I don't know when.

[placeholder]

I don't know when to die.

I got a progressive disease called congenital muscular dystrophy when I was born. There is no cure available now. I don't know whether or not there is cure in the future and whether I can afford it. The symptom is wasting of muscle along the time. I don't know when will stop or get better. Some of patients end up have to eat with nasogastric tube and breath with machine.

I don't when is the time that I am ready to die, I am fear. And legend has it that those who commit suicide may be punished by diety.

Too early, I am not prepared. And survive instinct can kick in.

Too late, it may end up that I cannot even do it myself due to deterioration of my body.

What can I do now?

 

[Hopeindeath!]

I am so sorry you are suffering from this illness, and I wish I knew how to help you. I just want to give you a hug,

 

[theguineapigking]

I'm so sorry. Illnesses in this world can be so bad. I have bad medical issues too,although not nearly bad in the same sense as yours. I have mitochondrial disease causing extreme fatigue,brain fog,migraines,etc. I work 15 hours weekly and don't drive. So I can understand feeling ill. How bad are you right now? Do you have family/siblings or friends that would help you out if it came to it? Hopefully you have someone who would be there for you right now even.


I'm here if you need to talk to someone else that knows what it's like to be really unwell.(I'm not comparing myself to you,or saying I'm worse off.) I wish you the best.

 

[placeholder]

I am so sorry you are suffering from this illness, and I wish I knew how to help you. I just want to give you a hug,

Thanks for your sympathy.

Do you have family/siblings or friends that would help you out if it came to it?

They oppose suicide.

 

[theguineapigking]

Thanks for your sympathy.


They oppose suicide.

Sorry,I didn't mean help you with suicide. I meant help you in life.

 

[placeholder]

Sorry,I didn't mean help you with suicide. I meant help you in life.

Sorry for misunderstanding.

 

[Soul]

Hello @placeholder. I have a progressive terminal illness too, and intend to kill myself when the disease encroaches too much on my ability to enjoy things. It's a bit hard to assess sometimes but I'm not ready yet; my cats make sure to comfort & amuse me every day. On the other hand just this week I realised I can't cook dinner anymore, and I quite like cooking. 8[

Do you have some kind of criterion like that to help you decide when you've had enough? When I'm no longer enjoying anything ... when my cats are gone ... when I need help doing X ... ?

 

[theguineapigking]

Sorry for misunderstanding.

Hey. No problem at all.

I just know it's always nice to have people that you can count on in your life.

I wish you peace and happiness. Like I said,I'm here for you :)

 

[placeholder]

Do you have some kind of criterion like that to help you decide when you've had enough?

No, Since the only reason that I still alive is religion. I don't know whether or not I will get punishment from diety if I kill myself, if not I will simply do it. I am so afraid.

On the other hand just this week I realised I can't cook dinner anymore, and I quite like cooking.

It is really bad, I can understand that it will be so frustrated for being affected to do something you like. The disease affect me to do what I like too. I know there is no words can soothe you. I am really sorry for what you have gone through. Do you want to talk? If you want to talk about it, I am willing to listen.

I wish you peace and happiness. Like I said,I'm here for you :)

Thanks.

 

[Soul]

No, Since the only reason that I still alive is religion. I don't know whether or not I will get punishment from diety if not I will simply kill myself. I am so afraid.



It is really bad, I can understand that it will be so frustrated for being affected to do something you like. The disease affect me to do what I like too. I know there is no words can soothe you. I am really sorry for what you have gone through. Do you want to talk? If you want to talk about it, I am willing to listen.

Thank you for your eloquent empathy, @placeholder. I'm sorry you're also watching your life get more and more limited.

My faith (which is homemade) doesn't allow a deity to punish us for suffering — especially not endless suffering, since we're merely finite beings who can't deserve that. I understand that your religion has a strong stance against suicide, but what about medically-assisted death with dignity, or at least hospice situations? Is there anyone in your religious community you can talk with about mercy towards suffering?

 

[Esc9434]

I think you could legally qualify for assisted suicide.

About being punished for suicide... I dunno.

 

[S1mpleme]

Is it something Stephen Hawking had?

 

[placeholder]

what about medically-assisted death

It is not legal in my country.

I think you could legally qualify for assisted suicide.

It is not legal in my country.

Is it something Stephen Hawking had?

No. According to Wikipedia he got Amyotrophic lateral sclerosis while I get congenital muscular dystrophy. They are different disease.