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Broad604

New Member
Jun 5, 2024
1
Hello. This is my first post.

I am suffering from a highly unusual, currently unnamed medical condition (physical) that, without giving too much away, totally consumes between 2 and 4 hours of my life every day, and depending on if I have a "good" or "bad" day can ruin or at least seriously worsen an entire day. I have been suffering with this condition for almost 10 years now, and, particularly in the last 3 or 4 years, it has completely prevented me from living a normal life. It dominates everything. I can't plan anything without first taking it, and the several hours actively managing it takes every day, into account. My close family are only partly aware of the details, and very few of my friends know anything. I am genuinely amazed I have managed to maintain, at least outwardly, a relitively normal seaming life, though I do have to plan around my condition, so doing anything without at least 24 hours notice is difficult, and have managed to have relatively normal working life up until now.

Trouble is, I'm never going to get any better, I'm only going to worse, it already is. I realised about a year ago that I had somewhere between 1 and 3 years of "viable" life left before it simply becomes all consuming. I intend to live every day that I can before it simply becomes unbearable, before every day is a "bad" day. Then I'm going to die by my own hand. I have begun calling this day "Oblivion Day" (don't know why it just sounds dramatic).

As this as yet unspecified day draws closer, I have begun taking much greater risks, incuding using recreational drugs (cannabis helps with "bad" days, cocaine is nice on good days) but I am by no means any kind of addict, and spending much more heavily on vacations, etc. I no longer care if I am in debt, etc. Can't re-possess the assets of a corpse.

Firearms would be my prefered choice due to the reletive ease of use and high probabilty of success, but I live in Europe in a country in which guns are very rare (most police officers don't have guns here), and hard to get. Any suggestions of a high chance of success method would be very much appreciated, though due to my condition I would prefer it not to involve swallowing something, as this could turn a "good" day, my last "good" day, into a bad day, and I don't want to die feeling ill.

Thank you if you took the time to read this. This is genuinely the first time I have shared any information about my conditon with anyone but my Parents and a doctor.
 
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Rational man

Rational man

Enlightened
Oct 19, 2021
1,384
Illnesses are terrible, albeit physical and mental and I think they can merge to affect us on so many levels. I can understand how you feel, and in my case I became ill after the c19 vaccination and I believe it triggered this autoimmune disease I have. To be honest im living with it 24/7. Pain and sickness, and neuropathy, I find it hard to live. My doctors are not wanting to talk about it for obvious reasons. I cannot be cured and have no absolute idea when I will die. My only comfort is knowing that when the disease is too much, I have a legal plan to cease existing. What makes it bearable is knowing that death isn't too far away for any of us really for life is short, even amongst the healthiest, so facing that certainty has made my decision to cease so much easier. Im really sorry to hear about your pain and illness. Yo say you have 3 Years but have the medics told you so?. Is there no treatment?. I hope they find a cure for you because we only get one go at existence in our current form. The irony is that i loved life and still do and i try to live each day until i can't do it anymore.
 
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wyo777

When life is a nightmare...
May 18, 2024
124
I totally understand. I used to love life, enjoyed every moment of it. Now illness took it from me. Even now i do not want to die but i can not live with that what happens to my body. Every day is worst and there is no chance to get better. It is difficult decision but sometimes it is the only way.
 
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FuneralCry

FuneralCry

Tortured by evil humans
Sep 24, 2020
35,209
That must be really dreadful and tiring what you go through, it's certainly so cruel how people suffer in this existence all through no fault of their own. But anyway best wishes, I hope that you eventually find what you search for.
 
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keg-ireland

keg-ireland

Member
May 3, 2024
49
Hello. This is my first post.

I am suffering from a highly unusual, currently unnamed medical condition (physical) that, without giving too much away, totally consumes between 2 and 4 hours of my life every day, and depending on if I have a "good" or "bad" day can ruin or at least seriously worsen an entire day. I have been suffering with this condition for almost 10 years now, and, particularly in the last 3 or 4 years, it has completely prevented me from living a normal life. It dominates everything. I can't plan anything without first taking it, and the several hours actively managing it takes every day, into account. My close family are only partly aware of the details, and very few of my friends know anything. I am genuinely amazed I have managed to maintain, at least outwardly, a relitively normal seaming life, though I do have to plan around my condition, so doing anything without at least 24 hours notice is difficult, and have managed to have relatively normal working life up until now.

Trouble is, I'm never going to get any better, I'm only going to worse, it already is. I realised about a year ago that I had somewhere between 1 and 3 years of "viable" life left before it simply becomes all consuming. I intend to live every day that I can before it simply becomes unbearable, before every day is a "bad" day. Then I'm going to die by my own hand. I have begun calling this day "Oblivion Day" (don't know why it just sounds dramatic).

