Help Akathesia and Benzo

[NeuroDamaged3]

Hey,

I have been on Clonazepam (aka Klonopin) 3mg per day for the past year and it got rid of my CTB-level Akathesia (pacing constantly, unending, or at best rocking back and forth on the bed). It's come back as my brain has slowly gotten accustomed to the Clonazepam. It also has side effects, I mean I didn't have good memory before but now it's horrible, especially long term. But the key thing is the side effects and whatnot doesn't matter to me because I was ready to CTB if I have Akathesia. I'll take anything and the benzo worked the best. I had a relatively okay year last year whereas without it or even before I took any benzos I had bad Akathesia.

I don't know what to do as it seems to be coming back and I've been given tons of meds before. I'm hoping that today is just a bad day and that it'll keep working, at least keep the akathesia away.

Otherwise, I feel anxiety and the urge to pace or rock back and forth in bed, endlessly, can't enjoy anything even a background tv show. It's literally hell.

Note: Please don't suggest going off benzos as that isn't possible for me. To do so would return to Akathesia and they're the only thing that makes my life bearable. I know they're not good, but its better than CTB.

 

[mow]

I have it too. Suicidal. Don't know how to make it go away.

 

[NeuroDamaged3]

I have it too. Suicidal. Don't know how to make it go away.

I just tried some CBD and it made it go away alot, it's not perfect but it helped.

 

[fly away]

I've been on Klonopin for over 10 yrs, 4 mg per day. It worked for yrs until it just stopped (I used it for sleep). But your body develops a tolerance to Benzos, like Klonopin , Xanax, etc. If I take the drug, it does nothing. If I don't take it even once, my body goes into physical withdrawal.
Benzo withdrawal is hell. I'm just going to stay on them forever (at least my forever)

BTW….CBD really helps. The anxiety and intense fear and muscle spasms,
I hope you can try some.
Sending hugs

 

[Rayzieka]

I recall the first time I experienced akathisia I thought I was going to jump out my bedroom window.
It was after I wake taken off Risperdal and I think put onto ziprasidone. The feeling was so heavy and I had no idea what was going on until I explained it to my friend in detail and they found out what it was. Triggered a mess of trying almost every anti psychotic they could think of to put me on, latuda, seroquel,zyprexa, invega, abilify, and others. They decided to put me on benztropine for the akathisia, it worked up until a point- it stopped working early this year and they decided to take me off of it and give me my second trial with latuda, it was absolutely horrid so now I'm on a second trial with saphris. Its still horrible but I've given up.
If you gaven't tried it already I suggest asking them for benztropine- it might work.

 

[jj83]

I have akathisia. It's a living nightmare.

 

[ExRN]

Thought I'd let people know I had akathisia after coming off clozapine too quickly. Clozapine 75mg was being used off label for my suicidal ideation (it's an antipsychotic and you need to start it in hospital because on of the risk of a potentially lethal side effect that I unfortunately didn't get).

Anyway, suboxone (buprenorphine + naloxone) stopped the akathisia in its tracks after about 30 min! I've been taking suboxone for akathisia for just over 2y now.

God, I remeber the excruciating restlessness that was absolutely intolerable. My psych gave me Ativan PRN for it... (something like 12 pills - what a joke) before I did my own research and got a doc to prescribe me a small amount of suboxone before a specialist prescribed me a steady supply.

Akathisia is one of the most hideous sensations you can have. Hopefully this helps someone!