Anyone with physical issues and no mental health issues?

[Sweet emotion]

Hi, I have Complex Regional Pain Syndrome which is the highest ranking pain condition in medical history. I've had it for 14 years ever since I was 20. My life stopped in the blink of an eye. I haven't been living. I've been existing in the worst pain imagineable. People actually get their limbs removed to try and get relief. But I am that one percent that has it inside the ear canal, head, face, jaw, neck, and vaginal area. So I'm unable to speak or listen to any kind of noise which includes other people talking. This has kept me in isolation for 14 years. I am not physically able to do barely anything for myself anymore. My mother has to take care of me. I never got to find out what love is. And I never will. I never got to live any type of adult life. There are no treatments for this condition and no awareness that it even exists. I guarantee no one has ever heard about this. Even if you don't have my disease, is anyone killing themselves because they have a horrible physical illnesses or disease that has stopped them from living life? I see that everyone mostly is suffering from mental illness on this page. I admit I'm depressed and have anxiety but it only got bad when this started. If I didn't have crps I would be fine mentally. Can anyone relate to me?

 

[Dawn0071111]

A read a members post username Inconsequencial.... they seem to be here for pain primarialy

 

[Rachel74]

I have ME but it's not ruining my life just my head is.

 

[magick'sgone]

Mine are the two, intertwined. I have multiple fractures in my skull, which cause headaches, and makes me look weird. It doesn't matter how hard I work to eliminate depression and anxiety, or how much of a good day I feel i've had, as soon as I catch sight of my reflection I'm back to hopelessness.
I have lots of friends who like me, but people in general treat me with a lower value, and as if i'm disposable. I also have sleep apnea due to bone positions, so I'm permanently tired. I try to hide that.
It's a strange connection between the physical and mental health realms. Headaches keep me awake and hurt, but I can cope with that. The catalyst is physical but the worst symptoms are actually mental: Anxiety, depression, hopelessness, despair. All that good stuff.
Job interviews, shopping, weddings, travel, sports events, etc etc just aren't enjoyable activities anymore. Not directly because of my physical damage, but without the damage the mental symptoms wouldn't be present. It's like they come as a package.


I'm sorry to hear about your syndrome. It sounds fucking awful. I'm sure it must suck that people can't even see how it could be causing you so much pain, and they will never be able to grasp why it is so terrible. Is there any scientific progress with regards to moving towards a cure? I know this is probably of no help to you, but a friend of mine had horrendous cluster headaches and migraines. He'd be laid up in bed for days at a time, completely unable to do anything. He did some LSD once and found that the pain almost disappeared. He swore it changed his life. I don't know if the one experience was enough or if he had to occasionally trip balls, but it really worked for him. I hope and wish for a similar solution for yourself. Take care, mate :)

 

[DepressionsAHo]

Mine are the two, intertwined. I have multiple fractures in my skull, which cause headaches, and makes me look weird. It doesn't matter how hard I work to eliminate depression and anxiety, or how much of a good day I feel i've had, as soon as I catch sight of my reflection I'm back to hopelessness.
I have lots of friends who like me, but people in general treat me with a lower value, and as if i'm disposable. I also have sleep apnea due to bone positions, so I'm permanently tired. I try to hide that.
It's a strange connection between the physical and mental health realms. Headaches keep me awake and hurt, but I can cope with that. The catalyst is physical but the worst symptoms are actually mental: Anxiety, depression, hopelessness, despair. All that good stuff.
Job interviews, shopping, weddings, travel, sports events, etc etc just aren't enjoyable activities anymore. Not directly because of my physical damage, but without the damage the mental symptoms wouldn't be present. It's like they come as a package.


I'm sorry to hear about your syndrome. It sounds fucking awful. I'm sure it must suck that people can't even see how it could be causing you so much pain, and they will never be able to grasp why it is so terrible. Is there any scientific progress with regards to moving towards a cure? I know this is probably of no help to you, but a friend of mine had horrendous cluster headaches and migraines. He'd be laid up in bed for days at a time, completely unable to do anything. He did some LSD once and found that the pain almost disappeared. He swore it changed his life. I don't know if the one experience was enough or if he had to occasionally trip balls, but it really worked for him. I hope and wish for a similar solution for yourself. Take care, mate :)

I've heard of people doing it for cluster headaches. I heard it works wonders. I do have chronic pain but I watched one video of cluster headaches and i had to force back my tears. They have to be one of the most painful conditions in existence and i can't figure out why something like that would even exist. They're horrifying

 

[Sweet emotion]

Mine are the two, intertwined. I have multiple fractures in my skull, which cause headaches, and makes me look weird. It doesn't matter how hard I work to eliminate depression and anxiety, or how much of a good day I feel i've had, as soon as I catch sight of my reflection I'm back to hopelessness.
I have lots of friends who like me, but people in general treat me with a lower value, and as if i'm disposable. I also have sleep apnea due to bone positions, so I'm permanently tired. I try to hide that.
It's a strange connection between the physical and mental health realms. Headaches keep me awake and hurt, but I can cope with that. The catalyst is physical but the worst symptoms are actually mental: Anxiety, depression, hopelessness, despair. All that good stuff.
Job interviews, shopping, weddings, travel, sports events, etc etc just aren't enjoyable activities anymore. Not directly because of my physical damage, but without the damage the mental symptoms wouldn't be present. It's like they come as a package.


I'm sorry to hear about your syndrome. It sounds fucking awful. I'm sure it must suck that people can't even see how it could be causing you so much pain, and they will never be able to grasp why it is so terrible. Is there any scientific progress with regards to moving towards a cure? I know this is probably of no help to you, but a friend of mine had horrendous cluster headaches and migraines. He'd be laid up in bed for days at a time, completely unable to do anything. He did some LSD once and found that the pain almost disappeared. He swore it changed his life. I don't know if the one experience was enough or if he had to occasionally trip balls, but it really worked for him. I hope and wish for a similar solution for yourself. Take care, mate :)

No I would never do LSD. I'm sure it helped him because he was in an altered state of mind but didn't help his problem. Plus I go to pain management and am urine tested there so there no way I could do that. I also don't like tripping. I smoed pot and it gave me a four hour awful trip. I was getting violent and freaking out and wanted to die.
And I don't have cluster headaches. No they aren't doing much research is the department of CRPS even though people are killing themselves because of it every day. One guy wife had it and her doctor wouldn't give her anymore pain meds so he went in there and shot the doctor in the head and turned the gun on himself. Now the woman has no husband. Idk why he did that. Believe me I hate doctors too especially my pain management doctor. I just got off the phone with him and he's so arrogant and pompous.

 

[magick'sgone]

No I would never do LSD. I'm sure it helped him because he was in an altered state of mind but didn't help his problem. Plus I go to pain management and am urine tested there so there no way I could do that. I also don't like tripping. I smoed pot and it gave me a four hour awful trip. I was getting violent and freaking out and wanted to die.

I think it wasn't just an altered state of mind because the pain was definitely absent for an extended duration afterwards (weeks at least). LSD is actually out of your system by the time the trip has finished. It's less toxic than table salt. Yeah, I cant smoke pot for the same reason. I don't get violent but it messes with my head and is generally bad for me. Here are some videos I found on youtube. I've obviously not had time to watch them myself, but there appears to be a wealth of information out there.




There's loads of others there, too. I know you probably don't like the idea of doing "drugs", but mushrooms are far more natural than anything the doctor will ever give you. Even if you feel they could be harmful, they're still far less harmful than suicide. It might be worth a try if you're at your wit's end.
I'm not saying you have cluster headaches, btw. Just that if something has helped with them, they might do something for you.