J

Jolene40

Specialist
Oct 6, 2018
370
I'm so desperate I can't cope. I have loads of illnesses one is a neurological problem. My sensory nerves have been under attack a long time and now it is severe through my neck face and head and ears. I am suffering severe pressure build up and pain like no other and it is inpacting my brain/ thinking/ cognitive function sevetely. I also have blood pouring out my backside as my body gets constantly attacked by my illnesses ( sorry for tmi). My spine head brain and every part of me feel like I'm being eaten alive and burn like acid. I have no answers and have to figure it out myself. I have an awful disease called sjogrens which attacks your nervous system. There's no help no treatment and everything gets put down to anxiety. It truly is not that. I have anxiety from what's happening to me.
I'm now losing my son. He will have to live with his father. He is having panic attacks, asking me when I'm going to die and I am so f***ing angry and desperate I could scream. All I want is to be his mum and be with him without this happening to me. I am losing sensation throughout my whole body and head and it is like torture. I can't even eat normal food Anymore so am stuck on i.v nutrition forever. That's nothing and I could cope with that. I've been through so much pain physically and emotionally it is killing me. I am hanging on for dear life for my son. How can I mess him up even more by dying by suicide. I've realised my illnesses will simply torture me to death rather than kill me naturally. I can hardly function wnd just cry and cry or sleep. I had severe sepsis I wish had killed me but it hasn't. I wish so much it had finished me off. There is no hope and I am stuck in abject torture. I've found myself getting confused, feeling so sedated, like I've had a stroke. Yet I have no answers. One neurologist said I had body dysmorphia despite having 5 serious illnesses diagnosed including neuropathy! I wanted to strangle her with my I.V feeding tube and really could of done that.
I want this shit existence over with. I wish I had terminal cancer, it would be easier. I want to die just to be released from my suffering. I wish there was a way it could look like an accident. I'm dragging myself round when I can walk like a zombie wearing a neck collar and screaming inside from my pain, confusion and agony. Why on earth have I got to be tortured like this? I will just leave a legacy of oh she was depressed because I've seen multiple stories where the severity of illness was ignored and everything put down to ' feeling low. ' ( I know depression is as equally horrific btw)
I wish I could make it look like an accident to spare my poor son. Is there any way. I'm never going to get to Dignitas. I will never afford it. I would have to go too soon. I'm trying to hang on until the bitter end for my boy
Can someone please advise me ref setting up a bitcoin account. My cognition is so bad I can hardly do anything at all. It's not laziness. If you could p.m me I'd appreciate it alot
 
Last edited:
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omoidarui

omoidarui

Ƹ̵̡Ӝ̵̨̄Ʒ
Apr 30, 2019
993
Unsure whether this would be applicable, but have you looked into intermittent/water fasting? Many sufferers of chronic pain have benefitted from this, including sufferers of autoimmune diseases (not necessarily Sjogren's though).

I'm so sorry you're having to go through this.
 
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FrankieMay

FrankieMay

Member
May 21, 2019
37
Im so sorry for your suffering, I can't imagine how hard it is
Unfortunately I don't know how to use bitcoin but check out the resources section and hopefully you can find an option that suits you
 
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J

Jolene40

Specialist
Oct 6, 2018
370
Unsure whether this would be applicable, but have you looked into intermittent/water fasting? Many sufferers of chronic pain have benefitted from this, including sufferers of autoimmune diseases (not necessarily Sjogren's though).

I'm so sorry you're having to go through this.

I've tried it all. I starved for a week due to being so unwell. My body is intent on complete self destruction.
 
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GeorgeJL

GeorgeJL

Enlightened
Mar 7, 2019
1,621
You should try low dose naltrexalone or LDN. It's good for nerve pain and it's got very low side effects.
 
J

Jolene40

Specialist
Oct 6, 2018
370
You should try low dose naltrexalone or LDN. It's good for nerve pain and it's got very low side effects.

Thanks George. I tried it twice and it didn't help. It made me feel worse. It could have been a coincidence. I'm also on opioid pain meds and can't mix the two
 
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lululoo

lululoo

Mage
Dec 15, 2018
558
I'm so sorry, Jolene. For your suffering and the terrible position it puts you in.
I'm angry for you that your doctors are offering you condemnation, not help.
I hope you can hang on for your son. If you can't, is it a given that he will know it is suicide? Can't he just be told that you died of your illnesses?
 
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J

Jolene40

Specialist
Oct 6, 2018
370
I'm so sorry, Jolene. For your suffering and the terrible position it puts you in.
I'm angry for you that your doctors are offering you condemnation, not help.
I hope you can hang on for your son. If you can't, is it a given that he will know it is suicide? Can't he just be told that you died of your illnesses?
I fear that information always gets out in the end. News stories or overhearing whispers. I would want him to understand how ill I was. I'm so angry I'm in this position. I'm hanging on for dear life but I can't even look after myself. I have nowhere I could go if I ever left hospital and my mum was no longer here.
It sometimes does not matter the reason, suicide is suicide and the stigma is always there
 
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Soul

Soul

gate gate paragate parasamgate bodhi svaha
Apr 12, 2019
4,704
I hate that you're suffering so, dear kind and beautiful @Jolene40. It may be that "the stigma is always there" for some backward types utterly lacking in both compassion and imagination. But what's important is that your son understands - if not today, then sometime soon - that you never want to leave him but the pain of your illnesses took you away.

