Chronic pain in the UK

[thisgoesupto11]

The reason I am thinking of ctb is almost solely due to my circumstances. I am in chronic pain 24/7 in my neck, back and legs. I struggle to walk, suffer chronic migraines and have to rest on the couch for most of the time. I am now going to be reliant on our government for any money to live on and I am dreading it.

The DWP (dept of work and pensions) who decide whether we get benefits or not have been called out recently in an article that truly shames them. A list of 20 suicides read out in the house of commons, committed mostly because they failed the fit to work test.

DWP shamed in parliament as MP breaks down reading list of suicide victims

Debbie Abrahams struggled to hold back tears as she read more than 20 names of those who had died after experiencing problems with the benefits system.

metro.co.uk

Anyone else have chronic pain and is thinking of ctb because of it?

I have a family so it really is the last resort for me, but it's daily torture.

 

[toska]

The reason I am thinking of ctb is almost solely due to my circumstances. I am in chronic pain 24/7 in my neck, back and legs. I struggle to walk, suffer chronic migraines and have to rest on the couch for most of the time. I am now going to be reliant on our government for any money to live on and I am dreading it.

The DWP (dept of work and pensions) who decide whether we get benefits or not have been called out recently in an article that truly shames them. A list of 20 suicides read out in the house of commons, committed mostly because they failed the fit to work test.

DWP shamed in parliament as MP breaks down reading list of suicide victims

Debbie Abrahams struggled to hold back tears as she read more than 20 names of those who had died after experiencing problems with the benefits system.

metro.co.uk

Anyone else have chronic pain and is thinking of ctb because of it?

I have a family so it really is the last resort for me, but it's daily torture.

I related to a lot of what you've experienced. Definitely makes it a lot harder to have any good days when you become so restricted by chronic pain. I also believe the total number of suicides they have linked to the UK benefits system is 69. I will link the article I saw this in below.

At least 69 suicides linked to DWP's handling of benefit claims

Report warns true number of cases where claimants took own lives as a result of DWP actions could be far higher

www.google.com

 

[MsMaudlin]

Hello,

I'm in the UK and in the same situation.

I got diagnosed with osteoarthritis and fibromyalgia a bit over a year ago. I have gone from an active mum to a poorly person in bed. I can't do anything, the house is a mess, I'm a mess. I just spend 98% of my time in bed.

I'm on 30 odd tablets a day, but still in agony.

I had to apply for PIP which got declined, the assessor blatantly lied so I had to take it to appeal.

So I'm going to CTB as I can't carry on like this.
❤

 

[jimbob1000]

I'm in chronic pain too, I feel sick every day, can't eat , every thing hurts, I feel so ill
That's why I want to ctb, can't bear anymore pain, got my pip assessment home visit tomorrow, hope it goes ok , tried morphine overdose 4 months ago but it failed and landed me in a mental hospital for a month, just want it all to end asap,
Regards from Barnsley, South Yorkshire

 

[oopswronglife]

I'm in the States but have the same experience. I have gotten worse over 20 years or so now and have used up about all my reserves in every meaning of the word. Denied all assistance. The hearings were all hostile and like interrogations. The conclusions were unfair and based on mistruths and unrealistic options. It's even worse here in that regard than most places because the society is generally entirely against "benefits" of any sort for others and social systems are an anathema...it's a very selfish and individualistic place. The UK is trending in that same direction sadly and acting more like Murica and less like Europe in all the bad ways. Even if one is fortunate to live in a place with wonderful support, social cohesion, and the best life possible, it's so very hard to live like we have to. If you are ignored, blamed, and left to your own there is no chance.

 

[yetme]

I feel ya. I'm in chronic pain due to untreatable antibiotic resistant infection which is slowly killing me. Every single day is an agony. I'm on tramadol and it barely takes the edge off. fuck this life

 

[Cave Johnson]

I really can relate with the pain. I'm in the USA and have been informed I do not qualify for any kind of assistance and am not classified as "disabled" despite the crippling pain. Mine's just chronic migraines but they won't even give me medication for it anymore.

 

[LastRide]

Hello fellow sufferers ! I am not in the UK and luckily I don't need to rely on benefits because (and it's a miracle !) my brain still kind of functions and I can continue working for now...but my body is making me go through hell everyday ! I have two rare genetic diseases, which means a heap of pills every day, if I forget to take one of my bloody meds I end up in the emergency ward unconscious and have to be resuscitated - I wish they would stop fucking doing that, then I would not have to plan to CTB my life would just end naturally. Is there not a fucking sign you can stick on your body saying "LEAVE ME ALONE - DON'T WAKE ME UP" ??? And the medication is slowly starting to fuck up my brain too, and if I lose that as well that's it, then that's me gone for sure, I am just so afraid of not being able to be myself anymore but in some medical-chemical braincloud. My partner of course left me after 11 years, saying she did not want to live with someone so handicapped and who had become so ugly because of disease...thank you ! When we got married I remember the words "for better, for worse, in sickness and in health" being part of the vows - they have fuck all meaning it seems ! All she wanted was the money I was making, and being able to show off with me (yes, I used to be quite attractive before my diseases broke out/became worse). So I've sworn not ever ever to fall in love anymore, that's another part of my life gone. All I cling to are my job, which I can do with my brain, and when that's no longer possible then the solution is ready....
Sorry for ranting, but I feel all of your pain reading your posts just like my own, and I just wanted to get this off my chest....please forgive me if I have bored you ! If there is anything I can do for anyone, feel free to ask !

