Story So very tired

[Deleted member 1465]

I see so many sad stories. I thought I'd update mine or at least describe my situation. It's almost funny.

My bowel has ceased working and is now impacted. A&E refused to treat it. Gp just gives me stuff that doesn't work. Seen countless specialist's to no avail. The pain is hideous and my bowel will soon rupture.

I am starving to death because I can barely bring myself to eat as it causes me such pain. The hunger makes me eat the scraps my brother brings me tho it makes the pain worse.

I'm dehydrated as I'm peeing all the time upto every 15min at night. I'd say I get no sleep but my body shuts me down from exhaustion and I wake up soon after in massive pain needing to pee. If I sleep too long my bladder threatens to burst. I have now had this awful sleep pattern for over two years.

I also have bladder stones.

To cap it all off my brother and sister forced me to sign power of attorney and forced me out of my home. They each owned a third and wanted the money. I'm now in a shitty dark cold house with banging plumbing. I miss my home so much.

I don't have the strength to leave the house or shower. I can barely use the stairs. And the mental health team want me on antipsychotics! But my symptoms appear to stem from an intolerance to carbohydrates and possible damage from historical alcoholism.

I look back on the days before this illness when I just had depression to deal with. As if that wasn't enough!

 

[JimFord99]

Sorry to read your painful life. Can't see the 'almost funny' side of it. Are you a celiac if I may ask?

 

[Deleted member 1465]

His Jim no I was tested for celiac. It's only funny in a tragic way. Kind of like if someone else described the situation I would believe it.

 

[JimFord99]

Well, I strongly would suggest n allergy test and celiac test. Your pain may vey well be down to a food allergy. Just a thought.

 

[gingerplum]

I kept waiting for the "almost funny" part, too, and it just got bleaker and more distressing. I'm truly sorry for your health issues-- it sounds like a nightmarish struggle.

If you're really impacted, you need to manage that yourself. PM me and I can walk you thru it if you like.

 

[Wayfaerer]

How could your family do that to you?! Have you told the doctors that they aren't helping?? I hate doctors.

 

[Deleted member 1465]

My brother and sister have done their best they really thought theywere helping. They had just had enough and wouldn't listen to me. It's hard to get anyone to listen when you are an anxious wreck. Sad thing is I could see all this coming but couldn't steer them from it. My cognition isn't impaired just my ability to function. Frustrating!