rasputin
chronically ill
- Mar 28, 2020
- 25
The date today was hella depressing. I'm still here, another year has passed, and I'm not even brave enough for SN yet. I'm waiting on the debreather reviews before ordering. Praying for a way out that isn't excruciating.
I've been extremely ill for 10 years now. I was as close as I'll come to a natural death in 2019. I got what I always wanted and I was at peace. Put on hospice, heavily medicated, etc. By sheer cruel irony I'm still here, I was brought back from the brink, and now I feel like a ghost. After hospice I lost everything - my home, my family, my friends, any shred of support, the pain meds. I know what being on the brink of death feels like and I know for a fact that I'm no longer there. My doctor figured out a way to stabilize me even though I was ready to let go. Now I'm stabilized, and stunned, and just really fucking sad. My life is agony, I'm still in constant physical pain.
Most of all, I'm horrified and shocked that I lived to see another birthday today when the suffering was supposed to finally be over. This wasn't the plan. And I hate it more than I can explain. A walking shell of a person with endless health problems, too stunned and too sick to even go through with cbt at the moment.
I don't even know what the point of this post is, but I figured you've all probably hate your birthdays too and would understand.
For those with physical diseases, do you ever feel like it's a cruel irony that your body is actively decaying but you still have to cbt because your disease isn't fully life threatening yet (or "anymore" in my case)? For me I often look down at my body and think "Just finish the job already. Jesus."
I've been extremely ill for 10 years now. I was as close as I'll come to a natural death in 2019. I got what I always wanted and I was at peace. Put on hospice, heavily medicated, etc. By sheer cruel irony I'm still here, I was brought back from the brink, and now I feel like a ghost. After hospice I lost everything - my home, my family, my friends, any shred of support, the pain meds. I know what being on the brink of death feels like and I know for a fact that I'm no longer there. My doctor figured out a way to stabilize me even though I was ready to let go. Now I'm stabilized, and stunned, and just really fucking sad. My life is agony, I'm still in constant physical pain.
Most of all, I'm horrified and shocked that I lived to see another birthday today when the suffering was supposed to finally be over. This wasn't the plan. And I hate it more than I can explain. A walking shell of a person with endless health problems, too stunned and too sick to even go through with cbt at the moment.
I don't even know what the point of this post is, but I figured you've all probably hate your birthdays too and would understand.
For those with physical diseases, do you ever feel like it's a cruel irony that your body is actively decaying but you still have to cbt because your disease isn't fully life threatening yet (or "anymore" in my case)? For me I often look down at my body and think "Just finish the job already. Jesus."