 

[jimbob1000]

I feel ya. I'm in chronic pain due to untreatable antibiotic resistant infection which is slowly killing me. Every single day is an agony. I'm on tramadol and it barely takes the edge off. fuck this life

 

[Elbarado]

feel you, i have ALS life was fine 1,5 years ago,now its hell

 

[yetme]

Sorry for ranting, but I feel all of your pain reading your posts just like my own, and I just wanted to get this off my chest....please forgive me if I have bored you ! If there is anything I can do for anyone, feel free to ask !

It's alright mate! Those who don't have to live through the pain every single moment of their lives will never get us.
I'm bedridden already. I have a few friends who occasionally pop in to check on me and share their emotional problems, or work related problem, or whatever shit is bothering them. fuck me! I would rather have problems at work than live in this hell every day. and nobody! NOBODY will ever understand what we are going through. I was rewatching Donnie Darko the other night. what a great movie! There was a line which really got to me :
EVERY LIVING CREATURE ON EARTH DIES ALONE
people are used to think that bad things will never happen to them, that they're gonna live forever, but it's just temporary. our lives are temporary. everyone dies. no matter how much money you have, or how beautiful you are.. everything comes to an end

 

[LastRide]

It's alright mate! Those who don't have to live through the pain every single moment of their lives will never get us.
I'm bedridden already. I have a few friends who occasionally pop in to check on me and share their emotional problems, or work related problem, or whatever shit is bothering them. fuck me! I would rather have problems at work than live in this hell every day. and nobody! NOBODY will ever understand what we are going through. I was rewatching Donnie Darko the other night. what a great movie! There was a line which really got to me :
EVERY LIVING CREATURE ON EARTH DIES ALONE
people are used to think that bad things will never happen to them, that they're gonna live forever, but it's just temporary. our lives are temporary. everyone dies. no matter how much money people have, or how beautiful they are.. everything come to an end

Yes thank you I HOPE EVERYTHING COMES TO AN END, and very soon please ! Hugs to you and courage

 

[yetme]

need to crawl to the bathroom now... oh fuck this

 

[seafarer]

I'm in chronic pain too, I feel sick every day, can't eat , every thing hurts, I feel so ill
That's why I want to ctb, can't bear anymore pain, got my pip assessment home visit tomorrow, hope it goes ok , tried morphine overdose 4 months ago but it failed and landed me in a mental hospital for a month, just want it all to end asap,
Regards from Barnsley, South Yorkshire

Hi,I noticed you mention PIP assessment,I am a bit of an expert in these areas and have help many get PIP after being decline previously multiple. Most recent elwas a neighbour who turn for 3 years I tell him what to write and the proper words to use which is stupidly one of the main reason people fail the assessments because they use wrong Wats to describe their issues,so now after we sent that off and he did what I said in the interview he gets full mobility and lower care,then I got him with the ESA claim too not he gets combined 1250 a months. If you have any questions feel free to ask. Main thing is if you are having a home visit that is half the battle. If you going to go to a center for assessment they use that as a trap that you don't need help so whatever you do don't drive there yourself get someone to come with you. But that depends on if it's at home .edit just reread and you said home visit so that good. But not first impression you make will change how they approaslch the entire assessment. It should but it will
One more thing if anyone needs some.pointers ol or help with pipnor ESA claims in UK I can do my best to help. I myself. Just send me a message or askbon here,whatever you prefer. Cuz nllltrust me people you see in those articles and things about they didn't get is usually down to the way the application was worded and filled out. I fee tricks can double your point score to be and it is stupid it works this way but it's the system youyou are in and how you play it makes the difference

 

[jimbob1000]

We are all going through so much suffering, it's so sad, I'm in so much pain tonight , just like everybody here, thinking of you all right now as we are all suffering, and understand what it's like

 

[thisgoesupto11]

Wow, so many responses.. I am sorry for all of us that have to go through the pain, and in particular any added pain then from the very systems that are supposed to support us.

I feel like chronic pain needs a spotlight being shined on it. People just don't understand the many impacts that pain can have on someone's life.

In the UK we have a few support groups, but no real awareness. I feel like it's all swept under the rug

I would love to start a campaign to get chronic pain in the public domain more. Unfortunately I don't think I'd have the energy it would take to start campaigning!

Good to hear from other people though, means we are not alone. We deserve a voice though dammit.

Got to pick kids up now, more agony but they need me. Have to glue myself back to the sofa afterwards. It's just relentless isn't it....

