anyone else chronically ill?

[losergirl]

okay hi im here to yap again because i have no-one who gets it.

i am dealing with one auto immune disorder that makes my life unbelievably difficult. and im also getting blood testing for another this upcoming weekend.

ever since i was young ive dealt with firstly mental health issues and secondly im chronically ill but they both went untreated due to neglect and the fact that my family didn't take my health seriously. nowadays im 21 and i can barely work or be on my feet for prolonged periods of time without feeling like i will faint.

my hair is thinning.
im always nauseous.
im always aching.

sometimes it feels like what i feel isnt serious enough to speak about or "complain". i really feel like i should just end it due to the fact that i probably wont ever make a serious living due to my mental and physical health issues. i am constantly in so pain both physically and mentally.

all my family does is ask me "whats wrong, why do you look like that". its like they dont get that i am in so much fucking pain dude like how many times do i need to cry to you that im hurting.

im so fucking tired of all of this. im in so much pain as i type this and i have to clock into this miserable ass job. (only one that would hire me)

i feel so useless.
i said i have to clock in but i meant in the morning its 10pm as i type. i doubt ill be able to sleep due to the pain im experiencing rn

 

[tasmaka]

I completely understand, I hope your state improves, but I understand that statement stings to hear.

I have severe respiratory issues and a body basically held together by the clothes I wear. It sucks always being in pain or sick, and unable to do stuff considered "normal" for everyone. I understand the comments as well, it never gets better to hear, just more tiring.

I may be stupid and corny here but even though my body does nothing but break itself down while I am here, I hope and almost believe it will feel better one day, whatever that means but Ill live my stupid dream I guess lol

 

[losergirl]

I completely understand, I hope your state improves, but I understand that statement stings to hear.

I have severe respiratory issues and a body basically held together by the clothes I wear. It sucks always being in pain or sick, and unable to do stuff considered "normal" for everyone. I understand the comments as well, it never gets better to hear, just more tiring.

I may be stupid and corny here but even though my body does nothing but break itself down while I am here, I hope and almost believe it will feel better one day, whatever that means but Ill live my stupid dream I guess lol

hi thank you for the kind words. i am also sorry to hear that ur also suffering.

i genuinely hate the feeling and i wish better for the both of us.

i still kind of have a silver of hope that maybe one day i will physically feel better but idk

 

[tasmaka]

hi thank you for the kind words. i am also sorry to hear that ur also suffering.

i genuinely hate the feeling and i wish better for the both of us.

i still kind of have a silver of hope that maybe one day i will physically feel better but idk

yea I completely get it, if you ever want to chat feel free to message me, I hope we get to interact more in the future,
I wish you the best always

 

[woofwag]

I hope this isn't de-railing, but I do have a chronic disability although I wouldn't consider it a chronic illness. I suffer from POTS, and it is such a massive pain in the ass to deal with in my everyday life. I can barely pick up after myself because I'll go through horrible dizzy spells or episodes where I feel like I'm literally dying and crash onto the ground. Sometimes I can't even handle the pain of sitting up and have to lie down all day. But then that fucks with my back, and it's already likely I have EDS, so my sciatic nerve gets inflamed easily. So basically I can't win.

I get constant hot flashes, brain fog, insomnia, muscle aches (although tbh I'm a freak and kind of like that one sometimes), dysautonomia, constant fatigue, cognitive delay, and tachycardia/hypoxic induced seizures. Some days are better than others. But on any day I am still suffering.

 

[copioushopelessness]

Hi, I'm very sorry you're suffering like this and as a previous person said it can sting to even hear I hope your condition improves because for some of us it won't. Even the healthy eventually get sick if they don't go quickly. It's like a get well soon card may be appropriate for the flu but not for chronic conditions. I feel like people don't know how to help us because we are always sick. They can't just drop off some soup and hope to see us doing better next week so a lot of times they lose patience, gaslight us, resent us, call us lazy, but even well-meaning statements can hurt.
I'm sorry I wish I had better words but words have failed me the past year or two. I can totally relate. I am very sick. My severe autoimmune diseases have spread throughout my entire body. But, as fragile as we can be we can also endure quite a lot. I don't mean this in an insensitive way, I was already very ill at your age but if I had known how much worse it would get I would've tried to enjoy my twenties a bit more. Even if that were just enjoying some hot tea and my bed because people don't understand we can't always take the invite. We don't know from one moment to the next at what level shitty we are going to feel. We have enough to deal with so try not to let anyone bother you. I know you may want to ctb now but if you can try to enjoy these years. If it's too hard to I understand. I fully do. People don't get it until it's their bodies giving them a hard time.

 

[GyreOfAsh]

Yeah, I can relate. I suspect that I have autoimmune issues. Never been to a doctor so I don't know for certain. But I feel everything you described so often. It's partly why I'm so strict with my diet & intake timing. Due to my sibo/sifo, one mistake & I'll be looking & feeling real weird which would weaken my immune system.

If I do have an autoimmune disorder, it's probably from the child abuse I experienced. My sympathetic nervous system always had to be on as a kid because, at home, if I said or did something "wrong", the consequences were angry & violent. Wasn't all bad ofc. But the nervous system doesn't care about that.

This guy explains it pretty well in this video: