die so so badly.

I'm so sorry for what you (and everyone else on this thread) are going through and I fully understand not wanting to live like that for decades. It's hard to believe it's 2026 and they don't have anything better to offer as treatments. I don't know anything about this syndrome so forgive me if this is not an appropriate question, but have amphetamines of any kind be tried/prescribed?

 

[Raindancer]

I am sorry you are in this club I have a rare autoimmune inflammatory disease as well as RA and some others and I can never decide which is worse the fatigue or pain. I've been sick for a very long time, diagnosed in 03 after being gaslit by doctors. This is a really shitt club to be a member of and I am sorry for all its members. It changes absolutely everything about who you are and how you function and relate to others. My husband left me because he couldn't take not living a normal life. You are definitely not alone.

 

[urgent]

On most forums for my illness (CFS), it feels like a constant bombardment of, "Oh, you can barely function? I know it's hard, and there's no hope for a cure, but hang in there and pace yourself!"

I've been ill for now almost 10 years of my life. My teenage years and young adulthood were ruined by the never ending fatigue and physical pain. There were so many opportunities I had to turn down due to illness, and every day I choose to go outside or do anything, it's a constant battle knowing I am guaranteed to be exhausted, in pain, and sometimes even non-verbal. If you are in your 20s and 30s the vast majority of doctors don't offer any pain relief, besides basic NSAIDs and physiotherapy, so you're basically forced to suffer without any hope of even temporary bandaid solutions.

Objectively, this is a terrible existence, for me anyways. In CFS communities, you will see people celebrating being able to go outside without having a crash if they are severe, something so basic and simple that the vast majority of people would take it for granted. Every time I take a step, there's a profound heaviness in my body that others fail to understand. "You're too young- you can't really be sick, it's psychological and born from a mindset of learned helplessness, have you learned about somatization, CBT, and the mind-body connection?" are common phrases said to people with invisible illnesses that aren't fully understood.

It's terribly hard for anyone to understand that your body can keep physically suffering for years and years, without fully shutting down and killing you. Just this constant misery and decline every single day. I can't deny that these experiences have left permanent scars on my mental state, I don't know how it couldn't. Not just from what I've lost as a person, in terms of my own skills and abilities, but the abhorrent treatment from other people. Some of the closest friends I ever had have asked me why I didn't kill myself already, or told me that I could never hope to be loved by anyone in my current state.

Of course, because I am also suffering mentally, every self-proclaimed genius guru out there will purport that this is the true cause, that I just need to seek out more psychological help and I can "train my brain" to be happy with essentially living like a walking dead zombie. Gee, why did I never think about that before? Besides, if I am objectively unhappy being shut up indoors consistently, and I am well aware of that, I am not sure how I can trick myself into feeling content with something which has objectively been proven to be bad for the majority of people's mental state.

There are so many grifters too, especially these e-celeb social media doctors who have built a cult following out of scamming people with conditions like long COVID and CFS which have no sanctioned treatments, and the mechanisms of which are poorly understood. Much like in the mental health sphere, there are so many influencers who can craft these elaborate theories of how or why the disease is occuring, but then it stops there, with no potential recommendations for treatments. Only unfounded (or partially plausible) speculations.

Then, many of them are demanding expensive and exploitative consultation fees from sick, poor, and vulnerable people. Of course, no one does anything about it, because we are objectively invisible. Most people have no idea what CFS is, and if they have heard of it before, only a fraction of those people believe in the legitimacy of such a condition.

It's enough to make you lose faith in humanity, to be talked down to constantly like a crazy and unreliable narrator, because of your physical suffering. Don't even get me started on nonsense terms like "conversion disorders", because at the end of the day it's all just code for, we haven't conducted proper biomedical research into what is causing these disorders, so we assume they are psychological in nature!

I feel like I've become a bitter person, and so disconnected from others, because how could anyone understand my reality? It's a good thing that they don't, in a way, because it means they won't have experienced anything similar to this hell firsthand, but it's an awfully isolating existence.

I genuinely don't know how I'm expected to be happy after I've lived with this awful illness for 10 years, with 0 signs of improvements. Every time I try a new protocol or regimine that someone suggests in the LC or CFS community, I inevitably feel distraught when it does nothing. There's no acknowledgement from others, and no dignity in this kind of suffering. The constant disbelief and lack of care from wider society is crushing, on top of the physical pain and tiredness you are forced to endure everyday.

I want to die so so badly.

I have it too. I'm sorry. I have many other debilitating painful illnesses now too. I suffer every day in immense pain. I understand. I wish I had a painless way out like some who can afford to travel or are in a place it's legal for assistance. We all deserve the right to autonomy. I deserve MAiD or a painless option. Now I can't get an option alone in this condition. I'm in so much pain I'm crying and that hurts now too.

On most forums for my illness (CFS), it feels like a constant bombardment of, "Oh, you can barely function? I know it's hard, and there's no hope for a cure, but hang in there and pace yourself!"

I've been ill for now almost 10 years of my life. My teenage years and young adulthood were ruined by the never ending fatigue and physical pain. There were so many opportunities I had to turn down due to illness, and every day I choose to go outside or do anything, it's a constant battle knowing I am guaranteed to be exhausted, in pain, and sometimes even non-verbal. If you are in your 20s and 30s the vast majority of doctors don't offer any pain relief, besides basic NSAIDs and physiotherapy, so you're basically forced to suffer without any hope of even temporary bandaid solutions.

Objectively, this is a terrible existence, for me anyways. In CFS communities, you will see people celebrating being able to go outside without having a crash if they are severe, something so basic and simple that the vast majority of people would take it for granted. Every time I take a step, there's a profound heaviness in my body that others fail to understand. "You're too young- you can't really be sick, it's psychological and born from a mindset of learned helplessness, have you learned about somatization, CBT, and the mind-body connection?" are common phrases said to people with invisible illnesses that aren't fully understood.

It's terribly hard for anyone to understand that your body can keep physically suffering for years and years, without fully shutting down and killing you. Just this constant misery and decline every single day. I can't deny that these experiences have left permanent scars on my mental state, I don't know how it couldn't. Not just from what I've lost as a person, in terms of my own skills and abilities, but the abhorrent treatment from other people. Some of the closest friends I ever had have asked me why I didn't kill myself already, or told me that I could never hope to be loved by anyone in my current state.

Of course, because I am also suffering mentally, every self-proclaimed genius guru out there will purport that this is the true cause, that I just need to seek out more psychological help and I can "train my brain" to be happy with essentially living like a walking dead zombie. Gee, why did I never think about that before? Besides, if I am objectively unhappy being shut up indoors consistently, and I am well aware of that, I am not sure how I can trick myself into feeling content with something which has objectively been proven to be bad for the majority of people's mental state.

There are so many grifters too, especially these e-celeb social media doctors who have built a cult following out of scamming people with conditions like long COVID and CFS which have no sanctioned treatments, and the mechanisms of which are poorly understood. Much like in the mental health sphere, there are so many influencers who can craft these elaborate theories of how or why the disease is occuring, but then it stops there, with no potential recommendations for treatments. Only unfounded (or partially plausible) speculations.

Then, many of them are demanding expensive and exploitative consultation fees from sick, poor, and vulnerable people. Of course, no one does anything about it, because we are objectively invisible. Most people have no idea what CFS is, and if they have heard of it before, only a fraction of those people believe in the legitimacy of such a condition.

It's enough to make you lose faith in humanity, to be talked down to constantly like a crazy and unreliable narrator, because of your physical suffering. Don't even get me started on nonsense terms like "conversion disorders", because at the end of the day it's all just code for, we haven't conducted proper biomedical research into what is causing these disorders, so we assume they are psychological in nature!

I feel like I've become a bitter person, and so disconnected from others, because how could anyone understand my reality? It's a good thing that they don't, in a way, because it means they won't have experienced anything similar to this hell firsthand, but it's an awfully isolating existence.

I genuinely don't know how I'm expected to be happy after I've lived with this awful illness for 10 years, with 0 signs of improvements. Every time I try a new protocol or regimine that someone suggests in the LC or CFS community, I inevitably feel distraught when it does nothing. There's no acknowledgement from others, and no dignity in this kind of suffering. The constant disbelief and lack of care from wider society is crushing, on top of the physical pain and tiredness you are forced to endure everyday.

I want to die so so badly.

