Help Does anyone here have nerve damage?

[mediocre]

I suspect I have it in my hands, feet, legs and head. But I don't know who to see to get diagnosed for it. I'm looking for advice.

If anyone here has nerve damage how did you know you had it, what did it feel like and how did you get diagnosed??

I don't know how I got it. I've never suffered any accidents or trauma, no broken bones. I suffer from burning aching abdominal pain as well and the two could possibly be related but don't know.

It began with a pinch in my toe about 4 years ago then it spread to all my toes on both feet, legs, hands, fingers and now head...

 

[Astral316]

I damaged my cauda equina in a falling accident where I fractured my sacrum/lower spine. Now, it feels like numbness and pins/needles around my anus, back of legs, and foot.

Get your PCP to refer you to a neurologist.

 

[clandestine]

Peripheral neuropathy here
you'd wanna see a neurologist
for me it feels like pins and needles, burning sensations, numbness, bad balance & muscle weakness
It also depends on what nerves are damaged to see what symptoms you get

 

[SuicidalSymphonies]

Diabetic neuropathy in my palms and soles.

 

[Quax]

polyneuropathy Is what I have in my feet... it is a constant burning pain that is quite intense. It was diagnosed by a podiatrist and neurologist.

 

[mediocre]

I damaged my cauda equina in a falling accident where I fractured my sacrum/lower spine. Now, it feels like numbness and pins/needles around my anus, back of legs, and foot.

Get your PCP to refer you to a neurologist.

Ouch! That sounds like it was extremely painful I'm so sorry. Thank you for the suggestion about the neurologist I suspected I needed to see one but wasn't 100% sure. Doctors here are useless and they don't suggest such things have to research myself.

Do you get treatment to take the numbness pins/needles away?

 

[Final Escape]

I suspect I have it in my hands, feet, legs and head. But I don't know who to see to get diagnosed for it. I'm looking for advice.

If anyone here has nerve damage how did you know you had it, what did it feel like and how did you get diagnosed??

Sounds terrible :( No clue

 

[Astral316]

Ouch! That sounds like it was extremely painful I'm so sorry. Thank you for the suggestion about the neurologist I suspected I needed to see one but wasn't 100% sure. Doctors here are useless and they don't suggest such things have to research myself.

Do you get treatment to take the numbness pins/needles away?

No, I got so used to it I only notice if the subject comes up. Plus I hate dealing with doctors.

 

[mediocre]

Peripheral neuropathy here
you'd wanna see a neurologist
for me it feels like pins and needles, burning sensations, numbness, bad balance & muscle weakness
It also depends on what nerves are damaged to see what symptoms you get

That's exactly what I have too thank you for the tip. I have had permanent numb toes and fingers for about 4 years with prickly pins/needles sensations and burning, sharp stabbing pains, tingling, weak legs, achy knees, tingling all over, pins/needles in head etc

Did you get referred to one through your GP?

Diabetic neuropathy in my palms and soles.

Is it like a burning pins/needles feeling or prickly sensations, tingling etc?

polyneuropathy Is what I have in my feet... it is a constant burning pain that is quite intense. It was diagnosed by a podiatrist and neurologist.

It is quite intense in my feet too! Walking makes it worse by putting pressure on it to the point that it burns so much I have to use ice cubes to cool it down. The only thing I got for my feet was special insoles to wear but they don't do much to help.

No, I got so used to it I only notice if the subject comes up. Plus I hate dealing with doctors.

I can relate they are so unhelpful! Does that mean your numbness pins/needles are permanent?

 

[Deleted member 1465]

It does sound like peripheral neuropathy. Its usually caused by diabetes or by alcohol. I have it in my feet and legs it actually comes and goes and is worse over winter.

 

[mediocre]

It does sound like peripheral neuropathy. Its usually caused by diabetes or by alcohol. I have it in my feet and legs it actually comes and goes and is worse over winter.

I have always thought it could be peripheral neuropathy but I have continually tested negative for diabetes and I've never had an alcoholic drink in my life. Never experienced any accidents, major surgery or any trauma either. That's why I'm so confused as to how I got it.

