I'm so sorry I'm not been able to get back to you but I've been so sick but I know you understand. I will try to get back in the next few days. I also have a severe a Babesia infection and two types of Bartonella and severe mold toxicity
I would love to hear how you treated . Take care!
Hey there, oh yes--I MOST CERTAINLY UNDERSTAND the horrible feeling that bc of being sick (and feeling bad to unimaginable depths that people who don't have the miserable "L-word + Co-infections" will not understand unless they have it/or have had it). I still say I would NEVER wish this illness on my worst enemy. To answer your Q (& I think it may have sounded as if I got "fully well* with my previous post, but I did not. I got to that 90% of regaining my good health in 2017, but then I lost the ground I had established due too many life stressors happening all at once. I remember reading that "The 3 biggest life stressors are: death, divorce & moving" (this is not set in stone obviously as Im sure there diff opinions out there)...but I'll be darned if I didn't deal with all 3 within a 2 month period....so boom, my health slowly started to decline again.
The way I initially treated was with approx 3 diff abx at one time, a few supplements/vitamins on the side and a little bit of natural antimicrobial things such as raw garlic, cinnamon from Sri Lanka, raw ginger and couple others. I was about 5 years in of treating ( but gosh that many antibiotics is SO HARD to take, as they have their own side effects and not to mention the dreadful and pretty long herxheimer reactions I would get...so I wasnt always consistent and would take breaks). Right before I got to feeling at that 90%, I had ordered the main tintures frome the Cowden protocol AND also the main ones from Buhner protocol as well. I started incorporating some of those(more like testing around with them) along with the abx and before I knew it, I had FINALLY felt like I had turned a big corner. I "was" always more into the western medicine world...bc, tbh, that's all I ever knew or heard of. So I never really gave the herbs ''a fair chance". During this time I did keep journals. I wrote down each day what I took, how I felt & any other notes I felt relevant to jot down. I always thought, "these journals may come in handy to someone else one day. [sigh-I can only HOPE & PRAY it will be myself again soon]. So after dealing with this crap for over a decade and taking so many abx...I no longer can handle all those abx at once. Like rn, I am on Doxy mono bc I have a touch of pneumonia in my lungs and I will take the weeks worth...but rn since starting the doxy, my joint are hurting more, I have nausea, pretty fatigued, etc...all herx-ing signs. Symptoms that I never got before getting stupid lyme+co's. ..like back when I used to take an abx and just get better!...like normal people do!.
Even rn, here goes my fingers and wrists starting to hurt just from typing this. I was SO HEALTHY prior to that damn tick bite!...and Im in my middle age, I KNOW this is not all from "getting older" (as some would say..)
So, I plan on likely using SN to CTB (or hanging). ...**IF**I cannot reach some sort of a good remissive state here in the next year or sooner. The thing is, I don't want to die, I just cant go on feeling like this. Its frkn PERPETUAL TORTURE! I feel like a damn burden to myself and others(esp my Fam...as "I" was always the strong one :*-( ). Push push push....is all my life has become. Trying to find a smile to hide the pain when my body and mind are going berzerko.
I plan on giving the herbs (mainly more aimed from the Buhner protocol) much more of a FAIR & ORGANIZED chance this time around. Such as cats claw, japanese knotweed, andrographis, arteminisin , ++more. They were and still are, such a big learning curve for me. I "might" incorporate the same abx I had taken around the time I first got to that 90%...but oh gosh, my body is gonna say F-U to me I already know it (mainly just tearing up the gut microbiome with yeastie beasties and all the not good stuff that 'long-term abx' will certainly do. The 3 abx that help me the MOST, were Zithromax/Ceftin/& Doxy. I do think the Mepron for babesia may have had its place too...but omg that stuff is sooooo expensive & insurance barely wanted to cover so I think I either did 2 or 3 months of it(& "they say" your supposed to give it at least 4 months, which apparently is long enough to cover the life span of a red blood cell...and babesia affects the RBC's). I did end up stock piling some Mepron, but now it has expired. Idt it is one of the drugs that would become toxic if expired(such as the family of tetracyclines become neuro-toxic if expired!) but Im pretty sure the Mepron, if anything, would just have lost a bit of its potency. Someone in this post mentioned Bromelain as helping for eye floaters. They may be on to something bc my llmd has been saying a lot of other patients have been having good results when adding in the Bromelain as a biofilm buster. (I did serrapeptase in the past...and who knows, that may have helped too(its in my journal--I don't recall taking much of it tho)...but apparently out of those, they're finding Bromelain as the best option.
I'm having some brain fog on/off today, so I hope this post answers your Q to the best way I could put it!
Im curious, what have you done so far to treat your lyme & co-infections thus far?
I know you have had a lonnnnng time at this point. I encourage you to *Keep HOPE alive* as it is possible that you could regain your health...but every treatment is diff for every person with diff infections and diff makes of each of our bodies. Trust, I need to *Practice what Im Preaching*. I used to have SO MUCH *Hope. I just KNEW I was gonna beat this thing. Some days my hope is LOST..at this point. Then other days, I still find a lil Hope to press on. Like I said, Im gonna give this my last best shot with treatment here soon(when I have only the most minimal obligations--like going to my family's for TG holiday coming up. I hope that I have started 'some' herbs by then..and I just hope I'm not having some crazy herx on the time of the holidays.
Remember the times "We used to LOOK FORWARD to the Holidays!"....gosh I miss it all so much. With having lyme, you NEVER KNOW how your going to feel from day to day. The Holidays now seem more like "Obligations and SO MUCH EFFORT & STRENGTH just to try and get through them".
Anyway, I hope this post finds You...*AND*....Everybody else here in the forum...having "one of our better days" at least.....((((HUGS))))
