Curious to know if anyone in here is struggling with untreatable chronic pain
Yes, I have this - it comes and it goes although it's largely on a progressive worsening trend.
Although the rest of my life is good, this is the one thing that is most likely to motivate a successful ctb.
Have been through almost all possible investigations and treatments except one.
However that one is rather expensive and may not even work.
I sometimes tell myself that it's worth it to just keep going for as long as possible until I have the money to facilitate the treatment.
But the intervening likely lack of any likely quality of life puts me off.
I'm at the beginning of a now worsening pain crisis. Problem is that the last pain crisis basically floored me, and this one promises to be worse than last time.
This time it seems to want to bother me on Xmas day, whereas I've had now a good 5 Xmas's where it's been absent.
When crisis hits, there are only a couple of options including going to the hospital - a largely pointless endeavour because of (a) the wait times, and (b) when they find out that it's a chronic condition they just refer you to your GP. They don't even give strong painkillers at the hospital these days. I have a script for some painkillers but their efficacy is questionable, I have had access to morphine and fentanyl previously but not currently.
Major difference between previous episodes and the here-and-now is that my wife is living with me for the next month or so before she returns to her country and we initiate Spouse Visa process.
She loves the crap out of me, is so supportive and makes things easier, and she's the one current protective factor keeping me from CTB. However, the pain and discomfort is something that you always have to endure by myself, even with the most loving other present.
there is likely to come a point, in-the-not-too-distant-future, where the love for myself overrides any other potentially protective factor and I go through with a plan. My other protective factor is my own spirituality and belief in longer-term karmic consequences of self-inducing CTB, but again this would be overridden at the right time.
What characterises this as a motivator for CTB is:
The unpredictability of the disorder,
its potential to switch on-and-off at totally unknown times with unknown severity,
Its manifestation as not-only-pain, but also bodily itching, spasms and weakness,
Its known aetiology/cause but unknown treatment, suspected irreversibility.
It's suspected/likely progression to a point where I would be unable to work, care for myself, or have input into my own care.
When I feel like this, every minute I stay alive is a miracle in and of itself.
PS. My pain is chronic/widespread that was caused by a self-induced compression injury to my TMJ/jaw-joint. Been to see some TMJ specialists in my country, some have suggested surgical interventions, others say it's a case of pain management... But how does one manage unmanageable pain?
Please have a low-pain day.