I was poisoned by an antibiotic (Cipro) which has ravaged all of my connective tissues. Doctors have been of absolutely no help to me. Most deny Cipro even does this to people. They are dangerously ignorant. I've tried all sorts of things to try and lessen my pain (acupuncture, CBD oil, marijuana, neurontin, morphine, oxycodone, fentanyl, red light therapy, infrared, every supplement under the sun) and nothing has made any difference at all. So if I can't lessen my pain, I thought maybe I'd try hacking my brain to not care so much about being in pain--if that's even humanly possible.
It really irritates me that anyone would ever say that a medication does not cause an adverse effect. Every single individual is different - and while a drug may not cause an effect in the vast majority of people, it certainly can cause severe and devestating adverse events in the few.
I just did a quick search and found some interesting things about cipro and safety, that really seem to align with what you are going through, and NOT what doctors or others may be telling you:
- MedlinePlus had an important warning - you can see it here: medlineplus.gov/druginfo/meds/a688016.html (can copy the url into a browser and see this warning - it seems to me that it may well describe what you are going through).
- The FDA required a change in the product label for cipro, including issuance of a boxed warning(2016I think) - indicating a lot of what you describe (you can see the details of it here: www.fda.gov/media/99425/download - or search fda cipro safety warnings).
You mentioned you were bed-bound because of this? If possible, can you ask for those around you to search for a doctor - a really, really good one, who knows about Cipro effects and possible treatment modalities for you - there may be newer treatments out there that could potentially help and a doctor knowledgeable with the possible Cipro effects and who is understanding of what you are going through, may, just may, go the extra mile to try and find something that would work. I am so sorry you are in so much devestating pain.
And please know that what I am about to write is total speculation on my part without any research (and I am not a doc), but I am going to put it here anyway in the rare case it might help. There has been a lot of discussion recently about how important gut bacteria are - a lot more imporant than previously realized. Antibiotics typically wipe these out - and it takes time to recover. When I had my craniotomy, I was put on Levoquin, and the docs automatically also put me on probiotics, I was pretty surprised by this - never had that before in my many years on antibiotics. I am wondering if lack of these gut bacteria (either then and/or now) have led to your situation? Again, just pure speculation on my part - but maybe something to ask a doc about.
As far as hacking your brain, you could try deep hypnosis for pain relief (I did it the other day - youtube and it helped for a short while - but my pain was nothing on the scale of yours, so I am not sure how well this would work.)
