Currently my nerve pain comes about sporadically and for short periods. The longest was 8 days, the last few days of which I spent in emergency under sedation. But it's eventually going to be permanent. My immune system is suppressing it 24/7 and it won't be able to forever. When that happens, ctb will likely be the only option. When it really flares up, it's not possible to live with, it is extreme jolting pain that is repeated every few seconds indefinitely. There's no way to sleep, or frankly do anything when it gets like that.