 

[Quax]

I was told that the causes for neuropathies can be quite unspecific. Like in my case there was no physical cause found. I asked wether it could be mentally induced..... the answer was.... possible.

 

[scrtgrl]

I have pelvic neuralgia. This has actually helped me immensely: https://tedsbrainscience.com/.

I hope you can find some relief to your pain

 

[mediocre]

I have pelvic neuralgia. This has actually helped me immensely: https://tedsbrainscience.com/.

I hope you can find some relief to your pain

Thank you so much for the link. I have tried creams before and they didn't really work but I might check this out when I read more about it.

and thank you for the well wishes!! For your pelvic neuralgia did you get diagnosed by a nuerologist? Did they give you anything for the pain?

 

[Nem]

I have nerve damage, caused by a med reaction. Feels like needles are being inserted into my feet
Peace/hugs

 

[mediocre]

I have nerve damage, caused by a med reaction. Feels like needles are being inserted into my feet
Peace/hugs

I have it in my feet too mostly in my toes. It can be difficult to walk long distances.
Do you have any trouble walking/getting about?

 

[NoDream]

Try Gabapentin or Lyrica, it really helps but is addictive so you have to take larger and larger doses. I was on 3600 mg Gaba a day until i got side effects, on the other hand i got good help for five years and it was worth the abstinens afterwards.

 

[Nem]

I have it in my feet too mostly in my toes. It can be difficult to walk long distances.
Do you have any trouble walking/getting about?

Sorry to hear, I can walk. It hurts more when lying down
Peace/hugs

 

[Bruceleelives1969]

diabetic PN in my hands and feet! Quite terrible!!

 

[APharmaDestroyedLife]

I suspect I have it in my hands, feet, legs and head. But I don't know who to see to get diagnosed for it. I'm looking for advice.

If anyone here has nerve damage how did you know you had it, what did it feel like and how did you get diagnosed??

I don't know how I got it. I've never suffered any accidents or trauma, no broken bones. I suffer from burning aching abdominal pain as well and the two could possibly be related but don't know.

It began with a pinch in my toe about 4 years ago then it spread to all my toes on both feet, legs, hands, fingers and now head...

A chiropractor and some acupuncture might be the best route. At least try it, a neurologist will likely put you on some nasty drug like gabapentin or lyrica and down the rabbit hole you go. Please try something natural first.

 

[barty1013]

I suspect I have it in my hands, feet, legs and head. But I don't know who to see to get diagnosed for it. I'm looking for advice.

If anyone here has nerve damage how did you know you had it, what did it feel like and how did you get diagnosed??

I don't know how I got it. I've never suffered any accidents or trauma, no broken bones. I suffer from burning aching abdominal pain as well and the two could possibly be related but don't know.

It began with a pinch in my toe about 4 years ago then it spread to all my toes on both feet, legs, hands, fingers and now head...

Not sure what yours is from, I have the same symptoms you have....I have cervical stenosis and radiculopathy...severe arthritis and deterioration of my bones in my neck...but stenosis can be anywhere down your spine including the neck. I would suggest you get someone to order for you an MRI of your entire spine, at least x-rays.

 

[k75]

Well, for me it began when I had cancer and did chemo. I was actually in a clinical trial that was studying chemo induced neuropathy. I was one of the unlucky ones who got it in my hands and feet, but there was no follow up treatment for it. They thought it might go away, but it didn't.

Several years later it got worse, probably because I'm diabetic.

Right now I'm especially having trouble with my feet. Numbness and tingly burning. It used to just be my toes, but now it's crawling up my shins.

 

[Farmmaa]

Not sure what yours is from, I have the same symptoms you have....I have cervical stenosis and radiculopathy...severe arthritis and deterioration of my bones in my neck...but stenosis can be anywhere down your spine including the neck. I would suggest you get someone to order for you an MRI of your entire spine, at least x-rays.