I have it too. I'm sorry. I have many other debilitating painful illnesses now too. I suffer every day in immense pain. I understand. I wish I had a painless way out like some who can afford to travel or are in a place it's legal for assistance. We all deserve the right to autonomy. I deserve MAiD or a painless option. Now I can't get an option alone in this condition. I'm in so much pain I'm crying and that hurts now too

 

[dust-in-the-wind]

I'm so sorry for what you (and everyone else on this thread) are going through and I fully understand not wanting to live like that for decades. It's hard to believe it's 2026 and they don't have anything better to offer as treatments. I don't know anything about this syndrome so forgive me if this is not an appropriate question, but have amphetamines of any kind be tried/prescribed?

I was going to ask the same thing, about amphetamines. I don't have CFS but I have severe depression treatment resistant depression. I was prescribed amphetamines because I couldn't get out of bed. They do help. Some days better than others.

 

[KuriGohan&Kamehameha]

I'm so sorry for what you (and everyone else on this thread) are going through and I fully understand not wanting to live like that for decades. It's hard to believe it's 2026 and they don't have anything better to offer as treatments. I don't know anything about this syndrome so forgive me if this is not an appropriate question, but have amphetamines of any kind be tried/prescribed?

I was going to ask the same thing, about amphetamines. I don't have CFS but I have severe depression treatment resistant depression. I was prescribed amphetamines because I couldn't get out of bed. They do help. Some days better than others.

Actually I did try medications like modafinil before, I think for some people it can be helpful depending on the root cause of why they developed the condition, and comorbidities. For me, different stimulant medications seemed to worsen my brain fog and make me more easily distracted, for whatever reason. Also, I have some weird circulatory and blood clotting issues, so I'm quite sensitive to changes in blood pressure and overexertion.

I think it makes sense why amphetamines would be quite useful for depression due to the increase in dopaminergic signalling. I don't know if you have heard about them before, because they are quite rare these days due to the side effects profile and the large number of tyramine containing foods you need to avoid while on them, but MAOIs increase the duration of serotonin, norepinephrine, and dopamine in the synaptic cleft.

They're very rarely prescribed now (because of the cautiousness with diet required to avoid hypertension) even though it seems like they are far more effective than SSRIs and SNRIs, likely due to that dopaminergic boost. If you're interested in learning more about it there is a subreddit for this class of medication which is quite useful, I think most of the members there have severe TRD and anhedonia that didn't respond to ANY treatment before MAOIs. They just seem to be extremely difficult to get prescribed, even compared to amphetamines, because so many doctors don't trust patients to follow the tyramine restricted diet.

 

[dust-in-the-wind]

I tried Modafinil and I felt no difference and Ritalin made me tired. Vyvanse is my favorite. Adderall is good too. Maybe try a different stimulant just to see how it affects you? I naturally have a high resting heart rate, genetic heart disease and being older at 57 puts me at risk taking stimulants but the doctors allow it because they don't want me to kill myself and nothing else helps. Plus I don't care if I die.
I have tried MAOI's, Nardil and Parnate. For whatever reason they made me worse than I ever thought was possible and caused severe agitation and I ended up hospitalized!. Thank you though for suggesting. Most people don't know about them. I am so sorry for what you are going through. Severe depression is also very debilitating. I can't do much and never leave the house. I feel crippled and my brain wont let me move. I cry every day. The mental pain is indescribable. No one understands and thinks I can just snap out of it. Death is calling me every day.

 

[pvsnp]

I feel for you and everyone in this thread. Having a condition just eat away at your life and essentially your sense of self as well is absolutely awful. Especially when it is misunderstood by so many.

 

[hydroxyzine]

I am new to this forum, but I also suffer from ME/CFS and LC, and I hear you. Theres so little help for people like us who are severe in symptoms, and I also have tried so many different routines and "cures" that I hear in LC/CFS and related chronic illness groups. I have only suffered with severe LC/CFS for a year now with growing problems and it truly is such an isolating experience. When I talk about it, suddenly everyone is a doctor, and my actual medical team is useless. "Have you tried this? What about hollistic approaches? Have you tried pacing better? Have you considered its all psycho-somatic?" It truly is never ending. I hope that you are able to atleast find community who understands you through your suffering. Reading this makes me feel less alone, so thank you and know theres people who see you.