As this as yet unspecified day draws closer, I have begun taking much greater risks, incuding using recreational drugs (cannabis helps with "bad" days, cocaine is nice on good days) but I am by no means any kind of addict, and spending much more heavily on vacations, etc. I no longer care if I am in debt, etc. Can't re-possess the assets of a corpse.

Firearms would be my prefered choice due to the reletive ease of use and high probabilty of success, but I live in Europe in a country in which guns are very rare (most police officers don't have guns here), and hard to get. Any suggestions of a high chance of success method would be very much appreciated, though due to my condition I would prefer it not to involve swallowing something, as this could turn a "good" day, my last "good" day, into a bad day, and I don't want to die feeling ill.

Thank you if you took the time to read this. This is genuinely the first time I have shared any information about my conditon with anyone but my Parents and a doctor.
Totally understand as I too am living with a chronic physical illness along with severe treatment resistant depression. My symptoms are crippling and are there 24/7. I get a break from it when I'm asleep then wake up in the morning to suffer through another day.

I would have CTB a long time ago but the thoughts of bringing devastation to my family prevent me from doing so as they are the most loving and caring family and they do everything for me to try and maje life more bearable. On saying that I can't really see me being alive in a few months as the suffering is just too much, it just feels like I'm being tortured nonstop and I give up and want the physical and mental pain to end.

I totally relate to your circumstances and hope that you get peace with whatever you decide to do.
 
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H

Hotsackage

Elementalist
Mar 11, 2019
854
There is no break from chronic illness, mental or physical, I wish you the best
 
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Raindancer

Raindancer

Specialist
Nov 4, 2023
313
I absolutely relate and am sorry you are in"the club". The mental fortitude to get through each day with illnesses is so exhausting. I hope in the time that is left that something could help your suffering or at least relieve it a bit.
 
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S

suffering_mo_7

Student
May 8, 2024
195
I absolutely relate. I have all over central nervous system damage from a medical infusion that has left my life unbearable. Plus a chronic stomach condition similar to gastritis that will never get better. I'm in physical and mental hell every day. I can't even be around my family much because their stimulation and noises are too much for my system. I could go on. I wish there was a method that you describe....I wish I could go to Pegasos but my family would never consent. I am a Christian and having a really hard time trying to reconcile this. I'm scared and afraid and suffering so, so much with no quality of life whatsoever.... due to a chemical neurotoxin.
 
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Nikitatos

Nikitatos

Specialist
Apr 10, 2024
314
Yes, I can totally relate. My illness dominates my life. I recently had to quit my part-time job. Outwardly, no one can even tell how sick I am.

Like you alluded to, chronic illnesses slowly destroy your life. You stop caring about everything and do things you wouldn't ordinarily do.
 
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A

Ah.ow

scared person
Mar 12, 2024
99
is it possible for an ER to help? maybe if there was a primary care Dr who also did other levels of care?

I am confused about no physical pain crisis respite existing.

I wonder if even a Dr who was around for around the clock care, could help?

I thought maybe if there was a Dr who responds anytime, and they can get a medical facility to keep moving, then is that realistic and helpful? like if helping the pain took a relatively short inpatient stay?

ah it didn't seem likely to be affordable, but is it even effective if possible?

for this pain I wondered maybe could I sell my soul for relief? I don't mean hurt anyone, but can I be more submissive, take alot of mental shit from people with money, if it means physical relief?
 
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_Minsk

_Minsk

death: the cure for life
Dec 9, 2019
1,070
chronic illness is the worst, dealing with it for almost a decade, i hope you find something that helps. Its very isolating and takes so much joy and energy
 
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ADBoy777

ADBoy777

Student
May 16, 2024
100
Chronic illness is tough to know that there is no cure the pain. I feel ya.
Best wishes🙏🏼🤍
 
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F

flyfreetonopain

Member
Apr 8, 2024
10
Illnesses are terrible, albeit physical and mental and I think they can merge to affect us on so many levels. I can understand how you feel, and in my case I became ill after the c19 vaccination and I believe it triggered this autoimmune disease I have. To be honest im living with it 24/7. Pain and sickness, and neuropathy, I find it hard to live. My doctors are not wanting to talk about it for obvious reasons. I cannot be cured and have no absolute idea when I will die. My only comfort is knowing that when the disease is too much, I have a legal plan to cease existing. What makes it bearable is knowing that death isn't too far away for any of us really for life is short, even amongst the healthiest, so facing that certainty has made my decision to cease so much easier. Im really sorry to hear about your pain and illness. Yo say you have 3 Years but have the medics told you so?. Is there no treatment?. I hope they find a cure for you because we only get one go at existence in our current form. The irony is that i loved life and still do and i try to live each day until i can't do it anymore.
Hello there. I am in the exact same boat as you although mine was triggered after a 2nd mild covid infection from last year. Terrible neuropathic pain on my fucking spine... I have lost my job because of this and currently having to rely on my old parents for support. Worse is gaslighting from medical community... My only solace these days is knowing I have SN and i hope to succeed...
 
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