Help Physical disease sufferers - How to accept it and transition onto CTB?

[Cryptonite]

Hi everybody!

I'm looking for some tips on how to accept my condition and move onto preparing CTB.

The reason why it's so hard for me: I was severely mentally ill since I was a small child, got cured recently after so many years and only two months after I was struck hard by a totally unrelated and incurable spinal disease with no hope of recovery.

The super quick transition from sick to healthy to sick again was so unbelievable that I'm still grasping what happened, still holding onto some completely false but persistent hope that "surely I will get to live the life that I've always wanted". I will not.

Despite my efforts, I still cannot contain all of this and therefore it's difficult for me to confidently move to the CTB phase.

Do you have any possible suggestions how to deal with this? Thank you

 

[partialhang]

It's really hard. I suffer from MS and am trying really hard to go through with my ctb :(

 

[Cryptonite]

It's really hard. I suffer from MS and am trying really hard to go through with my ctb :(

I can see you've just joined the sub, so don't worry, get all the important info here and you will gradually get there :-) This is the most useful & resourceful place you can find anywhere, not even dark web can beat this

 

[luke_skywalker]

what is the disease you are having?

 

[partialhang]

I can see you've just joined the sub, so don't worry, get all the important info here and you will gradually get there :-) This is the most useful & resourceful place you can find anywhere, not even dark web can beat this

Thank you very much. A friend recommended this site to me. Seems very informative for sure

 

[Cryptonite]

what is the disease you are having?

It's called Scheuermann's disease, it is an illness that, in short, basically destroys your spine when you are between 13 and 18 years old. At first, it is sometimes silent and doesn't produce many symptoms. Also, doctors have very little knowledge about this disease and to find it and cure it you need to go a very good specialist, but until you find them, it's usually too late and you have to live with progressive levels of pain that make life unbearable. In my case, I was midiagnosed by two doctors in childhood who thought "it was just some muscle soreness". I will be suing one of them now. It is a genetic illness.

Some types of this disease can be successfuly cured by surgery, but my type is so extensive that it becomes impossible.

It's really hard. I suffer from MS and am trying really hard to go through with my ctb :(

By the way, how old are you and when did you find out? Is it inherited from another family member?