This answer exactly.
It took a ridiculous number of trips to the ER and Dr's dismissing me before I finally got an MRI. Was rushed to the hospital for emergency surgery as soon as they saw the images.
My nerve damage is permanent... just too much damage was done.
My cervical spine continues to degenerate.

If you look at my MRI - you will see just how compressed my spinal cord was at C-1.
Cause - they have no idea. No accidents, no major trauma. Possible connection to a horrible chiropractor i went to for years.

 

[barty1013]

This answer exactly.
It took a ridiculous number of trips to the ER and Dr's dismissing me before I finally got an MRI. Was rushed to the hospital for emergency surgery as soon as they saw the images.
My nerve damage is permanent... just too much damage was done.
My cervical spine continues to degenerate.

If you look at my MRI - you will see just how compressed my spinal cord was at C-1.
Cause - they have no idea. No accidents, no major trauma. Possible connection to a horrible chiropractor i went to for years.View attachment 23639

Oh my friend. I am so sorry. And it's C1, which is so severe. Mine is bad from 3 to 7...I'm a ticking time bomb. Western medicine is shit and they don't listen.

 

[Farmmaa]

Oh my friend. I am so sorry. And it's C1, which is so severe. Mine is bad from 3 to 7...I'm a ticking time bomb. Western medicine is shit and they don't listen.

Thanks... it truly sucks. Besides migraines, I was a pretty healthy , fit person before this happened.
I have pins in C-1 and C-2 and rods down to C-5... as well as bone grafts.

The damage has affected every system in my body... because... yeh, C-1.

The first ER Dr I saw diagnosed me with frickin Carpel Tunnel !!!!!!!!

 

[barty1013]

Thanks... it truly sucks. Besides migraines, I was a pretty healthy , fit person before this happened.
I have pins in C-1 and C-2 and rods down to C-5... as well as bone grafts.

The damage has affected every system in my body... because... yeh, C-1.

The first ER Dr I saw diagnosed me with frickin Carpel Tunnel !!!!!!!!

That infuriates me. I had a buzzing on my scalp my first er visit, they looked for lice in my hair and said basically I was crazy. They are so arrogant. The less they know, the more they think they do. It sounds like you have had a successful surgery? Can you walk? God bless you. With me, they say, "Come back when you can't walk straight" How's that?

 

[Farmmaa]

That infuriates me. I had a buzzing on my scalp my first er visit, they looked for lice in my hair and said basically I was crazy. They are so arrogant. The less they know, the more they think they do. It sounds like you have had a successful surgery? Can you walk? God bless you. With me, they say, "Come back when you can't walk straight" How's that?

The surgery was successful, as in, I'm alive.
I was lucky, I suppose, that my symptoms started from the top down, so my feet had just started to go numb.
I can walk fine... but, strangely enough, I can not run or jump. There's nothing wrong with my legs, just the signal going to my legs from my brain.
I also can not stand on one leg an balance... and fall over if I close my eyes.

I am slowly but surely losing function in my hands and have constant squeezing pressure and pain around my rib cage.

I don't even go to Drs for my symptoms any more... there's no point.

 

[Soul]

The cause of my polyneuropathy was never identified; they said it was probably a virus. I noticed it when one of my feet/ankles stopped working right, then I got tremors in my hands and my nose went numb (ffs!). I was hospitalised, went through lots of nasty tests and painful injections, and it's still a mystery. It comes and goes as it pleases.

 

[barty1013]

The cause of my polyneuropathy was never identified; they said it was probably a virus. I noticed it when one of my feet/ankles stopped working right, then I got tremors in my hands and my nose went numb (ffs!). I was hospitalised, went through lots of nasty tests and painful injections, and it's still a mystery. It comes and goes as it pleases.

Maybe check for Lyme?

 

[Soul]

Maybe check for Lyme?

Thanks for the idea - from what I've seen of Lyme disease, I think it would have brought me way lower by now. That one's a genuine bugger. Mine's more of a creeping inconvenience (well, when the hands stay steady anyway).