Innereye
Know thy self
- Jan 18, 2020
- 300
tested positive for Gastroparesis I don't want to die but now my suffering is probably never gonna end. Im going to try last till the pain gets too bad to handle.
I'm sorry for your suffering and pain from Gastroparesis. I hope you are able to manage the symptoms and live like you want to.
Crushed_Innocence
Hungry Ghost
- Oct 16, 2019
- 423
Hi, I have SIBO and had several episodes of gastroperisis, thats a fucked up diagnosis right there, most def cbt material. Im so sorry, digestive diseases are horrendous especially if you live in a developed country where food and eating out is abundant it's intolerable...
Im.here for you if u need to chat.. good luck
Im.here for you if u need to chat.. good luck
Zoltiel
We're asleep in life's waiting room
- Jan 7, 2020
- 162
Been suffering from a mystery digestive illness for almost 8 years. Chronic illness can really affect your relationships with people, I couldn't really drink or eat out with everyone. It's a real bummer. I hope they have misdiagnosed you.
BlackDragonof1989
Mage
- Jul 12, 2018
- 526
Thereisnothing
Enlightened
- Jan 4, 2020
- 1,604
I have severe Gastroparesis and in UK there is next to little help at all for the horrible and devastating condition. I only have 10% function of my stomach/insides and survive on 2 foods and even that is agony, even water is to get down. I also have many other physical illnesses and life is very very hard, then sadness and grief on top of that.............life/existence can be unbareable. I am sad you have Gastro-P as its one the most understated and ignored conditions out there, in my opinion unless you happen to live in a country where there are specialist Doctors who actually dedicate their entire working life to this type of thing. Here if you ever need to talk.
That is a terrible diagnosis to receiv. I'm sorry you're going through this. I hope you have doctors that can help manage the conditio.
Broken Chimera
The abyss also gazes into you
- May 27, 2019
- 972
Sensei
剣道家
- Nov 4, 2019
- 6,336
Innereye
Know thy self
- Jan 18, 2020
- 300
Causes intense constipation which is especially dangerous with this.
Also its not exactly the kind of pain you are familiar with, its more like incredibly bad discomfort and bloating.
k75
L'appel du Vide
- Jun 27, 2019
- 2,546
So gastroparesis is literally a paralysed stomach, so food stays in your stomach too long and causes severe pain.
It hurts so much, you'd need narcotics and such, but one of their bad side effects is slowing the stomach down more. Which leads to more food being left in the stomach, which leads to more pain, which leads to needing more painkillers...
It's kind of a hell spiral.
I just got rediagnosed with it myself, yesterday. Devastating.
mathieu
Enlightened
- Jun 5, 2019
- 1,090
Sensei
剣道家
- Nov 4, 2019
- 6,336
I see. Please excuse another potentially stupid question, but are there any alternative forms of treatment?
Innereye
Know thy self
- Jan 18, 2020
- 300
k75
L'appel du Vide
- Jun 27, 2019
- 2,546
There are some drugs, like Meto. Sometimes surgery. Sometimes feeding tubes. The last time I had it, it just randomly went away. But I spent about 8 months on TPN, which is nutrition through IV first.
There's not real cure, though.
k75
L'appel du Vide
- Jun 27, 2019
- 2,546
Actually, yes. I don't know how common it is, but I've heard of people getting abdominal pacemakers implanted for this. One of the causes is damage to the vagus nerve, and they found it helpful to stimulate. But I think that's one of the last resort options.
Innereye
Know thy self
- Jan 18, 2020
- 300
Its a $40000 procedure don't know how that can be realistic
k75
L'appel du Vide
- Jun 27, 2019
- 2,546
True, true. I completely agree. Some doctors don't see it that way, though. Like, mine just told me he didn't want to try medication because of side effects, so I should just watch my diet and screw the pain. Ridiculous. I'm going over his head.
I'm not anti-doctor at all, but I've been severely let down. Asshat is the kindest word I can come up with for this guy.
sucks ass when you could've had a good future ahead of you and you want to keep living and striving for a better life, but the pain took that all away from you and is essentially forcing you to end it early or suffer
fuck pain
fuck pain
Sensei
剣道家
- Nov 4, 2019
- 6,336
Innereye
Know thy self
- Jan 18, 2020
- 300
Its not like it covers everything something like that you might get a $500 rebate or something. It covers shit like GP appointments and emergency surgeries.
Sensei
剣道家
- Nov 4, 2019
- 6,336
That's too bad. I have to admit that $40,000 is much money and not easy to obtain. I guess a loan is out of the question?
Mr2005
Don't shoot the messenger, give me the gun
- Sep 25, 2018
- 3,622
It's shit isn't it? I don't want to die either I want to be happy but that would take a miracle. I have no hope left whatsoever. Not for me anyway and not much for the world which saddens me greatly
AlreadyGone
Taking it day by day
- Jan 11, 2020
- 917
Lostandfound7
Just waiting....
- Jan 21, 2020
- 995
So sorry to hear of ur horrible pain..I can't imagine..wish I had some other options (health ins,etc) to give u..my thoughts n prayers r with u..sending love 
yetme
Arcanist
- Oct 20, 2019
- 486
Hey there! I'm going to start dry fasting in a few days. I'm fighting another disease and traditional medicine has failed me (in fact it made my condition much worse), so I have no options left. If you wanna join me, let me know. it's a pretty tought method. It's gonna be kill yourself or heal yourself kinda thing.
Dry fasting can restart your digestion system
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TAW122
Emissary of the right to die.
- Aug 30, 2018
- 6,819
I'm sorry to hear about your chronic condition and I hope you are able to find peace in the future.
