What do you do when you find out you have a disease with no cure?

[accountnamerequired]

pretty life changing symptoms, and no cure. I thought I was depressed before in an extremely toxic living environment. I managed to get out, but my other depressing issue, the disease is only projected to get worse the longer I'm around. It really makes you miss basic things that you took for granted your whole life. It pisses me off too like bro I wish you could just do your damage so to speak all at once and get it over with. Obviously I've thought about it before if I have an account here, but why do I get what I wanted only in the most annoying humiliating drawn out way possible

I was doing pretty good recently too, I haven't been on this website in months. But like stated earlier the degeneration has gotten to the point where I really see no future life worth living. I know there's some way to tag this as venting but I can't find it here on mobile sorry.
It's genetic, so it's crazy to think I've been doomed to be a living failure biologically my whole life, I just didn't know about it in my childhood, blissfully unaware. The fact that my life is guarantee to only go downhill as far as physical health definetly helps bring back my ctb dreams from over the winter. I knew I had these issues but I didn't know there was absolutely no cure or way to fix it

 

[Nikitatos]

Uncurable diseases that cause tremendous suffering are the number one reason why society needs a legal, humane option to end life.

 

[Aprilfarewell4]

I have something incurable not a disease per se but medical injury that can't heal and that's why I'm killing myself, so what I did when I found out is decided to commit suicide

 

[MBG]

pretty life changing symptoms, and no cure. I thought I was depressed before in an extremely toxic living environment. I managed to get out, but my other depressing issue, the disease is only projected to get worse the longer I'm around. It really makes you miss basic things that you took for granted your whole life. It pisses me off too like bro I wish you could just do your damage so to speak all at once and get it over with. Obviously I've thought about it before if I have an account here, but why do I get what I wanted only in the most annoying humiliating drawn out way possible

I was doing pretty good recently too, I haven't been on this website in months. But like stated earlier the degeneration has gotten to the point where I really see no future life worth living. I know there's some way to tag this as venting but I can't find it here on mobile sorry.
It's genetic, so it's crazy to think I've been doomed to be a living failure biologically my whole life, I just didn't know about it in my childhood, blissfully unaware. The fact that my life is guarantee to only go downhill as far as physical health definetly helps bring back my ctb dreams from over the winter. I knew I had these issues but I didn't know there was absolutely no cure or way to fix it

Join the club….

Figure out progression of disease to decide at what point you have to do it now or lose your ability to consent.

Look into your home state to see if they have Medical Aid in Dying ("MAiD"). Look into suicide tourism to OR or VT. NB most US state MAiD laws require death be imminent (within 6 months), yet for many diseases by that time you've already lost your marbles and cannot legally consent. Catch-22….

Get a passport. Figure out the cost for "The Swiss Option" ($15,000-20,000). If Sarco comes online that figure will get cut significantly.

Work on your Bucket List.

Get closer to God. Pray. I listen to the New Testament on YouTube while washing dishes, cleaning house. I like the NKJV translation. Visit some churches.

Try to make amends and be at peace with family members.

Don't sweat the small stuff. Most things are small stuff….

 

[Forever Sleep]

I'm so sorry for your situation. Personally, I would be contacting my doctor to see whether they would agree to support a request for assisted suicide. It's like a double edged sword to my mind. On the one hand, it's probably the worst news to hear. On the other, if even doctors agree that nothing can be done and it will only get worse- maybe they will actually support an application.

 

[toplaygames202212]

R

Uncurable diseases that cause tremendous suffering are the number one reason why society needs a legal, humane option to end life.

True, for me also the reason is same

 

[FuneralCry]

It's truly so dreadful to me how people suffer so much in this existence all through no fault of their own, I'm sorry you had to suffer, existence is just too cruel. But anyway I wish you all the best.

 

[uglyugly]

A close family member had ALS, which is 100% fatal 100% of the time. It is a horrible disease and does horrible things to a body before killing the person. That is why ctb should be safe, legal and painless as possible for people who are going to die an agonizing death. It's wrong and inhumane to make them suffer. My loved one did not ctb but I believe another family member with the same disease did - I believe once they found they had it they essentially starved themselves to death.

I am so sorry this same type of thing has happened to you.

 

[sadespair]

Yep, can kind of relate. I actually have two and they're are both very rare and invisible disabilities. So Ill never find any help. They all think im crazy because its not visible to the eye and unheard of.
I think so much what i did to deserve this. I cant. Ill was just unfortunate. Its just life. :(

 

[mckf]

I can relate, I'm in my late 20's have an incurable progressive invisible disease. Most doctors are unaware of the condition and there are no treatments to cure it. I've tried so hard to keep up with society and build a normal life and did not expect to have this. It crushes my hopes and dreams and renders me in a body and fate of a 80-year old, whilst being in my 20's. People can't see its impact if they look with their eyes, so they blame me for being lazy and giving excuses, even my own family. Its genetic, so its a 50/50 chance to pass it onto my children.

I can't be with the love of my life as I want her to be happy and not to suffer with me. I feel like I'm hanging off the edge of the cliff and I don't want to pull her down with me. I want her to experience life to the fullest, chase her dreams and start a family that she always dreamed of.

I can't work and chase my dreams of having a successful career and my interests. I can't do any hobbies of my choice with this broken body or travel. I can't eat the food I want to eat due to gastro symptoms. I can't keep in touch with my friends as they are progressing in different stages in their lives.

I am stuck in a prison of my own body in a society that has to keep moving. There is no hope or meaning to continue to try. Worst part of it all is, unless it is a terminal illness, medically assisted dying is not available for me.

If you have support and people willing to be by your side, there is meaning to live on and to keep trying. But I don't and I will CTB soon.