Hi,I noticed you mention PIP assessment,I am a bit of an expert in these areas and have help many get PIP after being decline previously multiple. Most recent elwas a neighbour who turn for 3 years I tell him what to write and the proper words to use which is stupidly one of the main reason people fail the assessments because they use wrong Wats to describe their issues,so now after we sent that off and he did what I said in the interview he gets full mobility and lower care,then I got him with the ESA claim too not he gets combined 1250 a months. If you have any questions feel free to ask. Main thing is if you are having a home visit that is half the battle. If you going to go to a center for assessment they use that as a trap that you don't need help so whatever you do don't drive there yourself get someone to come with you. But that depends on if it's at home .edit just reread and you said home visit so that good. But not first impression you make will change how they approaslch the entire assessment. It should but it will
One more thing if anyone needs some.pointers ol or help with pipnor ESA claims in UK I can do my best to help. I myself. Just send me a message or askbon here,whatever you prefer. Cuz nllltrust me people you see in those articles and things about they didn't get is usually down to the way the application was worded and filled out. I fee tricks can double your point score to be and it is stupid it works this way but it's the system youyou are in and how you play it makes the difference

Hi Seafarer,
.I may well take you up on that offer! I am starting the process by registering for universal credit first. Then my work coach (hahaa) will see me to discuss ESA. It's all rather confusing, on purpose I'd say. Swines.

 

[Quarky00]

A list of 20 suicides read out in the house of commons, committed mostly because they failed the fit to work test.

If you ctb due to healthcare or welfare -- tell your story to your MP , to NGO , or a journalist

I have done so, make your voice heard

"Do not go gentle into that good night"

 

[jimbob1000]

Hi,I noticed you mention PIP assessment,I am a bit of an expert in these areas and have help many get PIP after being decline previously multiple. Most recent elwas a neighbour who turn for 3 years I tell him what to write and the proper words to use which is stupidly one of the main reason people fail the assessments because they use wrong Wats to describe their issues,so now after we sent that off and he did what I said in the interview he gets full mobility and lower care,then I got him with the ESA claim too not he gets combined 1250 a months. If you have any questions feel free to ask. Main thing is if you are having a home visit that is half the battle. If you going to go to a center for assessment they use that as a trap that you don't need help so whatever you do don't drive there yourself get someone to come with you. But that depends on if it's at home .edit just reread and you said home visit so that good. But not first impression you make will change how they approaslch the entire assessment. It should but it will
One more thing if anyone needs some.pointers ol or help with pipnor ESA claims in UK I can do my best to help. I myself. Just send me a message or askbon here,whatever you prefer. Cuz nllltrust me people you see in those articles and things about they didn't get is usually down to the way the application was worded and filled out. I fee tricks can double your point score to be and it is stupid it works this way but it's the system youyou are in and how you play it makes the difference

Thank you, i think the assessment went ok , but will see what happens, thanks for your advice

 

[seafarer]

Wow, so many responses.. I am sorry for all of us that have to go through the pain, and in particular any added pain then from the very systems that are supposed to support us.

I feel like chronic pain needs a spotlight being shined on it. People just don't understand the many impacts that pain can have on someone's life.

In the UK we have a few support groups, but no real awareness. I feel like it's all swept under the rug

I would love to start a campaign to get chronic pain in the public domain more. Unfortunately I don't think I'd have the energy it would take to start campaigning!

Good to hear from other people though, means we are not alone. We deserve a voice though dammit.

Got to pick kids up now, more agony but they need me. Have to glue myself back to the sofa afterwards. It's just relentless isn't it....


Hi Seafarer,
.I may well take you up on that offer! I am starting the process by registering for universal credit first. Then my work coach (hahaa) will see me to discuss ESA. It's all rather confusing, on purpose I'd say. Swines.

They have recently made it more sonfusing my adding another things called new type ESA as well as old style ESA for people to stop people like me being moved onto Universal credit as people took Dwp to court because when they swapped people from esa to UC they automatically got about £60 a week less even tho they had same problems and that's because they have removed the severe disability payment from universal credit that used to be available under ESA,so any new people going to universal credit are automatically getting less money then they would have under the old ESA rules so theygot taken to court and lost the case so once again stopped being able to move people over to if and if they did they have to pay the old money whicheans it's all one giant mess. As you can be in same exact situation but if you claimed a few years ago you are 200 a month better off than any one who is claiming now...so they have paused the UC rollout again to work out wtf they are doing. I could go on for ever about this total shitstorm. I'm luck as I claimed 6 years ago or more and this is where my Asperger's and attention to detail and facts paid off for me as I was able to work the system for maximum benefit without any lies or frauding my claim and I don't tell friends or family what I get because it's embarrassing to see their reaction.

 

[KiraLittleOwl]

I don't live in UK even but I think
Tories should set themselves on fire and then given a bucket 1/10 full of water to quench it.

 

[thisgoesupto11]

I don't live in UK even but I think
Tories should set themselves on fire and then given a bucket 1/10 full of water to quench it.

Brilliant, I totally concur!

 

[Scooby-Doo]

They all piss in the same pot. Never voted and doubt I ever will.

 

[Jumper]

CRPS (Complex Regional Pain Syndrome) is the primary reason for my suicide. There are other issues, but this is the main driver. I don't even want to identify as someone with "chronic pain". Just reading that makes me want to vomit.