I wish I could do something for you. (((Hugs)))
 
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J

Jolene40

Specialist
Oct 6, 2018
370
I hate that you're suffering so, dear kind and beautiful @Jolene40. It may be that "the stigma is always there" for some backward types utterly lacking in both compassion and imagination. But what's important is that your son understands - if not today, then sometime soon - that you never want to leave him but the pain of your illnesses took you away.

I wish I could do something for you. (((Hugs)))

You always say the kindest things. You are such a wonderful person. Xxx
 
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dandan

dandan

One more attempt on life.
Feb 18, 2019
1,298
You need Bitcoin help? It's really easier done that said, localbitcoins.com it's the easier way to obtain Bitcoin, if you have payment method you can pay them , but I don't want to get involved because I've tried helping other people only to have to take too much time. Try making signing up at localbitcoins.com first


Next step pay the seller
Then send Bitcoin to whomever you wish
And it's done

Localbitcoin.com is more expensive than coinbase.com but you don't need to much hassle to open an account and buy Bitcoin
 
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1

1234dave

Specialist
Oct 5, 2018
369
I'm so sorry, I'm suffering immense pain similar to yours. I hope you find peace.
 
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J

Jolene40

Specialist
Oct 6, 2018
370
You need Bitcoin help? It's really easier done that said, localbitcoins.com it's the easier way to obtain Bitcoin, if you have payment method you can pay them , but I don't want to get involved because I've tried helping other people only to have to take too much time. Try making signing up at localbitcoins.com first


Next step pay the seller
Then send Bitcoin to whomever you wish
And it's done

Localbitcoin.com is more expensive than coinbase.com but you don't need to much hassle to open an account and buy Bitcoin

Thank you for your help on this.
I'm so sorry, I'm suffering immense pain similar to yours. I hope you find peace.

Dave were you the guy with cancer and the bad leg?
Pain destroys you.
 
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Going Home

Going Home

Specialist
Sep 21, 2018
357
I'm so desperate I can't cope. I have loads of illnesses one is a neurological problem. My sensory nerves have been under attack a long time and now it is severe through my neck face and head and ears. I am suffering severe pressure build up and pain like no other and it is inpacting my brain/ thinking/ cognitive function sevetely. I also have blood pouring out my backside as my body gets constantly attacked by my illnesses ( sorry for tmi). My spine head brain and every part of me feel like I'm being eaten alive and burn like acid. I have no answers and have to figure it out myself. I have an awful disease called sjogrens which attacks your nervous system. There's no help no treatment and everything gets put down to anxiety. It truly is not that. I have anxiety from what's happening to me.
I'm now losing my son. He will have to live with his father. He is having panic attacks, asking me when I'm going to die and I am so f***ing angry and desperate I could scream. All I want is to be his mum and be with him without this happening to me. I am losing sensation throughout my whole body and head and it is like torture. I can't even eat normal food Anymore so am stuck on i.v nutrition forever. That's nothing and I could cope with that. I've been through so much pain physically and emotionally it is killing me. I am hanging on for dear life for my son. How can I mess him up even more by dying by suicide. I've realised my illnesses will simply torture me to death rather than kill me naturally. I can hardly function wnd just cry and cry or sleep. I had severe sepsis I wish had killed me but it hasn't. I wish so much it had finished me off. There is no hope and I am stuck in abject torture. I've found myself getting confused, feeling so sedated, like I've had a stroke. Yet I have no answers. One neurologist said I had body dysmorphia despite having 5 serious illnesses diagnosed including neuropathy! I wanted to strangle her with my I.V feeding tube and really could of done that.
I want this shit existence over with. I wish I had terminal cancer, it would be easier. I want to die just to be released from my suffering. I wish there was a way it could look like an accident. I'm dragging myself round when I can walk like a zombie wearing a neck collar and screaming inside from my pain, confusion and agony. Why on earth have I got to be tortured like this? I will just leave a legacy of oh she was depressed because I've seen multiple stories where the severity of illness was ignored and everything put down to ' feeling low. ' ( I know depression is as equally horrific btw)
I wish I could make it look like an accident to spare my poor son. Is there any way. I'm never going to get to Dignitas. I will never afford it. I would have to go too soon. I'm trying to hang on until the bitter end for my boy
Can someone please advise me ref setting up a bitcoin account. My cognition is so bad I can hardly do anything at all. It's not laziness. If you could p.m me I'd appreciate it alot
I'm sorry for your suffering. I hope there is something that will help you to feel better.
 
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1

1234dave

Specialist
Oct 5, 2018
369
Thank you for your help on this.


Dave were you the guy with cancer and the bad leg?
Pain destroys you.
No I've got 50 med induced symptoms, burning akathisia, dp Dr depression
 
Not_Quite_Dead_Yet

Not_Quite_Dead_Yet

Student
Oct 27, 2018
134
Your situation is heart-breaking and I only wish I had words to comfort you. As for as the BitCoin thing, my cognition is still okay (unlike everything else) and I could not make heads or tails of it. If the BitCoin is for N. from Mexico, I sent cash by mail and it worked out fine. However you can manage to handle things, I wish you the best.
 
A

AcornUnderground

Mage
Feb 28, 2020
505
You always say the kindest things. You are such a wonderful person. Xxx
I know this is an old post, but I wanted to tell you that I am in the EXACT situation, a young mother with Sjogrens who is losing her 2 kids that will never understand why I could not stay alive in this torture and pain. No one understands. It is a terrible, horrible disease that has stolen my entire life. I am so sorry that this happened to both of us.
 
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